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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders9Joint swelling when ill even on gluten-free diet
Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well. I also... -
- knitty kitty replied to Moodiefoodie's topic in Related Issues & Disorders9Joint swelling when ill even on gluten-free diet
@Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm... -
- knitty kitty replied to Shireen32's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Still testing positive after being gluten free for one year ?!!
@Shireen32, Take some deep breaths. Your labs are fine! Your tTg IgA is so low! Well done! Your endomysial IgA is fine. There's not a level on the endomysial test. It's just "yes or no" for if you have celiac disease. No, it's too early to call it refractory. What are you eating? Please tell us more than meat and veg. Do you... -
- Spacepanther replied to Moodiefoodie's topic in Related Issues & Disorders9Joint swelling when ill even on gluten-free diet
thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas. Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some... -
- Scott Adams replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Finding out I’m coeliac whilst pregnant
Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/
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Posts
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By Moodiefoodie · Posted
Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well. I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often). I don’t usually have stomach symptoms immediately after eating gluten that I notice. The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet. The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress. -
By knitty kitty · Posted
@Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome. -
By knitty kitty · Posted
@Shireen32, Take some deep breaths. Your labs are fine! Your tTg IgA is so low! Well done! Your endomysial IgA is fine. There's not a level on the endomysial test. It's just "yes or no" for if you have celiac disease. No, it's too early to call it refractory. What are you eating? Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods? Are you taking any prescription medications, herbal supplements, vitamins and minerals? -
By Spacepanther · Posted
thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas. Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some issues despite having normal celiac antibody levels. What have you considered? -
By Scott Adams · Posted
Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/
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