celiac3270

I do want to mention, though, that despite getting offended over this, you're still welcome to join us here. Just please try to be more sensitive to our situation. Thanks

[please read all the way through...it's not all an angry tirade]

Mmm...gluten, you're going to call me touchy too for saying this, but quite frankly, I don't care. I have a few things to say and I don't care what you think of me as a result.

First off, I don't think you're in a position to be telling us what's absurd and what isn't. We're the ones who have been doing this for a year, or two, or twenty. We've read the books, researched the internet. So here we go:

I have only been gluten free for a week or so, so I haven't noticed any changes yet, but my initial reaction was exactly the same as yours. I still haven't decided what I think yet, but I have to admit I was laughing hysterically at the "kissing someone who ate gluten" thread. It seems so patently absurd that I damn near fell out of my chair. I was close to writing everyone off as a bunch of hypochondriac martyrs, but I figured I should at least give gluten-free a shot and see how I feel.

First off, the amount of gluten necessary to contaminate a person, whether they feel it or not, is 1/48th of a slice of bread. That's a few crumbs...so it's not ridiculous at all that kissing someone who just ate a bagel could contaminate you. Additionally, processed foods usually have a degree of contamination, but nowhere near what is necessary to hurt you (maybe 5 ppm or something). Add the inevitable contamination that is in the average gluten-free diet to the kissing and the other disregarded contaminants and you have a problem.

And we are not hypochondriac martyrs. I can only speak for myself, but I can guess that nearly everyone who read that and had symptoms was pissed off and deeply insulted. Most of us have been extremely sick, some almost dying, and then you have the nerve to call us hypochondriacs? That's the same shallow thing everyone said to us before we had a diagnosis.

Interesting.. Hopefully this leads to more tasty gluten-free foods. Some of the stuff out there tastes like the packaging it comes in!

Probably because one week in, you haven't found all the best brands: Kinnickinick, Ener-G, Tinkyada, Glutino... and you don't even need to buy most of your stuff in a healthfood store. So many companies list gluten clearly on the label (i.e. don't hide it) and the companies that don't usually have a list (FritoLays, Hormel, etc.) And you can just eat unprocessed foods: meats, veggies, fruits, etc.

Agreed, that's why I said I haven't noticed any changes yet. Notice I also never said "screw the diet". Jeez, you people are touchy. Must be all the crappy tasting gluten-free food! Anyway, how do they confirm that the gluten-free diet is "fixing" things? Another endoscopy?

Another insult to our food which you've only experienced for a week. And yes, via endoscopy or bloodwork. I had another endoscopy.

Yeah, my doc said it was in the "beginning stages", although I am not exactly sure what that means or how he figured it out. Anyway, like I said, I'm going to give gluten-free a shot and see what happens.

You probably hadn't had it for a long time (which is lucky as in the US it takes an average 7 years and 97% of celiacs don't even know they have it) and therefore, your intestines maybe hadn't been destroyed yet.

Apparently people here have thinner skins than most, so I will try to keep that in mind. You are exactly right in interpreting my message though - I just didn't get it.

We're just sensitive about people insulting or belittling us or the diet. And defensive, having to deal with this all the time and dealing with the "it's all in your head" comments prior to diagnosis.

"OMG, help me, I can't have gluten, oh lawd, please, let's all go hug a gluten-free tree" type, but more a suck it up and deal with it type

Me, too. Knowledge is power...and there's nothing you can do to change it...that was my opinion, as well.

Who sent you a PM?

Finally, this isn't all bad. I do appreciate that you became more sensitive in the end.

-celiac3270

I have mixed feelings on this.

On one hand, those who are coming here who cheat have a right to, and perhaps don't yet know about the repurcussions. If they come here, they might be taught enough to influence their way of thinking.

On the other, I can see your point, that it may become frustrating answering the same question and listing the same related disorders over and over again.

My point is that I see your point, but maybe it's just hard for these people to change, even though they want to. After all, if they really didn't care, they would probably just go on with their lives and not post at all.

The Wise chips I've seen are in a blue/yellow bag (I think?) and don't have an owl, lol

Open Original Shared Link

Open Original Shared Link

And to those of you who were mentioning concern about genetically modified foods:

Open Original Shared Link

I think I am a bit confused about something. I have read some posts where some of you have said that you got positive blood test results, but wanted to get an endoscopy for a solid diagnosis. What else would make the celiac panel positive beside gluten intolerance/celiac? Would it be possible to have positive blood work, and not have any issues with gluten? Sorry if this is stupid but I just dont get it..

Sabrina

Yes. Positive bloodwork is really all you need for a positive diagnosis of celiac disease. Traditionally, though, doctors like to perform an endo. as well; if damage is found in the intestines there's basically no doubt about it then. The thing is, even if no damage is found, the patient should still go gluten-free on the basis of pos. blood--and the damage might have been missed, etc. It's not possible to have pos. bloodwork and no issues w/ gluten...well, if the testing was messed up or something, I guess you could get a false positive, but if you accurately get tested pos. for it, you have an issue with gluten, whether you feel it or not...

Not stupid at all...

Here's a link to many of the problems associated with celiac. Untreated celiac disease can give you cancer, type 1 diabetes, osteoporosis, malabsorption, arthritis, lupus, neurological problems...the list goes on and on:

https://www.celiac.com/st_main.html?p_catid...-05105162400.d1

I know. Although sometimes I have to put off venting for a few hours so I can cool down... like when a kid flicked cookie crumbs in my face...didn't post about that one, though--happened a few days ago... nobody gets it

-

As Kaiti said, gluten will be clearly listed. All of Yoplait is gluten-free unless there's something like granola in the cap or something. I eat Yoplait often......

lol ...nah, I can last three or four.

Great article...longer and more in-depth than most of them.....

Haagen-Dazs will mail you a gluten-free list, but basically just avoid Dulche de leche and all the obvious ones: brownies, cookie dough, strawberry shortcake, etc.

Wow...$15,000 so far! Too bad it's the CSA and not GIG or some research program, but hey, it's celiac.

Sent and sent.

Oh, that's interesting, Addicted2Gluten... Always good to know what the professionals recommend.

Congratulations . Now add to your signature: gluten-free since May 11, 2005!

I don't think I have social anxiety disorder or anything, but I just strongly dislike talking on the phone . I e-mail unless I need a quick answer or the company seems to dance around the topic in their e-mail response.

I need some helpful advice. Over a month ago I was diagnosed with celiac disease. I have coped with gluten-free diet and that has eliminated diarrhea. So I feel much better. However, none of the tests (blood or biopsy) showed anything positive and the stomach wind and indigestion has not cured itself, at least not yet. Is it too early to ake other action? Could there be another factor? I did experience some trouble with tortillas, but not other forms of corn. It was suggested to start eliminating foods to see.

Between getting on this gluten-free diet, being Type 1 diabetic lifetime, what else is out there?! 

Hello and welcome

Okay. First, were these tests done prior to or after going gluten-free. If after, your results could have been thrown off from no gluten in your system.

I think it's a little early to strongly suspect something's wrong--it could take five months to feel better--but if you'd like to investigate other problems, that's probably best, anyway.

The type 1 diabetes could very possibly have come from untreated celiac disease as that is a symptom.

I often gurgle, too...but I only hear it when the whole room is quiet

Okay! Right now it's...about 5 your time, so I'll make sure not to think anything until about 11:30 ET... LOL...no good intestinal vibes before, though.

Good luck! Just not intestinal yet

Open Original Shared Link -- about osteoporosis and celiac

Open Original Shared Link -- Gluten Free living releases Spring issue of magazine

Yay...good luck! . We love you, too

Sorry--I mean tarnalberry two Tiffanys here...

I'm also strongly in favor of many categories...it's difficult with message boards that have a general category and then only one or two others...not organized enough...and like Tiffany said, you can just view new posts...that's what I do