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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- cristiana replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Finding out I’m coeliac whilst pregnant
@Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy. That went to term, in fact, I was 10 days over and had to be induced. But my second baby, born 21 months later, arrived at 33 weeks. He's now doing well, and taller than all... -
- Shireen32 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Still testing positive after being gluten free for one year ?!!
Hi , since being gluten free I am still having bad stomach problems . Such as constant gas in my stomach 24/7 ,burning, constant bubbling noises coming from my stomach and gurgling sounds that never stop .Pain under the left side of my rib cage when ever I eat and just always there’s pain there . My symptoms have not improved at all since being gluten f... -
- knitty kitty replied to Moodiefoodie's topic in Related Issues & Disorders6Joint swelling when ill even on gluten-free diet
Vitamin D deficiency. Not enough Omega Threes. Another autoimmune disease like arthritis, maybe. -
- Eldene replied to Eldene's topic in Food Intolerance & Leaky Gut3Oats gluten free?
Any Naturopaths on this site? -
- Katiec123 replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Finding out I’m coeliac whilst pregnant
@RMJ it makes sense as it’s something I’ve experienced more than once. Currently 24 weeks and baby is doing well! Will be seeking more medical advice today
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Posts
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@Katiec123 Welcome to the forum. I started to have symptoms related to coeliac disease (mouth ulcers, aura migraines etc) but no gastric symptoms during my first pregnancy. That went to term, in fact, I was 10 days over and had to be induced. But my second baby, born 21 months later, arrived at 33 weeks. He's now doing well, and taller than all of us - it was just an earlier than expected arrival! I think if you can, you should ask for an urgent referral to the gastroenterologist from your GP. See if that works. By the way you spell 'coeliac' I'm guessing you are posting from the UK? If that is the case, the NHS may rush things along for you, I suspect they will. If it appears that they cannot refer you urgently, if you have the money for a private consultation it might be well worth it, as there is a trend here in the UK (I'm British) to diagnose coeliacs without the need for an endoscopy if the blood test results are compelling. Sounds like this is the case for you. If you can see a consultant gastroenterologist privately s/he might be able to diagnose you without going any further. Once you get a formal diagnosis, there is a lot of support for coeliacs through the NHS, with nutritionist support, annual reviews and blood tests to check for diet compliance and health related issues, DEXA scans to check bone density, extra vaccinations where indicated and in some areas, certain gluten free food available on prescription. I hope all goes well with your appointment, let us know how you get on.
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Hi , since being gluten free I am still having bad stomach problems . Such as constant gas in my stomach 24/7 ,burning, constant bubbling noises coming from my stomach and gurgling sounds that never stop .Pain under the left side of my rib cage when ever I eat and just always there’s pain there . My symptoms have not improved at all since being gluten free. Could this be refractory coeliac disease ?? How is that even diagnosed or confirmed ? I had tests recently and this is what they say :Endomysial abs (IgA) -Positive TTG abs (IgA)U/ml : My result is : 0.9 U/ml The Range:0 - 10 U/ml What does this mean pls ??? How can I still test positive for Endomysial abs when I am gluten free and am very careful about cross contamination? Do I even have coeliac disease I’m convinced some other digestive disorder is causing these symptoms . I also have not had a endoscopy and now the gastroenterologist calls me after one year ( I’m from the uk and have free healthcare which has been such a nightmare with all this and never help me ) so as I am gluten free the gastroenterologist advised me to start eating gluten again to be referred for a biopsy .. Is a biopsy even worth me doing ? The only proof I have is when I was eating gluten I could never get my ferretin , vitamin d and folate levels up . And since being gluten free these have gone up a little bit . But that doesn’t always mean coeliac as I know gluten stops absorption in even normal people . Pls can anyone shed some light it’s much needed ! And share some advice or answer my questions above . I have no idea with this whole coeliac stuff and am very much struggling .Much Appreciated .
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By knitty kitty · Posted
Vitamin D deficiency. Not enough Omega Threes. Another autoimmune disease like arthritis, maybe. -
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@RMJ it makes sense as it’s something I’ve experienced more than once. Currently 24 weeks and baby is doing well! Will be seeking more medical advice today
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