Jump to content

Fiddle-Faddle

Advanced Members
 View Profile  See their activity

  • Posts

    3,968

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    And don't forget exercise!! Yeah, I know it's hard to exercise when you feel lousy, but if YOU don't move, neither do your bowels. Walk, swim, or (if you're up to it) run for 30 minutes a day. If you're walking, outside is best--being out in the sunlight (even if it's cloudy) will help you to synthesize vitamin D.
  2. Fiddle-Faddle
    Not necessarily, gfresh--I've had 2 endoscopies, and they looked at ONLY stomach and esophagus. In my case, they were looking for Barrett's esophagus, and were not suspecting celiac at all.
  3. Fiddle-Faddle
    You need to be aware that insurance companies can also use a diagnosis of celiac to deny you coverage, especially if you ever have to switch jobs, insurance companies, etc. (they claim you have a pre-existing condition and then they either deny you coverage or raise your rates). I have read posts on this board from a few years ago where both health insurance...
  4. Fiddle-Faddle
    I've read somewhere (sorry! can't remember where) that very sensitive celiacs do better when they avoid all grains anyway. I suppose that the proteins of most grains would have vaguely similar molecular structure? And someone who is terribly sensitive to one grain (and had suffered years of intestinal damage and autoimmune involvement) would have...
  5. Fiddle-Faddle
    I apologize for the length of this, but please feel free to print out and bring to your pediatrician!! The Warranty of Vaccine Safety For Pediatricians Physician
  6. Fiddle-Faddle
  7. Fiddle-Faddle
    Hey, I'm interested in ANY info you find on this! According to Open Original Shared Link even the soy sauce containing wheat marketed in American supermarkets is gluten-free; they say that the fermentation breaks it down, and that it's safe for both celiacs and those who are wheat-allergic. If I had really obvious gluten reactions, I'd try it--but...
  8. Fiddle-Faddle
    But the written languages are the same, so he will still be able to communicate in writing! Kikkoman claims that the fermentation process renders their soy sauce gluten-free--not just below "legal" limits, but below detectable limits. I have not tried their soy sauce since reading this, but wonder if most (if not all) soy sauces would therefore be okay...
  9. Fiddle-Faddle
    You will need a new colander/strainer for pasta, as it's impossible to get all the gluten off of those once they have been used on gluteny pastas! Also, a new toaster, unless you have a toaster oven (which is much more easily cleaned of gluteny crumbs). Many celiacs replace everything in their kitchen. I didn't ask my hubby to eat any remaining gluteny...
  10. Fiddle-Faddle
    One of my son's classmates had some kind of damage--he was in severe pain for days afterward. Apparently, they nicked something. I am hearing more and more stories of damage--but then again, there are more and more endoscopies happening, so perhaps the rate of damage has not increased, we're just hearing more about it. Or perhaps endoscopies, like all...
  11. Fiddle-Faddle
    I thought Pizza Fusion was okay, but not fabulous. But back in my gluteny days, I thought that Domino's Pizza was also okay, but not fabulous. So maybe I'm not a good one to ask! It IS nice to be able to go out for pizza (they also deliver, though not an hour and a half away!) and not have to make the crust myself. But I'm getting a lot better and faster...
  12. Fiddle-Faddle
    Unless you get the awful dermatologist I had--he told me that it didn't matter that I had already been gluten-free for a month, and that it didn't matter that I'd been on prednisone for 10 days. Then, when the results came in, and my IgG was STILL ridiculously high, he said that my results were normal and that celiac had been ruled out. On the other hand...
  13. Fiddle-Faddle
    My solution was to make gluten-free breakfasts and dinners (I like to cook, and I'm good at it), but to let everyone else have their own bread for lunches. This drastically reduced the gluten that everyone was eating--and lo and behold, the eczema and tummy aches that were plaguing all three kids got WAY, WAY better. So we tried a gluten-free household...
  14. Fiddle-Faddle
    Julie, if you've already had positive blood work AND a good response to the diet, then the gastroscopy is unnecessary UNLESS the doctor is looking for something other than celiac disease. However, the doctor's bank account might think that a gastroscopy is totally necessary! Gastroscopies (yes, also called endoscopies) are not without risk, including...
  15. Fiddle-Faddle
    I think there probably are several factors, including when your celiac was triggered (i,e,, childhood or adulthood), how much damage you had before diagnosis, and what kind of damage it was (to intestines, skin, neuro, etc).
  16. Fiddle-Faddle
    How do we know the difference if our kids have gotten over a short-term intolerance to lactose or if they have maladapted to casein? My son was never tested, he initially had diarrhea with milk, so I immediately stopped all dairy, and introduced it over a year later, but very, very slowly. He hasn't had problems since, but I don't feel like waiting around...
  17. Fiddle-Faddle
    I've been fine with both Honey Kix and Strawberry Chex, but I don't seem to be extremely sensitive to cc (to my knowledge, anyway), so that's probably no help to you.
  18. Fiddle-Faddle
    Folks are not vaccinating their children because they are seeing their friends', neighbors', and relatives' children go for their vaccines as healthy children and come back from their vaccines not just unhealthy, but with their lives ruined. When my SIL's SIL saw what had happened to her child, she didn't take long to put two and two together, and she...
  19. Fiddle-Faddle
    I found out the hard way that if you already have a DH outbreak, topical gluten makes it worse--much, much worse. I know what the logical conclusion is about ingesting gluten. But I also know what I experienced (and that was before I knew what gluten was, and didn't understand why the anti-itch lotion and oatmeal baths were making it so much worse).
  20. Fiddle-Faddle
    This might be of interest: https://www.celiac.com/articles/331/1/The-S...ease/Page1.html
  21. Fiddle-Faddle
    You're jumping to conclusions when you state that his research scared parents into refusing to vaccinate their child. The conclusion of his research was to urge parents to use separate, individual vaccines. If he pointed out that there was obviously an issue with the MMR, and his conclusion was to use an alternative vaccine or set of vaccines, then HE...
  22. Fiddle-Faddle
    sbj, this is not correct!!!!! Wakefield has said ALL ALONG that parents should NOT stop vaccinating, but should give separate measles, mumps, and rubella vaccines. He NEVER said to stop vaccinating for measles. His concern was that the measles and mumps vaccines not be given together or even close together. Yes, measles can be deadly--but that IS rare...
  23. Fiddle-Faddle
    By itself--yes, it looks like coincidence. But factor in facts: The high numbers of autistic kids who have "IBS" The high numbers of autistic kids who do well on a gluten-free/cf diet The high numbers of already-diagnosed celiacs who have an autistic relative--or conversely, the high numbers of autistics who have a celiac relative. Consider that...
  24. Fiddle-Faddle
    Thanks!
  25. Fiddle-Faddle
    There are problems with anecdotal evidence, I agree. But there are as many and as serious problems with "scientific" evidence. That leaves us with both or nothing. If we throw out anecdotal evidence, then we throw out experiences like that of someone I know (my sister-in-law's sister-in-law!) who has video footage of her child the day before...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.