Fiddle-Faddle
Advanced Members-
Posts
3,968 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by Fiddle-Faddle
-
ARCHIVED No More Gluten Free Menu At Bravo?!
Fiddle-Faddle replied to mesmerize's topic in Gluten-Free Restaurants
I wonder if the manager left? I've met the manager who started the gluten-free menu in Mt. Lebanon, she started one at Cranberry first, and she was just wonderful. They did not have an official gluten-free menu, but they had all kinds of options, including gluten-free pasta, and the chef came and talked with me and told me that nearly all the sauces were... -
ARCHIVED Anyone React Less To Cooked Gluten?
Fiddle-Faddle replied to rainabear's topic in Coping with Celiac Disease
I've seen "rice malt" listed occasionally on ingredient lists. Why can't they just make it from rice all the time instead of barley??? -
ARCHIVED Anyone React Less To Cooked Gluten?
Fiddle-Faddle replied to rainabear's topic in Coping with Celiac Disease
Now you're making me hungry!!!! My favorite brownies are in Gluten-Free Baking Classics by Annalise Roberts. I've had reasonable results with GFPAntry brownies, but they are a bit soft. I was planning on adding some almond meal and some extra chocolate chips next time, but ate up all the chocolate chips instead. -
ARCHIVED $1,000 Worth Of Tests
Fiddle-Faddle replied to jasonD2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Once you are on the gluten-free diet, the blood-tests for gluten will not be accurate.... -
ARCHIVED Anyone React Less To Cooked Gluten?
Fiddle-Faddle replied to rainabear's topic in Coping with Celiac Disease
I know you don't feel that you are lashing out! You certainly don't seem to be the sort who gets her jollies from attacking innocent newbies! But just because you don't feel like you are lashing out doesn't mean that JNBunnie doesn't feel lashed by you! Heck, I felt like I was getting lashed, and you weren't even talking to me!!!! lol I would think... -
ARCHIVED Please Consider What We Are All Here For.
Fiddle-Faddle replied to a topic in Coping with Celiac Disease
Now you are picking my post apart--and misquoting me, too!!! I said that it is artificial to have ONLY hugs and positive support. It's like asking people to only say, "yes, dear, you're right," and telling people that if they have another perspective, no matter how helpful or correct they may be, that they should keep their mouths shut. -
ARCHIVED Doctor Appointment Shocker
Fiddle-Faddle replied to Ridgewalker's topic in Parents, Friends and Loved Ones of Celiacs
Can't remember if I've already suggested it (Mommy brain, sorry), but please read Unraveling the Mysteries of Autism by Karyn Seroussi. I am NOT suggesting that he is autistic! It's just that many autistic children have celiac, too, and she mentions withdrawal syndrome, too. Systemic yeast infection (candida) might be a factor, too, also vaccines. There... -
ARCHIVED $1,000 Worth Of Tests
Fiddle-Faddle replied to jasonD2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you not improving on a gluten-free casein-free diet? Is that why he wants to order tests? Seems to me you might be able to figure out any other food problems by doing a simple elimination diet--did your doctor suggest that yet? Of course, that's $1000 that stays in your pocket, not his. -
ARCHIVED Anyone React Less To Cooked Gluten?
Fiddle-Faddle replied to rainabear's topic in Coping with Celiac Disease
I am not a mod, but I don't believe it was abusive. However, I think DestinyLeah certainly misunderstood your original post. I thought you were very clear that you did not purposely consume gluten. DestinyLeah, I think your heart is in the right place, and that you were trying to help. But I don't understand why you would not want to apologize for misunderstanding... -
ARCHIVED Suspected Fibro Dx
Fiddle-Faddle replied to tarnalberry's topic in Related Issues & Disorders
The only thing that keeps me from investigating Lyme for me is that the one "episode" (they told me it was cellulitis) that might have been Lyme-related 20 years ago was treated with 3 weeks of antibiotics, and I've never had any other symptoms since. But if I had a dx of fibro, I would want to rule Lyme out before considering treating the fibro, partly... -
ARCHIVED Please Consider What We Are All Here For.
Fiddle-Faddle replied to a topic in Coping with Celiac Disease
Nobody has taken anything away from anybody. There are many different kinds of support. Everyone here who posted on this thread tried, in their own ways, to be helpful. If you don't like the kind of advice that was offered, you don't need to follow it. And I don't understand why you wrote, " But I guess that I didn't realize that within the ... -
ARCHIVED Suspected Fibro Dx
Fiddle-Faddle replied to tarnalberry's topic in Related Issues & Disorders
I think something is CAUSING the lower serotonin levels in the first place. A syndrome is a cluster of symptoms, CAUSED by either a disease, or poisoning, or infection, or....(fill in root cause here) I think lower levels of serotonin are another symptom (and a very important one), but not the root cause. -
ARCHIVED Anyone React Less To Cooked Gluten?
Fiddle-Faddle replied to rainabear's topic in Coping with Celiac Disease
Rainabear (love the name!), is there any wya you can convince your mom that gluten is literally addictive? There are studies showing that it creates a opioid response in the brain (which is why we can't stop eating the pasta, bread, cookies, cookie DOUGH, etc). Karyn Seroussi wrote a fascinating and very well-researched book about this: Unraveling the Mysteries... -
ARCHIVED Suspected Fibro Dx
Fiddle-Faddle replied to tarnalberry's topic in Related Issues & Disorders
But have they determined that those biological findings are not found in the celiac population? Even most of the fibro "experts" are totally unaware of any connection with gluten. I suspect that fibro is kind of like a neurological equivalent to refractory sprue, and in the most severe cases, the damage is too severe to completely heal even after going... -
ARCHIVED Please Consider What We Are All Here For.
Fiddle-Faddle replied to a topic in Coping with Celiac Disease
Things are often far more complicated than they seem. Nobody can "start" a fight between two people who get along, unless those two people decide to fight. Sometimes there are 3 sides to every story--1) what one person thinks 2) what the other person thinks 3)what really happened that neither one of them totally understood. Communication is... -
ARCHIVED Insensitive Spouse
Fiddle-Faddle replied to p38lightningbolt's topic in Parents, Friends and Loved Ones of Celiacs
I'm sure that he loves her, and that he loves you, too. But that doesn't justify abuse. Ignoring a 2-year-old or getting very annoyed with a 2-year-old is not good parenting, period. As to whether it's usual--look at any inner-city bus stop, and you'll see lots of low-income moms, snapping at their babies for crying, or even hitting them, or else just... -
ARCHIVED Link Between Celiac And Learning Disabilities?
Fiddle-Faddle replied to cruelshoes's topic in Parents, Friends and Loved Ones of Celiacs
I made up a story to go with each spelling word, and the story would explain what the stupid letters that don't make any sense do. For example, in the word "fright," the g and the h are so frightened, they don't make a sound. -
ARCHIVED Link Between Celiac And Learning Disabilities?
Fiddle-Faddle replied to cruelshoes's topic in Parents, Friends and Loved Ones of Celiacs
My son made his letters this way, too! He made his check marks backwards, tooo. We broke the letters into individual strokes, like Chinese Calligraphy. Practice writing the first stroke (down and to the left for capital A) 5 times, then the second stroke 5 times, then put the two together, then the third stroke, etc. I know it sounds tedious, but... -
ARCHIVED Anyone React Less To Cooked Gluten?
Fiddle-Faddle replied to rainabear's topic in Coping with Celiac Disease
I'm guessing that the imitation crab contained wheat starch, which in theory is supposed to be gluten-free, but in reality often does contain residual gluten. Also, SOME imitation crab does not contain gluten! I think the Trans-Ocean brand has potato starch, not wheat starch. -
ARCHIVED Link Between Celiac And Learning Disabilities?
Fiddle-Faddle replied to cruelshoes's topic in Parents, Friends and Loved Ones of Celiacs
Glad you have music in your life! But sorry to hear that violin was hurting your arm. There are some stretching exercises I learned this year in PT that really help with that. Let me know when you take lessons again--I also might have some good shoulder rest ideas for you. Would you like me to try to find you a Suzuki teacher in your area? If your... -
ARCHIVED Cold Meds...
Fiddle-Faddle replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I know colds can be absolutely miserable, especially when you have little ones depending on you! I'm sorry you got caught. But keep in mind that those very symptoms that make you feel so horrible are actually doing a job against the germs. Knock out the symptoms--and you knock out your body's best defense against the germs. It will take LONGER to get... -
ARCHIVED Suspected Fibro Dx
Fiddle-Faddle replied to tarnalberry's topic in Related Issues & Disorders
So sorry to hear you have yet more to deal with. I don't know if you ever followed the "OMG" thread, but I did for quite a while (wish I satill had time to). I think you should consider pursuing an assessment for Lyme disease from a "Lyme-literate" doctor. (You know how so many doctors are totally illiterate in celiac? Apparently, it's even... -
I couldn't access it, either.
-
ARCHIVED Saw Gastro Specialist Today
Fiddle-Faddle replied to LoriC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your blood work is likely to be NEGATIVE if you have already started the diet--Hope your gastrs is aware of this (many are under the misconception that bloodwork will be positive no matter what, but this is not the case). Either way, hope you are already feeling better! -
ARCHIVED Link Between Celiac And Learning Disabilities?
Fiddle-Faddle replied to cruelshoes's topic in Parents, Friends and Loved Ones of Celiacs
Ursa--wonderful picture! Both your daughter and grandbaby are beautiful! Just curious--are you still learning violin? Does that change anything for you with the dyscalculia? Interestingly, the R arm doesn't really support the bow--the strings do. The arm just guides the bow back and forth and adds weight when necessary. But most violin students...