celiac3270

I like their grape jam.

Oh, right! I forgot that they even made stuff beyond juices! ....good to know that they're completely gluten-free

Remember that whether or not you have symptoms, it will still affect your body just as much to eat the rolls. Symptoms aren't always dependable or predictable--before being diagnosed, I would eat a huge bagel every morning and be fine, but if I ate a slice of pizza, I'd get really sick. The bagel still damaged my intestines just as much, but for some reason, it didn't provide external symptoms.

Two weeks is usually too soon to heal entirely, but some have their symptoms vanish after two weeks on the diet. I think most common is the 2-5 month range for symptoms to vanish if one had symptoms in the first place. It is not terribly uncommon, though, to follow a strict gluten-free diet and still have symptoms many months in--some take over a year to feel totally healed. I'm still feeling sick 10 months in....and I am ultra-paranoid about contamination and everything, as well.

Anyway, welcome to the boards.

-celiac3270

I'll be trying them . I've tried two cereals by Envirokids, both of which I've liked more than cereals made by other gluten-free brands. I've tried the gorilla munch or something, which is like corn pops or kix, i think, except that they have some sort of cane sugar on them. Then I tried a frosted cereal of some kind...taste like Frosted Flakes in my opinion. Thanks for the recommendation....

-celiac3270

That does sound fun! I've tried that mix, but as a spice cake and it's great!...nice and fluffy.

That's great! You are making headway--that must make you feel good!

McDonald's gluten-free list--for the USA is here: Open Original Shared Link

Many chains have gluten-free menus for us....i don't eat out or travel much so i don't remember many, but if you look around, you're sure to find five or six.

I prefer to bring a lot of my own food, cause I'd rather not put my intestinal health in the hands of a stranger. When we travel by car, we usually have a cooler in the trunk, as well as a toaster oven and george foreman grill--all for use in a hotel room. Our oven literally melted and nearly exploded a couple weeks ago, so while we wait for the company to give a replacement for the faulty oven, we got a hotplate...two burners.... . With those three things...and perhaps a mini fridge in the hotel room, you can eat nearly everything you'd have at home....even w/o a hotplate, you can have meat, potatoes, Ore Ida french fries, and even heat up any leftovers you may have brought in tin foil....

Well, it depends on whose opinion you get, but the general consensus is that there is no way to neutralize the effects of gluten on the body at the present time. Yesterday, someone posted about using a pill or something that claims to neutralize gluten. You take it at each meal like a pill for lactose intolerance. I would very highly discourage that you take such a pill, but can view the discussion here: Open Original Shared Link

Of course, there's research being done, most notably at Stanford....here are a few articles I found while searching this site:

Future enzyme treatment for celiacs -- Nov. 28, 2004

Stanford team discovers cause of celiac and starts searching for cure -- September 30, 2002

Australian researches start working on vaccine for celiac -- October 29, 2002

Discovery may lead to first medical treatment of celiac -- February 26, 2003

Gene Therapy for celiac disease -- May 29, 2003

Oxford research may lead to cure for celiac disease -- June 25, 2001

Those are a few...if you want to zero in on any issue or specific research attempt, just make a search of your own.

There was a little talk recently of cures/pills, etc. in this post:Open Original Shared Link

-celiac3270

Glutenzyme (Cereal Digesting Enzyme Complex)

Ingredients typically per vegetable capsule

Gluten Protease  100mg

Cellulase 25mg

Amylase 10mg

Lactobacillus acidophilus  10mg

Non-active ingredients:

Vegetable Magnesium Stearate Capsule

Cellulose & Water

Background

Many people rely on cereals as part of their diet and avoidance is often difficult, particularly when eating out.

Glutenzyme Plus, the firs digestive enzyme designed to break down the gluten proteins in cereals and grains, may be useful when they cannot be avoided, allowing cereals and grains to be included as part of a healthy diet.

Glutenzyme Plus - To help make wheat, wheat products and other cereals more tolerable.

Benefits & Features

Gluten protease hydrolyses proteins - specifically gluten as found in whieat, barley, rye and oats

Amylase is required for the complete digestion of carbohydrates

Cellulase helps digest fibre and cellulose in food, therby assisting the release of nutrients

Acid stable agianist stomach pH

Provides Lactobacillus acidophilus to aid normal digestion and hekp re-establish normal intestinal microflora

Recommended Intake

One capsule taken with meals containing wheat, rye, barley and oats or as professionally directed

Contra-indications

Do not use in cases of intestinal ulceration or gastritis. In cases of coeliac disease, other factors must be considered and avoidance of cereals contining gluten may be best for the individual.

Ideal combinations (Some of the products below may not be here yet. Please email me if you require their details).

Bio-Acidophilus & HCI & Pepsin

I have not and would not take this product. It sounds as if the manufacturers are claiming to have created the sort of dream drug that many celiacs desire and to my knowledge, has not yet come. Tom's evidence seems pretty strong....I would not be taking that if I were you. The part I put in red and bold doesn't sound too good, either....."other factors must be considered...avoidance of cereals containing gluten may be best...."

I don't really know how to read blood results, nor do I know what this IgA stuff stands for, but if the nurse claims it's simply allergies, what allergies are she referring to? Wheat? I can't offer medical advice on the results, but I'm wondering what allergies she suspects.

Sure...that sounds very possible and actually, quite likely if she's a symptomatic celiac who has been avoiding gluten for a little while. Often, if a celiac has been off of gluten for a long time, reactions to gluten, even traces, are very harsh. Additionally, the symptoms could appear worse than before since you're not used to seeing them. Anyway, her reaction doesn't seem at all unusual.

I haven't had any popcorn since starting the gluten-free diet 10 months and two days ago , but I always had trouble with it before hand--it would get me sick. I don't think it was any gluten, because I could eat a bagel every morning without severe reaction--I think it's just that it's hard to digest.

I think all of you summed it up nicely--Merry Christmas!

I've read that too....I think this is true with all the animals we eat---otherwise, we'd be at risk when we ate any meat, as well, right?

I think this is the problem. When we talk about gluten, we're referring to the protein in wheat, rye, oat, barley, etc. that makes us sick. However, many gluten-free ingredients have "gluten", as well....but their gluten is not one from wheat, rye, etc....perhaps it comes from rice or something....so it's fine. Simply, gluten doesn't refer to the protein in the bad ingredients that destroy our intestines....i applies to every protein--we just refer to the select group of glutens when we ask if something is gluten-free.

Yes....the sugars of certain fruits are hard to digest, as well. Certain fruits to be wary of if you still have symptoms are grapes, watermelons, etc.

Acid could be a problem--do you sometimes eat oranges or pineapples from Dole or as part of a mix? Additionally, the skin of an apple can be hard to digest.

....just a few things i thought of.....I, too, highly doubt that they would call their product gluten-free if they were unsure or hadn't run extensive tests.

gluten-free Glues:

Elmer's (bottle or stick)

Crayola (all types)

Roseart (all types)

Elmer's is gluten-free? I had never called, so I wouldn't know, but I thought i heard somewhere that they weren't....you're probably right, though.....

I took enzymes for about a week, but they made me very nauseaous...I felt worse than before....though the enzymes were gluten-free....I stopped them and haven't tried any since--you might as well try enzymes, though...I think they've helped many. Oh, I took...I think it was: Lipram CR-10....or something like it.

Fascinating...thanks for posting. Really, it seems, nobody should eat wheat--it's cheap, though, and people think, for example, if they're eating whole wheat bread, that they're doing their body a favor...hmm.

I think celiac3270 has a valid point (who, I believe, is also a teenager?)

Yep.....I'm turning fourteen in January.

Like I said before, it would probably help your daughter to accept it if everyone around her accepted it, too. In terms of convincing disbelieving relatives, I would suggest, if you haven't already, printing a few serious, but comprehendable articles about celiac and the risk factors. After all, they might care more if they knew that your daughter is at risk for cancers, ulcers, etc. if she doesn't start a strictly gluten-free diet. Additionally, if you have some sort of letter or paper or something in which the doctor officially diagnoses your daughter, it would be good to include a copy of this so that they can better accept that your daughter has celiac. There are many articles on the site here about celiac, risk factors, symptoms, etc. that might help. Oh, you can also print posts on the board, too, if you find one that's particularly helpful--

I'm not really sure what should be done to convince your daughter--this isn't really a matter of convincing, I guess....she probably knows that she has it, but doesn't want to.....admit it and face the consequences.

To offer a teenager's perspective--the diet eliminates all spontaneity, the limited selection of food can get really boring, and usually the things that you want the most are the worst things you can eat (bagels, pizza, etc.). It's very inconvenient to read labels and then, usually, to need to call companies. Finally, I find that I get self-conscious when asked about celiac and I feel alienated, strange, and different if I'm eating something that looks and tastes different that I brought and everyone else is eating the food that I can't eat and crave. Additionally, while other adults would often try to be sensitive to another about food, kids/teens can be cruel and might make fun of a gluten-free food or the health issue in general--though I'm fortunate enough to be among a fairly nice group of kids at school, I had a different experience at camp.

That's all for now...keep us posted

-celiac3270

That is interesting.....and another opportunity for greater recognition of celiac.

Oh, Tiffany, with the Quaker rice cakes I THINK that all of the large ones are gluten-free....and the minis are problematic.....I haven't had them in months, though, so i can't remember the full list

What "flavor" of rice cakes do you use?--i don't know if there's a plain, cause i've always had a flavored rice cake.

Thanks

Sure.....oats are nearly always contaminated. Additionally, you can feel the effects of gluten minutes or days after eating it.

I think Kristina (mysuicidalturtle) is absolutely right. You have no other choice. Basically, if they care about your daughter and if they want to have extended visits, they have to accomodate or at least, let you send food and not offer gluten.

I think the bigger problem, though, is that your daughter is in denial about it, herself. Ultimately, it doesn't matter how accomodating or unaccomodating people are if she's not going to take responsibility herself about the diet. Also, I'm not so sure that she doesn't believe that it's celiac--this would be more likely if she had no symptoms. She is probably unaccepting of the strict dietary changes that need to be made. I think that's the first and most important problem you need to deal with. If she accepts celiac, I think it'll be easier for others to.

Wafer--there's the gluten....though I'm surprised that the gluten doesn't show up on the label--that it doesn't say "wheat" somewhere in there"....

There are many gluten-free ice creams. Most of Haagen-Dazs is gluten-free, as with Edys, I believe. I have a list from Haagen-Dazs that I posted a couple months ago, I guess. I haven't bothered to investigate other brands as I am satisfied with Haagen-Dazs.