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penguin

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Everything posted by penguin

  1. penguin
    Sorry Paulina, but I beg to differ!!!! THE GLUTEN IS WHAT DOES THE DAMAGE! The body creates antibodies to fight the gluten and then the antibodies think that the villi are gluten too, and attack! Here's something from the CSA: "The Damaging Proteins The term "gluten" is, in a sense, a generic term for the storage proteins that are found in...
  2. penguin
    So I talked to this Marsha lady, and she was concerned. She did, however, imply that Amy's wasn't what made me sick. She said they're going to do the testing on the lot, but that that product has never tested positive for gluten. They are definitely concerned about it, albeit defensive. I did make sure and tell her that I commend what they do by making gluten...
  3. penguin
    The way you describe it, his behavior is bulls*it at best and abuse at worst. Challenging you to make yourself sick is NOT support. It also worries me that he seems to know what and when the accidents were, but won't tell you. Not to sound paranoid, but is there any chance that he'd be intentionally glutening you as a test? I agree with the others...
  4. penguin
    How about a whole new house? Kidding, I was just going to say that you can still use your baking sheets in the interim by lining them with parchment paper first. Also, you need to replace your wooden spoons and other cooking spoons. Also wooden cutting boards and baking stones (if you use any)
  5. penguin
    No offense, and as someone that doesn't know you or him, his version of "support" that you describe seems abusive. Personally, I have a very limited bulls*it tolerance, and I would have slapped him by now. It's a serious lifetime change, and you two need to evaluate, calmly, whether you can both deal with that. It's going to be rough for a while no matter...
  6. penguin
    I don't know anything about a "little white pill", but I know some things that might help you.... I find that drinking a red bull really helps with the brain fog, post glutening. It has a lot of B vitamins and taurine and it helps you focus. Also orange juice and zinc tablets help. I've been known to chew spearmint and cinnamon gum when I need to focus...
  7. penguin
    I can't give up Aveda salons. Can't do it, went to one yesterday and got a fantastic haircut and great color. Incedentially, the lady that owns the salon is gluten intolerant! I don't think she's real serious about the diet, though! I didn't get sick (knock on wood) from doing the whole shebang, so maybe there's hope You can't beat Aveda...
  8. penguin
    I can honestly say that I didn't skew mine, I listed my symptoms as abdominal pain, D, foul stools, and cramping. I didn't expect it to come up, actually. After all, if no dr's suspected it, why would it obviously show up on a symptom checker on the internet? DH said after I told him about it, "now why don't doctors have something like that?" Why...
  9. penguin

    ARCHIVED Milk!

    penguin replied to VydorScope's topic in Related Issues & Disorders

    Amen, though I think it tastes more like hay than chalk. For me, as far as the soy goes, I'm in the "one crisis at a time" mode. I'll get the gluten stuff figured out, then I'll worry about everything else. Especially since I'm feeling good. I don't get much soy, though I do enjoy endame every now and again. How much are lactaid pills, anyway...
  10. penguin
    I didn't do well on the Levsin, that's why I have the Bentyl. I think it works better and faster, too. My dr originally gave it to me to yes, stop the D cramping, but also to stop the digesting-glass pain in my actual stomach. It was a nice (and effective) change from the narcotics the dr would thow at me. It was a clue to the dr when the bentyl didn't...
  11. penguin
    I've had the annoyance of which you speak for a long time. Just one in a laundry list of symptoms that I chalk up to celiac. I get it from stress, usually. Not really from foods, unless I've been glutened. Tums, prilosec, tagamet, tylenol, tibetian chanting under a full moon on a tuesday when the planets aligned ( )...nothing seemed to help. I...
  12. penguin

    ARCHIVED Milk!

    penguin replied to VydorScope's topic in Related Issues & Disorders

    True, I'm not that sure about ice cream either, but it's hard to tell the difference any more! If it's only a little bit of ice cream, it's ok, but I can't eat the whole carton at a sitting like I'd like to do It's also hard not to eat the whole tub of kozy shack I attribute the discomfort to both of those as just eating too much of it in one sitting...
  13. penguin

    ARCHIVED Milk!

    penguin replied to VydorScope's topic in Related Issues & Disorders

    I have no issues with cultured milk products (cheese, yogurt) and some other dairy products (pudding, ice cream), but I have a bit of a problem with say, drinking a whole glass of milk. It's made me kind of queasy since I was a teenager, so I usually just use the lactaid milk, I've never used the tablets. It works fine for me! I tested negative for milk...
  14. penguin

    ARCHIVED Pets With Cd

    penguin replied to plantime's topic in Publications & Publicity

    Well of course they did! The Great Dog People of Milkboneistan were the first to cultivate the land (organically, of course) while us homosapiens were still figuring out how to build a campfire. Early dogs were actually vegan. Raw vegan. Meanwhile, the Fantastic Felines of Catnipdu were known for their puff pastry. Cats were the first known protesters of...
  15. penguin
    Not everybody has instant reactions, or much of a reaction at all. You have a potentially fatal disease, and it is nothing to mess around with! You have to be around for your husband and daughter, and if you're not going to stay on the diet for you, stay on it for them. Stay on it for your mom, who worked so hard to keep you healthy while you were home! You...
  16. penguin
    Mine came up from diarrhea: 1. Celiac 2. Chron's 3. Bowel obstruction weight loss was definitely NOT one of my symptoms...but still came up celiac! Where the hell was this three years ago!?!?!
  17. penguin
    That was quick! Here's the response I got from Amy's... Chelsea, I am sorry to hear you became ill after eating some of our products. I would like to talk to you about this in more detail. Did you save the packages for these four products? If so, I would like to get the lot numbers so I can send in our retains for testing. Could you send me...
  18. penguin
    Mine are 4th grade Juniors, too! I have 12 of them, none of them mine. How funny! I'm the only celiac, although before I came to the troop there was a celiac girl, but she dropped out Might explain why the girls are so cool about it, though!
  19. penguin
    I missed lots of class because of horrible pain...so I know where you're coming from! It sucks, sorry... If you're missing class anyway, sit and moan in the GI's waiting room Sorry you feel so crappy, I hope you find relief soon!
  20. penguin
    I just emailed them that I felt betrayed and that I would likely not be buying any more of their products, and how sad it made me. It really does, because the food is yummy!
  21. penguin
    The endoscopy is no big deal, for me, the worst part was the nasty spray for my throat! They keep you well drugged, and you'll probably say some pretty loopy stuff to the nurses. I think my throat may have been a little sore and I was sleepy the rest of the day, but I was totally fine the next day. It's a piece of cake! Make sure someone is with...
  22. penguin
    Throw words around like "lawyer" and "HIPPA" and "Better Business Bureau" and "American Medical Association". That should get you your records with lightning-fast speed. I've had similar issues, and no matter what they say, you have right to an *exact* copy of your labwork for a second opinion or for your own records. I spent a lot of time the other...
  23. penguin
    Wow, that sounds pretty good, actually. I've had bad experiences with odd cereal treats (dorm used to make them out of whatever stale cereal they had leftover), but with the addition of pb, sounds awesome!
  24. penguin
    I know there've been posts about Amy's and glutening, and I remember someone calling the company about it, how did that turn out? I've tried 3 things by Amy's, two were near the beginning, and one was today. There was one in my freezer and I was too lazy to make anything else for lunch. I was definitely glutened, and I really know that now that I know...
  25. penguin
    I'm so sorry about your friend. Please except my condolances (((hugs)))
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