gfp
Advanced Members-
Posts
2,054 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by gfp
-
ARCHIVED False Negative Biopsy?
gfp replied to JamiD's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I understand everything up to the last paragraph? You already have a diagnosis and your doctor supports it? The fact your biopsy is negative really means nothing... except your probably doing OK at gluten-free. You could die and they could autopsy your intestine inch by inch and still find no major villi damage and it wouldn't mean you were not celiac... -
The two often go hand in hand As for CC... Its a dead cert if you cook gluten... we are all humand and make mistakes and for you and I cooking is a frantic affair of creativity... (I can tell from yourt post ) .... I can honestly say you'll do it again because you sound so much like me and I tried so hard to do it and failed.... As a illustration...
-
I gotta agree with debbie.... either the CC or an extra intolerance or something on top.... Regarding your diet though... you don't say why you can't eat cholesterol and unless you have been told so by a doctor and being tested regularly you might want to reassess this. Depending what fish you are eating you could be not getting anytihng like enough cholesterol...
-
ARCHIVED Any Suggestions For Gluten Free Dining In Sydney
gfp replied to amber's topic in Introduce Yourself / Share Stuff
Just a question but have you tried the Pizza's (place in Melbourne who's name escapes me)..I wish I could remember the name but its on a long "hip" shopping St. runs more or less N-S and next door to a Russian resto/cafe... if you go a bit further up there is a bar on the corner, kinda rough looking camera over the door and a sign saying "no shirts or ties... -
ARCHIVED Gluten Or Sick
gfp replied to confused's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
fever is normal for getitng glutened.... -
ARCHIVED In Hell
gfp replied to newyorkdave's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dave, all I can tell ya is its like giving up smoking... lets take em in a different order 1/Moderate to severe depression 2/Irritability 3/Loss of hope 4/Lack of sexual desire 5/Decreased ability to get erections (embarrassing but I'm being honest) 6/Paler skin 1-3 are all depression.... or different ways of wording it... 4-5 are very normal... -
ARCHIVED My Husband Thinks It's All In My Head
gfp replied to HAPPY DOG SUZ's topic in Coping with Celiac Disease
Aha... I beg to differ that you didn't do anything.... and I think this is the best advice you could have given... I can understand partly why a spouse/parent/child gets sick of hearing about our illness ... I don't agree with it... but I can understand why.... its a huge shame because I think many of us this is the hardest part. I think... -
Yeah but think about the bigger picture... you eat veg fed on poop and nearly all living matter has been microbes at some point.. I once read that everyone has at least one atom of Julius Cesar within them... and in any case, once it gets in your stomach its going to be digested by microbes anyway? Not saying what you should do, just another viewpoint...
-
Eating soy as a large part of your diet as a celiac is IMHO just asking for another intolerance. I'm not rabidly anti-soy.... I just think its one of those things where if you start relying on it as a protein source its asking for trouble. If it were me I'd take it as a warning shot and stay well away (I just try and moderate soy,)
-
ARCHIVED This Is My First Post! Looking For Advice
gfp replied to GraceE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you go gluten-free it can be an intial roller coaster... Once you stabilise then you might start feeling a whole lot better in many ways you hadn't even thought... At that time if you want a diagnosis you will need to eat gluten again.... If you feel as good as I did it will be the last thng you wanna do.... so I would suggest getitng tested before... -
Thanks, my best ones aren't on flickr since I sell them so
-
ARCHIVED Europe... Madrid, London, Paris
gfp replied to camila's topic in Traveling with Celiac Disease
This is excellent advice, its what I try and do myself.... In general I find lunch the hardest meal... any major city people are rushed so its the hardest time I find... having an apart-hotel means you always have a backup and somewhere to prepare packed lunches etc. although I have done inventive things with kettles or irons for reheating food its much... -
ARCHIVED Europe... Madrid, London, Paris
gfp replied to camila's topic in Traveling with Celiac Disease
Well I can help with London and stuff but unfortunately board rules prevent me linking to the site I maintain for Paris and I got no intention of rewriting everything so your on your own finding my site (google will find it) London is getting very good... most major supermarkets carry gluten-free stuff and several chains also do gluten-free food... My... -
Its a long story, the short answer is in my profile..... I joined the group simply because I got hundreds of invites... silly really bowing to peer pressure but its kinda flattering... Anyway I just accepted an "invite" and thought little of it until some script banned me for not inviting enough other people to the group! Personally I find that kind...
-
ARCHIVED How Strict gluten-free Diet Has To Be?
gfp replied to dalma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dalma, your pharmacist should change the meds for equivalents if they exist... often one brand is gluten-free and another not Gluten addiction is also real ... and the hard part is if you keep getting glutened... because at first it offsets your hard work and also restarts the addiction.... I can just say it gets easier and easier... knowing... -
ARCHIVED Mcdonalds Fries Not Gluten Free
gfp replied to pnltbox27's topic in Gluten-Free Restaurants
Richard, Im not familiar with when they started the Gluten policy but they were aquired by Phillip Morris in 1985 ...(according to their website Open Original Shared Link However they were already part of Nabisco ... in the way these companies arte all tied together and as I remember Nabisco was already owned by a different tobacco company anyway...... -
Anyone wants to see some of my photo's check here Open Original Shared Link
-
ARCHIVED Mcdonalds Fries Not Gluten Free
gfp replied to pnltbox27's topic in Gluten-Free Restaurants
Most fast food places have a rule about dropped food, not just McDo's and its if its dropped but not long enough to get cold you just brush it off and package it... its not like its an official rule its just one of those things where pressure of keeping with minimum turnaroud pushes people... I have a friend worked in a big supermarket chain and they had... -
It is, the gorilla is advertsing for a gluten-free resto.... I just thought it was funny... I sometimes feel like I have someone dressed outrageously stood behind me when I'm explaining to waiters ... and everyone is suddenly staring ....
-
http://farm1.static.flickr.com/185/433809188_91b4d4a9d3.webp Can't decide, is this like when we think we have two heads? Is everyone staring ? Or is it an add for a service where someone dressed as a gorilla stands behind you as you order making sure the staff don't forget?
-
ARCHIVED Mcdonalds Fries Not Gluten Free
gfp replied to pnltbox27's topic in Gluten-Free Restaurants
This isn't really arguing, its just a different perspective.... Coming from the UK (originaly) the UK adopted the CODEX 200ppm standard ... At first I thought it was OK and they wouldn't have adopted it if not... we all perceive what we want ... but it wasn't until I went 100% gluten-free that I actually noticed I did react... Largely, I got tired of over... -
ARCHIVED Mcdonalds Fries Not Gluten Free
gfp replied to pnltbox27's topic in Gluten-Free Restaurants
deb, that is the bottom line.... I agree not everything said about McDo's is actually true.... however enough of it is from my viewpoint to put them in the I don't trust them bracket. The declaration of the "no beef" for instance is well documented and while I agree we have to be careful about "urban legends" (we have little anough choice as it is) ..... -
ARCHIVED Mcdonalds Fries Not Gluten Free
gfp replied to pnltbox27's topic in Gluten-Free Restaurants
You want talking down... no problem... Do a google search on McDonalds and court cases.... McDonalds lie about anything they can... you can find 100 court cases where they have presented misleading evidence or simply lied... some of the stuff they have said isn't even believeable such as the president for McDo Japan saying if Japanese people ate more McDonalds... -
Before even reading the rest.... Change your mindset.... look at it like this... you went without all the other stuff and then you ruin it with a single slip.... I don't agree that "lets hope you don't react" because at least now you have the proof you need... we all need confirmation from time to time and you got it so instead of looking back look forwards...
-
ARCHIVED How Strict gluten-free Diet Has To Be?
gfp replied to dalma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In the end only you can answer that question because being 100% totally gluten-free is really not possible if you intend to live a near normal life. This means that from time to time we all take some risks and get caught out .... Now from my standpoint how you control those risks is what is most important... and this counts both health wise and your own...