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Latest Celiac Disease News & Research:
Everything posted by penguin
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ARCHIVED Safeway
penguin replied to Lister's topic in Gluten-Free Foods, Products, Shopping & Medications
Safeway (which is also Dominicks, Randall's, and Tom Thumb depending on region) has a gluten-free list you can call and ask for. It's HUGE so they have to mail it to you. A surprising amount of Safeway foods are gluten-free. Also, plain meats are almost always safe, and it has to be labelled if it's not, its the pre-cooked and marinated stuff you have to... -
ARCHIVED Fruity Pebbles
penguin replied to Mindy35's topic in Gluten-Free Foods, Products, Shopping & Medications
DH is the skin manifestation of Celiac, and those with DH usually have intestinal damage, even if they don't have symptoms. Oats are a big no-no. -
ARCHIVED Anyone Glutened By Bob's Red Mill All Pupose Flour Mix?
penguin replied to TCA's topic in Gluten-Free Foods, Products, Shopping & Medications
I've reacted to both of the products you used, at different times. -
ARCHIVED I Did It... I Made Bread!
penguin replied to jkmunchkin's topic in Gluten-Free Recipes & Cooking Tips
Set it to warm and prop open the oven door (with something like a wooden spoon) while the dough is in there rising. That should help -
ARCHIVED Bloodwork Back, Inconclusive - Now The Biopsy.
penguin replied to MrsC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had inconclusive bloodwork (only IgG was high) and an ok dietary response, and my PCP dx'ed me based on that. My mom's been harassing me about getting a colonoscopy done and full work up la-ti-da. I never got a biopsy, so I figure that as long as they're sticking tubes in places they don't belong, they may as well do a biopsy. Also, if I'm going to have... -
ARCHIVED Complicated Fertility Issues-but Could I Be Pregnant?
penguin replied to beelzebubble's topic in Related Issues & Disorders
My littlest neice at christmas, we were dancing -
ARCHIVED Observations After 4 Days W/o Gluten
penguin replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's what I thought to, with my inconclusive bloodwork and positive dietary response. Fast forward 4 months and here I am eating gluten like the pillsbury doughboy to have a biopsy done because I want to be extra sure of my dx...and I'd like my insurance company to be as well... -
ARCHIVED Complicated Fertility Issues-but Could I Be Pregnant?
penguin replied to beelzebubble's topic in Related Issues & Disorders
At least you always have someone to talk to, even if it is yourself -
ARCHIVED Need Food Ideas For 5 Hr. Flight
penguin replied to popoki321's topic in Traveling with Celiac Disease
Explain to me why they can provide a vegan meal which, not to offend anybody, is IMO a dietary fad, but can't provide a medically necessary meal!?!? American-based airlines suck! -
ARCHIVED For Those Who Need Food Ideas For Long Road Trips
penguin replied to Carriefaith's topic in Traveling with Celiac Disease
Do you happen to know the name of the brand that makes the in-car cooker? -
ARCHIVED No Delicate Way To Say This But....
penguin replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't worry, we're all comfortable talking about poo Pale stools are a symptom of celiac. Giving TMI about myself, for almost 4 years mine have ranged from "summer squash" to "pumpkin". Nobody seems to concerned about it for some reason, but it is a signal you aren't absorbing stuff or that you're digesting too quickly, I think. -
ARCHIVED Do Restaurants Use gluten-free Ovens?
penguin replied to gabby's topic in Coping with Celiac Disease
And maybe some foil or parchment for them to bake it on... -
ARCHIVED Ok, I Gotta Ask This...
penguin replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I never knew that wasn't normal! I'd love for the dips and divots to go away from my nails, also! I wish the diet would stay out of my hair, though! The last thing I need is THICKER hair!!! I already have the hair of 4 people! -
Yes, about the ear syringe. Like the blue ones you use for babies. I did that exactly once, and it was so gross that I couldn't do it again. It was especially nasty because I had burned off pieces of skin and bone com out from the caudery work. Ewwww!!! The little one is my littlest neice, in a rare cuddling moment It was taken at Christmas, in Syracuse...
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Ahh...nothing quite like nasal irrigation! I had my adenoids out and sinuses widened and I had to do salt water irrigations with a BULB SYRINGE!! Yuck! I've gotten those on the inside of my nose before, too and they lasted forever. I figured it was an ingrown nasal hair or something, it eventually went away. But until then, they hurt like hell!
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ARCHIVED Should I Go Back
penguin replied to Lister's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Try to be calm with your doctor. You've said yourself that you've been bugging him, and I'm sure he thinks you're a hypochondriac. He sees you as crying wolf all the time and now that there is a wolf, he's not paying attention. Make sure you only call your doctor during business hours. Try to talk to his nurse or something if you can, and don't harass... -
Low blood pressure runs in my family. I have normal blood pressure, but my mom and grandfather are low. My mom has been hospitalized with a salt deficiency, and she hates to salt food, because it's all salty to her. Curiouser and curiouser... Eat more tomatoes
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ARCHIVED Bloodwork Back, Inconclusive - Now The Biopsy.
penguin replied to MrsC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Me too! Your gastro appointment is 2 days before mine! I've been gluten-free for 4 months, back on gluten a week. I feel like crap, but at least it tastes good! Remember that you have to keep up eating like, 4 slices of bread or the equivalent a day. -
ARCHIVED Allergy Vs. Celiac
penguin replied to nursestherapies's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not communicating well either You can be gluten intolerant without being celiac. A wheat allergy doesn't usually cause the same symptoms as an intolerance. If your RAST test comes back negative (and they aren't *that* accurate anyway) all it means is that you aren't allergic to wheat and that you are either gluten intolerant or celiac. ... -
ARCHIVED Allergy Vs. Celiac
penguin replied to nursestherapies's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, they aren't mutually exclusive. Celiac disease and wheat allergy aren't related. Celiac is an autoimmune disease like diabetes and a wheat allergy is well, an allergy. For example, a diabetic is intolerant to sugar and the body reacts to it, but the diabetic is not allergic to sugar. It's a poor analogy, but that's basically how it is with celiacs. ... -
ARCHIVED Allergy Vs. Celiac
penguin replied to nursestherapies's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, it just confirms that you don't have an allergic IgE response to wheat. It does suggest an intolerance, at least, if you feel better on the diet. -
It's an undertaking!!! You should be safe using parchment on your baking stones. Since parchment is paper coated with silicon, I don't think any residual gluten should be able to get through that. I use parchment to make pizza on my old stone all the time and haven't gotten sick!
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ARCHIVED Question For The Recipe That Was Posted For...
penguin replied to Turtle's topic in Gluten-Free Recipes & Cooking Tips
I HIGHLY reccommend using parchment paper when baking anything on a baking sheet. gluten-free baked goods are an extra challenge because they seem to be stickier. Parchment makes it a breeeeeeze And no frustrating attempts to scrape your $15,000 (those ingredients are spendy!) cookie off your pans! -
ARCHIVED A Number Of Questions For Those With Blood Sugar Issues
penguin replied to Clark Bent as Stupor-Man's topic in Coping with Celiac Disease
First, If you're hypoglycemic, I don't think you can eat too freqently, unless you feel like you're going to explode, of course 1.) Have you been officially diagnosed with any blood sugar condition (ie. Diabetes type 1 or 2, reactive or fasting hypo, impaired glucose tolerance, etc.)? Reactive hypoglycemia when I was a teenager. 2... -
ARCHIVED Is There A Safe Drive-thru Food I Can Eat?
penguin replied to Mabc's topic in Gluten-Free Restaurants
Ditto! You can have anything at chipotle EXCEPT for their flour tortillas! The only things they fry are the corn tortilla shells and chips, so those are safe too! I avoid the lettuce and cheese, though, since workers use their hands to dish those out. I always have them change their gloves, and I always get the bol. I've been wanting to...