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lovegrov

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Latest Celiac Disease News & Research:

Everything posted by lovegrov

  1. lovegrov
    Iga is one of the more specific tests for celiac and false positives are almost unknown. As a result, testing positive on the Iga along with symptoms means there's a pretty high percentage chance you have celiac disease or are in the stages headed toward celiac disease. Biopsies are not infallible for a few reasons. You might be at a stage where there...
  2. lovegrov
    Find their dining number and call. And just do a simple search of the Internet. You'll find tons of stuff. Dinseyworld and Disneyland are among the easiest places to eat gluten-free. richard
  3. lovegrov
    Millet itself is OK but stay far away from Deland millet bread (which I think is made and sold in Florida). It's been tested more than once and has had tons of wheat. richard
  4. lovegrov
    If you're talking about maltodextrin, it's gluten-free in the U.S. richard
  5. lovegrov
    Here's my understanding (somebody correct me if I'm wrong): All oils, hydrolized or otherwise, are gluten-free. Even "vegetable" oil. Hydrolized vegetable protein is on our suspect list because it could POSSIBLY be made from wheat. However, if it's a specific hydrolized protein, such as soy, corn, etc, it's OK unless it's hydrolized wheat protein. It...
  6. lovegrov
    It's the same with people who DON'T have celiac or gluten intolerance. Some of those folks have multiple food problems and some folks have none. richard
  7. lovegrov

    ARCHIVED Medication?

    lovegrov replied to FreyaUSA's topic in Dermatitis Herpetiformis

    How often you have to take dapsone and how much depends on the individual. I took mine only every third day or so even when I was eating gluten every day. The tiny red dots don't sound like DH, though, at least not the way I had it. You sure he's not also having an allergic reaction? If your son took the dapsone only when he starts an outbreak, he'd still...
  8. lovegrov
    Microwave popcorn -- Over three years I've checked pretty much every major brand microwave popcorn and every single one except one super butter flavor of one brand (I don't remember the brand) has been gluten-free. Pop Secret, Act II, Kroger, Paul Newman -- all gluten-free. Microwave popcorn is in fact almost universally free of gluten (except corn gluten...
  9. lovegrov
    The UK has an official gluten level of 200 ppm. If your product is below that, it's considered gluten-free there. That level still makes some people obviously ill, but they are considered the exceptions (and in fact they probably are the exception. My guess, although I haven't tried it out, is that I could eat more than that with no obvious reactions). The...
  10. lovegrov
    This isn't the absolute answer for you, but stay away from those gluten-free substitutes. Forget about gluten-free bread, pasta etc. Way, way too many calories and no nutrients. And keep a close eye on those portions. I discovered I was eating like a hog. For instance, four ounces of beef is considered one serving. I usually ate at least 8 to 12 ounces. ...
  11. lovegrov
    The celiac chat room at delphi is rarely in use. I THINK there is a regular time when some people get on but you'd have to ask there. richard
  12. lovegrov

    ARCHIVED Rash Is Gone

    lovegrov replied to bratcat's topic in Dermatitis Herpetiformis

    Iodine can also cause flareups until you've completely healed. richard
  13. lovegrov
    Note that the page you sent (which didn't come up for me) is a U.K. page, so it would not apply to the U.S. If I sounded a little irritated it's only because I think fourms like this need to provide accurate information. Saying something is gluten-free when it isn't can make people sick, and saying something isn't when it is only makes our lives that much...
  14. lovegrov
    I'll concur with Tiffany that I have never ever found a tea bag with wheat-based glue. I no longer worry about this issue. Many, many teas other than Bigelow are safe. All Lipton teas, for instance. In fact, I've found only a handful of teas that contain barley (some Celestial Seasonings), and in all or almost all cases the barley is clearly listed. ...
  15. lovegrov

    ARCHIVED Rash Is Gone

    lovegrov replied to bratcat's topic in Dermatitis Herpetiformis

    Were you actually diagnosed with DH? If a doctor actually diagnosed you with DH, then you almost without question have it. And if you have DH, then, according to all experts and the NIH, you most definitely have or will have celiac disease. You MUST remain gluten-free. DH is strange (just like celiac disease). Some people break out like crazy with just...
  16. lovegrov
    I'm sorry, but you are just flat-out wrong about those cereals containing malt flavoring in the U.S. I have in my hands a box each of Fruity Pebbles and Cocoa Pebbles bought just a couple of weeks ago. Neither has malt flavoring listed anywhere on the box. I've had celiac disease for more than three years and both these cereals have always been gluten-free...
  17. lovegrov
    McCormick taco seasoning and LaChoy soy sauce or San J tamari (make sure you get the gluten-free one; they also make some with wheat). Don't used instant mashed potatoes so can't tell you on that. richard
  18. lovegrov
    The way you describe it, it doesn't sound like DH to me. My DH looked like blisters filled with clear fluid. And they itched so bad I'd scratch them til they bled. richard
  19. lovegrov
    Hard to say as I've always understood that celiac tests at this age are not nearly as accurate. Normally, the next step would be a small bowel biopsy by endoscopy. Not sure with a child who is just 1 though. richard
  20. lovegrov
    This soup disappeared from my local Kroger so I wrote the regional Kroger dietician (I have an advantage here because she's also the wife of my daughter's former high school cross country and track coach). It took a while but she finally told me that this product is no longer available. She didn't go into detail but I can only assume Kroger decided as a chain...
  21. lovegrov

    ARCHIVED Survey

    lovegrov replied to flagbabyds's topic in Related Issues & Disorders

    1. Yes 2. No 3. Male richard
  22. lovegrov
    Folks before you make a statement like "to my knowledge" something does or doesn't have something in it, please make sure. Spreading bad information does not help anybody. Fruity and Cocoa Pebbles do NOT have malt flavoring (this is for the U.S., I can't say about anywhere else). I just looked at the ingredients on both to make sure. The company has confirmed...
  23. lovegrov
    No problem, tom. If you really want the answer on this, there are several things you can do. 1. Even if the artichokes are from Spain, they might distributed by an American company or the Spanish company might have a web site. 2. Contact the Vinegar Institute and ask them about "vinegar." If there is a U.S. regulation about this, foreign companies still...
  24. lovegrov
    I'm not trying to tell you to eat the artichokes or even to claim they are gluten-free. And it really doesn't matter in the least whether Spain listens to the Vinegar Institute. The passage I quoted simply shows the ways vinegar is made. I VERY seriously doubt that Spain has magically come up with a different way of doing it. richard
  25. lovegrov
    Not only is refractory sprue unlikely in anybody, it's even more unlikely in somebody this young. This is probably not the problem. richard
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