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rinne

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Everything posted by rinne

  1. rinne
    You can buy vanilla beans and add them to a bottle of potato vodka, strong enough it makes homemade vanilla. If you use vanilla from a bottle make sure it is gluten free. You are right, you will get there. Stress is often a trigger, I suspect the flu shot and antibiotics may have tipped you into illness as both are stressors. Our...
  2. rinne
    Interesting, thanks for posting this. I have also read that fluoride displaces iodine in our bodies tipping us toward iodine deficiency and iodine deficiency is one factor that contributes to fibroid tumors!
  3. rinne
    Hi and welcome. Stress can trigger it, was the move an easy one? I am wondering if there is something new in your environment you may be exposed to that is causing the rash. Work or school environment? Diet may be used as a diagnostic tool, have you tried a gluten free diet?
  4. rinne
    Hi. I too was clumsy, walking into walls, etc. and Vitamin B12 shots and the methycobalamin really helped.
  5. rinne
    Hi and welcome. That is a long time not to see any improvement. I can relate. Have you ever considered the Specific Carbohydrate Diet?
  6. rinne
    Hi and welcome. Congratulations on taking your health into your own hands. I have found this site enormously helpful too. A vitamin and mineral panel check at minimum is very helpful, it is quite possible your B12 and D are low and that can be dealt with simply, if not dealt with it may lead to other problems. And I am not a doctor. ...
  7. rinne
    Hi and welcome. The easiest thing, of course, is to simply go gluten free completely, is that possible? If not then you will need separate wooden utensils, plastic storage containers, etc. I know someone will be along who can help you more than I, there is just my husband and myself and we have a gluten free household. I am thinking that...
  8. rinne
    I hope you had a good cry, sometimes it is really the best thing. Do you know that it really does help? It is like an inside shower. Sometimes I even rent really sad movies when I know I just need a good cry.
  9. rinne

    ARCHIVED The Gluten Doctors

    rinne replied to lbd's topic in Publications & Publicity

    Well said, thank you for that. I too am of the "poison school". I passed on the endoscopy, it was scheduled for five months after the doctor asked me if I had heard of Celiac . I found out that day that my sister had been diagnosed with it, I quit eating gluten and there was no way I was ever going to eat it again so I could damage myself so they...
  10. rinne
    Sigh is right. I think you may have your answer when you say she works for a major hospital, her training would have been completely conventional BUT given that she is at least willing to talk about hypoglycemia she may be willing to be an ally and you may be able to educate her. I say that only if you need her ongoing support and if you have the energy...
  11. rinne
    Getting well may involve peeling layers of illness away, so peel away! If at some point you begin to think that "that little piece of bread" might be lots more powerful than you can imagine then you know this site is here to help and support you with that. I don't know of any mercury sites but perhaps others do. As to the onset after your...
  12. rinne
    Hi. A regular doctor can check your vitamin levels. For me, once I stopped eating gluten there was no way I was even going to eat it again, not for any test but each person has to decide for themselves what, if any, testing they will pursue. I have a sister and brother both diagnosed with Celiac so it made the official diagnosis kind of unimportant...
  13. rinne

    ARCHIVED What Is Wrong?

    rinne replied to minton's topic in Related Issues & Disorders

    Could anything have changed in your workplace? Soap dispenser?
  14. rinne
    Hi and welcome. I'm thinking that the withdrawal shouldn't last that much longer and if you can stick with it it really will help with figuring things out with your sons. Sorry, maybe not what you wanted to hear. I haven't had gluten for nearly three years now and don't miss it a bit so I might not be the most sympathetic ear.
  15. rinne
    Welcome. What a wonderful post, made me cry. I am so happy for you.
  16. rinne
    Welcome. Some of your symptoms are not unlike mine were and I have celiac, candida and lyme issues but that doesn't mean that you have celiac or candida or lyme. I am not a doctor, just someone who has been mildly ill for a lifetime and seriously ill for nearly six years. I've spent a lot of time figuring it out and seen a variety of health care...
  17. rinne

    ARCHIVED What Is Wrong?

    rinne replied to minton's topic in Related Issues & Disorders

    Sorry you are feeling so badly. I know when my B12 levels were low I was dizzy. I was clumsy too and fell a number of times but since I remedied that, with B12 shots and methylcobalmin, I have been better. Where are your B12 levels at?
  18. rinne
    Dylan, Mr.Moore, we care. Please listen to what so many of us are saying, we are not you but we know what it is like to feel isolated and ill and we know there is a way through it to a life that is good to live. You can find your way too.
  19. rinne
    Sounds normal to me. Many years ago, long before anyone ever talked about Celiac, I knew that wheat was kind of a problem for me and one of the ways I knew that was that if I wanted a nap I would make myself toast, guaranteed sleep. I think I know that kind of sleepiness even, it kind of just pulls you under.
  20. rinne
    I believe you. I suspect many of us believe you, many of us have also felt so bad that we wanted to die. We found out that gluten is a poison for us. I missed where you said that you had gone wheat free for 2 weeks and gluten free for 1 week but honestly that is probably not enough time to see a difference and I question how strict you were able...
  21. rinne

    ARCHIVED The Gluten Doctors

    rinne replied to lbd's topic in Publications & Publicity

    Thanks for your point of view Lisa. I think sometimes I forget I don't own the Celiac experience. I know that many do have positive experiences and are reassured by the testing procedures offered. I'm not one of them obviously. I didn't see the quote you referred to but think we are better off to try to build bridges. Whatever can be done...
  22. rinne

    ARCHIVED The Gluten Doctors

    rinne replied to lbd's topic in Publications & Publicity

    I very much agree that the endoscopy, "the gold standard", is unreliable if for no other reason than damage must be present for a diagnosis to be made. My understanding is that the Marsh Scale, which is what they use to read the endoscopy, identifies the damage once it reaches the third degree on a scale that goes to four! At four the damage may be so great...
  23. rinne
    I don't know but my blood pressure was always normal until I got sick, it dropped then and I haven't had it checked recently.
  24. rinne
    I read this as a very low score, it seems your doctor was doing as mine was and assuming that the "normal" range is healthy. Do you have any dizziness, or the feeling of walking drunk, or strange tingling?
  25. rinne
    Almond Bread Preheat oven to 325 degrees, prepare a 9 x 13 pan with parchment paper Dry Ingredients 3 1/3 cups almond flour 1 1/4 tsp. baking soda 1/2 tsp. salt 3/4 cup grated mild cheddar Wet Ingredients 5 eggs 2 cups grams dccc, dry curd cottage cheese 1 cup yogurt Place all dry ingredients in a food processor, combine briefly, mix wet...
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