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lovegrov

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Latest Celiac Disease News & Research:

Everything posted by lovegrov

  1. lovegrov
    If you're looking for a source that will tell you whether every product in a given store is gluten-free or not, then, yes, you're hoping for too much. It doesn't exist. And I wouldn't put too much hope in the nutritionist unless he or she is an expert in celiac. Most people have gotten more help from the Internet. Start slow and simple. Eat fresh fruit...
  2. lovegrov
    I missed the sushi part. Sushi is very edible for us (unless you have some other intolerance) but you can't have the imitation crab, the marinated eel, or the soy sauce (I bring my own). Someone somewhere also saw wheat in an orange fish roe once. But if you stick with vegetable rolls or straight raw fish (and make sure the guy works on a cleaned surface...
  3. lovegrov

    ARCHIVED Indigestion

    lovegrov replied to LynnR's topic in Related Issues & Disorders

    You've been gluten-free for just three weeks, which isn't enough time to heal hardly at all. Some people notice an immediate difference while others take months and months. In my case, I was able to eat again right away (and I never really had the diarrhea problem) but it was 10 weeks before I could return to work and several months before I could resume...
  4. lovegrov
    I don't know of any gluten in ISP. Are you certain the flax cereal was gluten-free -- no barley or oats in it? Some people even have trouble with flax, although not because of gluten. richard
  5. lovegrov
    NO gluten-free bread I've ever tried stays fresh for long. That's because they don't have preservatives. Homemade non-gluten-free bread doesn't stay fresh long, either. The type of breadmaker won't make a difference. richard
  6. lovegrov

    ARCHIVED Confused

    lovegrov replied to gockleyt6's topic in Coping with Celiac Disease

    I had DH for more than 20 years before I suddenly got extremely ill (at age 46) -- I mean I was dying of malnutrition. 11 days in the hospital and 10 weeks off work, and they weren't really sure I would make it at first. I took 25 mg of dpasone maybe three times a week (when really cold just once a week) and that controlled it except when it was reallly hot...
  7. lovegrov
    With celiac a weak positive is still a positive. It means you need to be completely gluten-free. While it's certainly possible you're reacting more this time because of the recent virus, it also sounds like you were over it if you did fine during the holidays. The other possibility is that you're now getting more and more sensitive to gluten, which happens...
  8. lovegrov
    I haven't had them myself but I know a number of people who like the Glutino bagels. Several have had both Glutino and Kinnikinnick and like Glutino better. The Kinnikinnick ones aren't too bad for a gluten-free bread item, though. richard
  9. lovegrov
    I agree with calling the caterer. Ask your friends for the number so you can ask all the questions you need to and so you don't add anything else to the chores they need to do. If you don't want to do this or can't find anything to eat, relax. They'll be so busy the last thing they'll be doing is keeping track of whether you're eating. richard
  10. lovegrov

    ARCHIVED Disability

    lovegrov replied to LynnR's topic in Related Issues & Disorders

    It's pretty hard if not impossible to get permanent disability for celiac alone because the diet returns most people to normal (although not overnight). However, I was out of work for 10 weeks solely because of celiac, and after I used up my sick leave my short-term disability policy kicked in. This is a policy I already had through work, not a government...
  11. lovegrov
    I've never understood the warnings about baking powder and soda and no one has ever explained to me how there might be gluten. The list at celiac.com says they're safe but then says to check them. I've never in three eyarsa fo8nd a commercial baking soda or powder with gluten. All of the main brands are definitely gluten-free. Perhaps the original warning...
  12. lovegrov
    Never diagnosed with FMS, but lots of joint and muscle pain. It went away pretty much completely with the gluten-free diet, but it took many, many months. I would guess I took Advil for nearly a year. richard
  13. lovegrov
    Not to sound discouraging, but I remembered nothing at all about my colonscopy and had no residual pain at all. My doctor said my experience was the norm, and most people I've heard talk about this said the same. richard
  14. lovegrov
    If the turkey was stuffed when it was cooked all bets are off. It's contaminated and will make you sick. richard
  15. lovegrov
    Absolutely. In the U.S. since last January Corn Pops has had wheat. It's plainly listed. richard
  16. lovegrov
    Annatto apparently does cause problems for some people, but it definitely does NOT contain gluten. richard
  17. lovegrov
    I'll keep posting this because I know that not everybody can read all the posts. And people will be getting turkeys for Christmas. The USDA REQUIRES that manufacturers plainly and clearly list anything that adds nutritional value to raw meat. This includes wheat, rye and barley (I didn't ask about oats but oats would not be added to meat anyway). This...
  18. lovegrov
    Hey, along with celiac I had a slight hiatal hernia, diverticulosis, AND a double ingunal (sp?) hernia. Has surgery for that last one 8 months after the celiac diagnosis. Ouch. richard
  19. lovegrov
    As Tiffany said, the Butterball turkey is perfectly gluten-free. The gravy pouch is double sealed and the modified food starch is from corn. Butterball also just confirmed to me that their turkeys are gluten-free. Natural turkeys might taste better, but don't waste the Butterball. richard
  20. lovegrov
    BUTTERBALL IS gluten-free!!!! If you saw wheat in the ingredients look again, it's in the gravy packet, not the turkey. Butterball just recently confirmed that all their turkeys are gluten-free except the stuffed ones. richard
  21. lovegrov
    I wouldn't eat turkey if I didn't like it, either, but there's really no reason to be confused about it. Bascially, as long as it isn't stuffed and it doesn't have gravy made with flour, it's going to be gluten-free. And you can tell that simply by reading the ingredients. richard
  22. lovegrov
    Tiffany explained CSA and the labeling law well. Right as Congress was passing it the guy who is now the CSA president was on the St. John's list trying to shoot it down. He also made some pretty bizarre statements at the NIH consensus conference (although I don't remember exactly what they were). richard
  23. lovegrov
    On top of all that I'd advise you not to eat anything at all at Subway. Too much cross contamination. richard
  24. lovegrov
    McCormick's cocktail sauce is also gluten-free. A lot of places do use Zatarains, and, as I said, it's gluten-free. richard
  25. lovegrov
    Fatigue is THE most common symptom of celiac. You hear a lot about diarrhea but fatigue is actually more common. Have you been tested for anemia? This could be the cause and celiac could be the cause of the anemia. Mental fogginess and an inability to concentrate are other common symptoms. richard
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