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debmidge

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by debmidge

  1. debmidge
    Take time to get checked out by ob/gyn to make sure that there isn't anything going on that is not related to celiac disease like tubal pregnancy, uterine fibroids (which can come at any age and give you heavy bleeding, bleeding between periods and body-shaking cramps; and long periods (like 8 or 9 days). The fibroids can make you start spoting several...
  2. debmidge
    We had the same question about Mrs. Mays - wheat free statement on bag. However, keep in mind that they are made (I recall) in China. Problem: Is Mrs. Mays really sure of what the rice malt is? Maybe the "Wheat Free" label is correct and that's why there's no "GLUTEN Free" statement on label because they just can't be sure.....I don't trust every company...
  3. debmidge
    I have read portions of Dangerous Grains and would concur that after reading it, I, a non celiac (my husband has celiac disease), have second thoughts about eating gluten.
  4. debmidge
    Didn't know which area to post this. Medical data about celiac disease says that celiacs are born with gene, gene gets triggered either at birth or later in life. I want to address topic of those whose gene gets triggered later after birth - 10 - 20- 30 years later. During those "Twilight" years where the person has no celiac symptoms - and...
  5. debmidge
    Suppliers to pharmacetuicals: The FDA mandates that the drug co. must use the same suppliers over and over. The suppliers however are more than likely not in USA; some Europe, some Asia. I don't think the FDA has much supervison over foreign suppliers other than the drug companies must test the suppliers stock BEFORE they use it to make sure it's pure...
  6. debmidge
    To those who say they are Pennsylvania Dutch, is that the same as Amish? to those who are Scotch or Irish; is Getty an Irish or a Scottish last name?
  7. debmidge
    Also inactive ingredients are not subject to change. For example, when the formula is approved by the FDA the pharmaceutical company has to use the same "receipe" over and over. The pharmacecutical company has no control over the supplier's cross contamination issues. If you haven't fixed your problem by 9 AM on Monday, then get phone number from...
  8. debmidge
    My relative works for Alpharma, which bought out Purpac and that relative says: They don't say something is gluten-free as they are being honest because they don't know if something their supplier provided may have gluten in it or could be cross contaminated at the supplier's end. ****************************************************************...
  9. debmidge
    Politics is involved in any venture where there's money and public issues at stake. For the right money, you can get a politician on your side. That politican can make the case for you and garner more support for your issue. This is called "Special Interests Groups." Almost all "causes" have this: environmental, the disabled, the elderly, etc...
  10. debmidge
    The CSA book is good but there are a lot of holes. For instance, I wanted to find out in it if Dinty Moore Beef Stew is gluten-free. The book mentions maybe one or two Hormel items but not the Dinty Moore Beef Stew. I go to Hormel website and they have a Listing of gluten-free products which includes the Dinty Moore Beef Stew. Even with the book...
  11. debmidge
    The cornbread is made by me here at home and I use Ener-G corn flour, Ener-G tapocia starch, gluten-free corn meal, egg, milk, gluten-free baking powder, gluten-free xanthan gum, normal salt, normal sugar, sometimes I add gluten-free sorghum from Bob's red mill. that's it. All gluten-free as far as the manufacturers tell me. He cannot digest other...
  12. debmidge
    Wendy, wish that could be good news. husband lives on cornbread and cream style corn and will be very, very, very upset if he has to stop. He began eating cornbread upon learning of his new celiac disease in 2003. Cream corn is one of only two vegetables he can have. Eliminating this will be disasterous mentally. To make it more difficult, he...
  13. debmidge
    This is an interesting topic but I think it boils down to revenue issues with restaurant. The subsitution had to do with their cost of pasta vs. potato. The restaurant should adopt policy of "Substitutions due to allergies will be accomodated but will result in an additional charge of $1.00 for each substitution." for instance. There's also...
  14. debmidge
    Keep in mind that here in NJ especially in Toms River area and entire length of Rt. 35 and Parkway, what appears on the map to be an hour's drive is more than an hour due to the volume of traffic. This is an unfortunate truth here in NJ. Especially in Summer months. I understand that there's a new Whole Foods in Middletown NJ which is west...
  15. debmidge
    It would be almost impossible to do any of the aforementioned using a chat forum...as we are so spread out. You can join CSA and start a group near you (they have a stupid rule that you need to be a member in an ongoing group for a couple of years before you can start your own sub-chapter in your area, but it's a stupid rule and I think you can get...
  16. debmidge
    celiac3270, if you are still emailing out lists, please if you have time send one to me at mtod714@aol.com Thanks. Debbie
  17. debmidge
    I've got a twist on it... I am the wife of celiac disease and I have dreamt that my mom made a gluten-free plate of spaghetti for him (she hasn't cooked for us in decades! at least before my husband went gluten-free.)
  18. debmidge
    I was afraid of corn being the answer....he's sensitive to corn as per York Labs..but also sensitive to yeast, egg yolk, soy...there's nothing left for him to eat. I can't tell him not to eat corn - he's too close to doing himself in already. If we take more food choices away from him I am afraid he'll go over the edge. Also, he cannot afford to lose...
  19. debmidge

    ARCHIVED Npr Story

    debmidge replied to lovegrov's topic in Publications & Publicity

    celiac3270, in the NYC area, what radio station is NPR? What numbers on Am or FM dial? Thanks, Deb
  20. debmidge
    Gillian's Bread Crumbs should be on the list. My in laws, who are not gluten-free breaded chicken with them (first try out of gluten-free bread crumbs ever). We sat down to eat them and they had a terrible after taste. We removed the bread crumbs from the chicken by getting a large, wide skillet; poured fresh water in skillet and placed our chicken...
  21. debmidge
    P.S. I can also envision renting a "table" at a street fair and loading it up with brochures (no food, as you wouldn't have insurance for that) and info just to greet people who are at the street fair and to pass celiac disease info out. But the brochures again cost money. Why aren't the local chapters of the celiac disease support groups doing this...
  22. debmidge
    Sorry to say, what you are describing should be the purpose of the celiac organizations. It takes money to do this type of work. Perhaps CSA and GIG associations should merge and take this on. Without an already established org I see your idea as follows: 1) Form panels for each activity. Panel for hospitals, panel for doctors, panel for...
  23. debmidge
    what does "SCD" mean?
  24. debmidge
    Sue, what is ttg? egardner: good point about diabetes being a factor. I'd like to know more about to neuropathy that isn't related to diabetes - neuropathy that's related to celiac disease. My husband has neuropathy that started slightly after he went gluten-free (coincidence I think) but hasn't cleared up in two years since gluten-free...
  25. debmidge
    Looking for advice from those who have this condition. Did Dr. connect it to celiac disease? Did it go away? Do you have it with restless leg syndrome?
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