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debmidge

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by debmidge

  1. I don't think I've been saying the same thing in every thread...I am adding to the topic everytime I post. I feel I am adding to the conversation and also interjecting something I know through my life's experiences and that I too am a professional for a living. I don't think anyone else is complaining.
  2. Lisa, Which town are you in? I have cousins in Kill Devil Hills and my family vacations OBX every Labor Day weekend. I was down there with them in 1996 and 1997 and there was a hurricane. We were staying in house on beach in Duck. Loved it there immensely...would like to move there eventuallly. Debbie
  3. Tiffany, Have you started a gluten free diet? D.
  4. Okay, let me put another wench in the works....every wrong diagnosis my husband got by gastros was when we were NOT in an HMO. We paid in full for all of this krapolla out of our own money - that's like an HSA. We went to what is considered the best medical group in our state. So, we went from doctor to doctor to doctor with an open wallet and wanted...
  5. Many people with health plans are limited to the doctors they can see. Many plans do not allow you to see a Dr. outside your plan. I've noticed many plans have the same roster of doctors and those that are outside their plans are the better doctors. Additionally, you should be able to know the doctor's history before you make the appointment. For...
  6. Pixiegirl, You are 1000% right.... Message for all: Being a stockbroker and a doctor are 2 different things. More care is needed as a doctor. As a stockbroker, you are handling money; doctors handle sick people: between the two what profession is there more important to know your subject matter? medicine. Like you Pixie, I am in the...
  7. I don't cut doctors any slack on this one..... A gastro should be working WITH the patient instead of AGAINST him. What I mean by that is that the gastro should do the necessary tests to eliminate the obvious health conditions; then when those tests don't show anything the gastro should consider if it's something the patient is consuming. In my husband...
  8. My husband has had misdiagnosed celiac disease (27 years) and a yr after he was finally correctly diagnosed he had endoscopy w/biopsy and Dr. found: 1) ucler almost healed and attributed to celiac 2) gastritis attributed to celiac 3) esophogitis attributed to celiac 4) hiatal hernia - unsure if related to celiac, but it wouldn't surprise me if it were...
  9. when an insurance company turns you down for something, they have rules set up by the local state governments which apply to appeals and arbritation, etc. If the insurance co. is denying you coverage, you have a right to make a written appeal and maybe even go put a complaint in against them with the State Dept. of Insurance (state that you live/work...
  10. Isn't the Clan Thompson guide updated either monthly or quarterly? I don't have a Palm Pilot, so I'd have to utilize it in my home computer.
  11. J-Man, you asked if you can be born with Celiac .... as per a prior post, it's genetic and has to be "triggered." As an example, my husband developed his at age 27 and was misdiagnosed (like a lot of celiacs are) with IBS until he was 53. In those "lost" years he developed other health conditions and it robbed him of youth and health. It runs in...
  12. If anyone has experience with these items please let me know your opinion Which is best for the money? 1) Celiac Sprue Assoc Annual Product Guide notebook or 2) Clan Thompson's internet product guide ?? Thanks D
  13. Just wanted to say I am grateful that this board exists. I don't know what I would have done without it. I think about this everyday when I use it.
  14. Sorry for the long post, and it doesn't just cover celiac disease as a topic: I would disagree with the notion that you can escape from your desk better with a cubicle. My husband has celiac disease, I just have lactose intolerance. I had been working in office/cubicle world and had a co worker who would run into the boss whenever you were away...
  15. George, We have a problem accepting the results of my husband's York Nutritional testing. His FOODS TO AVOID: Corn Cow's milk soy bean cashew* almond* Yeast wheat egg yolk** lentils* hazelnut* chili pepper* * foods he hasn't eaten in over 20 years ** egg yolk: sometimes when cooked, it loses it's ability (in some people) to have an...
  16. someone correct me if I am wrong..but I thought that best method of taking B12 is sublingual. My husband uses Trivita brand (mail order) and they say their product is gluten-free.
  17. When the Crest Pro Rinse came out several months ago, we called Crest and got the same answer. So we don't use this stuff.
  18. Bernadette I worked with a woman who had this problem too. She avoided corn as it gave her MS-like symptoms. She and I went to dinner once and she was telling me about it as she was ordering her dinner. I was surprised to learn it was corn that was the problem. Best wishes, Debbie
  19. Dave it's not much consolation but my husband got celiac disease at age 27 too, but was misdiagnosed for about 26 years. He had to stop working when he was 29 and hasn't been well enough to work since then. Thankfully you obviously got diagnosed early on. My husband too believes that he has more than celiac disease but haven't got a proper diagnosis...
  20. If you read the CSA pamphlets about celiac disease you'll note that "reduced padding on feet" is a sign of celiac disease. So it makes sense to conclude that the celiac can lose padding elsewhere (face, hands, arms, legs, buttocks). The reduced padding (fat) is what is causing tailbone pain because there's nothing to "cushion" the act of sitting for...
  21. J-Man, Well sorry about that news....she doesn't know what she's missing in you. Obviously you are the best choice for her in that you care enough to keep her gluten free. If it happens that she doesn't get back with ex & you happen to be the guy she wants, then keep in mind to take care of you going gluten free so that when ahem, smooching might...
  22. Danijela My husband has celiac disease & was midiagnosed 27+ years about. Saw 3-4 gastros and many GP's. Last gastro who diagnosed him told him that nationality that gets celiac disease the most is Irish....my husband is Italian/German/Danish background. Maybe Irish slipped in unbeknownst to him, but he doesn't look Irish, if anything he...
  23. I like buying my fresh meats at Whole Foods, a little pricey. I once saw turkey made by ?? don't remember who, but it said GLUTEN FREE on the label. It is my understanding that Butterball doesn't inject anything gluteny in their turkeys, just don't use any packets that come with the bird. But you should call Butterball to check it out... My husband...
  24. golidaman I wish you peace in your situations...you are overwrought and have every right to feel that way. Your family and yourself are all tired. The cooking is a chore and in beginning hard to get right (label reading and calling manufacturers are key). You need to cook large quantities of gluten free foods and get big containers so that you can...
  25. golidaman I wish you peace in your situations...you are overwrought and have every right to feel that way. Your family and yourself are all tired. The cooking is a chore and in beginning hard to get right (label reading and calling manufacturers are key). You need to cook large quantities of gluten free foods and get big containers so that you can...
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