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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About rehh05

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  1. Believe me, no preschool teacher wants to deal with D if it can be avoided by something as simple as providing gluten free alternatives... You may need to send in gluten-free bread and crackers for your child,  and possibly play dough, but if you are not able to get a 504plan, try working with the school's administration, teachers, assistants, and nurses to educate them and give them solutions. If you send in alternatives and ask staff to make sure your child washes hands frequently and meal tables are wiped down well that should do it... As long as your child doesn't try someone else's snack or taste something they shouldn't. Sometimes just explaining that you know the problem exists and that a formal diagnosis has not yet been obtained still gets cooperation.  That's the way it works in the preschool where I teach anyway. 
  2. For what it's worth I tested negative on the ttg blood test as I had been gluten free for a long time prior to being tested for celiac. I had the genetic marker test to rule out celiac but those were positive, so we did the biopsy. The biopsy was positive even though I had been gluten free. I am now extremely carefully gluten free and can tell I am healing and am also very sensitive when accidentally contaminated by teensy crumbs. I have since discovered that my great grandfather died of celiac. 
  3. I am a teacher in a public school preschool program and I have celiac.  Yes, you can ask for a 504 plan. But make sure that you talk to everyone who has anything to do with  your daughter. The preschool will be vigilant but will not eliminate wheat products from the school.  You will need to politely and pleasantly advocate for her and educate the staff. Finding or creating handout with information on them would be very helpful. Make sure they understand that this is more severe than an allergy in many ways.  Sometimes people think they understand this disease but they don't understand about cross contamination or how tiny bits can still cause problems.  You are going to need to make sure they understand how important it is for her to wash her hands constantly.  And they need to make sure any substitute teachers are informed too.  If it is a half day it is easier as there is just snack and other kids hands to contend with, lunch is harder. But it is a rewarding experience. Help the staff question every substance that might accidentally get in her mouth... Paint, playdoh, glue, everything... And both home and school emphasize keeping hands out of mouth and washing things off of hands.  I have had kids with extreme allergies in class and celiac and we all worked together without a 504 and things were fine. But if you can get a 504 do it. It is something you can refine in preschool and have ready we she goes to kindergarten and may really need it. 
  4. Thank you, Kitty... I had not thought of that difference... I think what I had was stomach flu, but since my reactions are changing now, I was wondering how to tell.
  5. Thank you all! I suspect it was flu, but got to wondering how I would tell....   The only accidental cc episodes I knew about were very minor ones and I got nauseated and then mild pain and D later, but no fever.   Since I have not purposely eaten gluten for such a long time, I am not completely clear how my body would react to a bunch of it :-) I think I would rather be comfy and in the dark than really find out by eating something like bread :-)
  6. How do I tell whether I have come down with stomach flu or am suffering the consequences of accidental gluten exposure?   Last week, one night, I started vomiting in the middle of the night, and kept it up until everything was out (from 1-7 AM).. then had chills , head ache, and body ache... started with D around 10:30AM and had that until evening until everything was probably gone from there, too... took my temp somewhere in there and was running 100.4.  Next morning no nausea, lots of gas, no fever so I went to work.   I didn't knowingly eat any gluten, but it is possible that I was cced ... I do not have a gluten free home as I have non-celiac family with me. I may have been exposed to a stomach bug since I work with children... but the whole thing got me thinking...   How exactly can I tell the difference between being glutened and catching a stomach bug or for that matter food poisoning? I am fairly new to the whole "be aware of how it feels to be glutened to avoid it next time" thing , so I really want to know :-)   My history, if it is important: I have been following a gluten free diet for 5+ years on the advice of a friend who knew I was having tummy troubles. At the time, I was having huge bouts of D with pain and also other stuff. Old doctor had me on lots of IBS meds that helped with the D but made me soooo drowsy. Only in the past year (with a new doctor) have I realized I went for years misdiagnosed. New doctor found and treated Hashimotos and thyroid issues, and then looked at my tummy.  Nov 2012 I had the celiac blood tests over my objections since I knew the results would be skewed due to my already being gluten free. In Dec 2012, after that blood test came back negative (can you say "I told you so?"), I had chromosomal testing and an endoscopy.   Seems I have one of the chromosomal markers AND villous atrophy... so my new GI guy considers me to have Celiac. He sent me to a dietician... I knew more than she did about cross contamination... now my GI guy tells me he wants another endoscopy 6 months after the first and if there is not healing he is sending me to the celiac center in Chicago. In the meantime, he told me to be very vigilant about being gluten free, not to eat out if I can help it, and to be aware of how it feels to be glutened so I can avoid it in the future... and to figure out if there are other foods that bother me so I can avoid them too...( I am currently thinking corn and dairy)... I do know that I feel best on high fiber, low carbs, little to no corn and dairy, and no gluten.
  7. I would take a proven drug in a heart beat... but I would not participate in a drug test.
  8. interesting abstract, thanks! Fortunately, they did not find any evidence of crohn's in the pathology report. it is interesting to me that his first impressions, based on what he saw during the endoscopy and colonoscopy changed dramatically when my pathology report showed villous atrophy. I am glad that that at least now I can say that a doctor has told me I should follow a gluten-free diet... and he does want to make sure I am doing it well and completely... and he does want to see me in a few weeks after I have had time with the dietician... it just frustrated me a little to feel like I was being pushed off onto the dietician and that he really didn't believe that I have been as careful as I think I am being... and maybe he is right... maybe I am being exposed somehow... I do have the damage in there. I just hope we can figure out how to fix it so everything can heal. I worry about not absorbing vitamins and minerals and medicines properly. But I kinda want to smack him in the head with the blood report I just picked up from his office which says in big all cap pletters that the results of the antigen test would be affected by previous non-gluten diet. ah well... next hoop... I will jump... I just want to figure it all out.
  9. got my test results back today. I have the DQ8 marker... so can't rule out celiac... he didn't really say I have celiac disease, but wants me to go see a registered dietician to follow a gluten free diet... I explained again that I have been gluten free for 4 years and have been very scrupulous (as much as I can be) for 2 years... he told me to humor him, to see the dietician and then come see him in a few weeks. He said if the dietician agrees that I am doing what I need to do, that is great, but I don't think he realizes that I have been sooooo careful. I feel as though my problems have just been handed off to someone else. ah well... at least I am now officially supposed to be gluten free and can tell my family as much
  10. Thanks for the comments I had not previously heard of SIBO... that is a good idea... also, I am reading all I can to learn more so when I go in again I can ask better questions. I knew you folks would help
  11. Hi, I am new here, but thought you all might have some insight. My great grandfather died of Sprue. I have 2 cousins who react to gluten. I have been having problems for years and 4 yrs ago a friend suggested removing gluten from my diet. I felt better, and have become quite vigilant about remaining gluten free and mostly dairy and soy free. I was dxed with Hashimoto's thyroiditis (thyroidectomy), gall bladder quit (and was removed), IBS (was perscribed Librax), GERD (told to take Nexium), migraines (prescribed Zomig), arthritis (told to take ibuprofen), chronic sinus infections (given claritin)... early menopause (was given estrogen)... and have been trying to keep positive.... sooo... last year I changed to a new primary care physician, and he has been working his way through my body systems... sending me to all kinds of specialists. Most recently, I have been to a GI doctor... had a colonoscopy and endoscopy and the blood test that checks for gluten antibodies. I asked the GI doctor if me being gluten free for a few years would affect the blood test... he said "No, almost no one is truly gluten free unless they are working closely with a nutrionist" so, hey, I didn't worry. Test results? Probably not IBS... was told to wean off the Librax... he found very inflamed innards... pathology showed no crohn's diease, not colitis... but DID show partial villous atrophy. Blood test was negative... soooo... he had me have more blood taken to do the test to check for the chromosomal markers for celiac disease. hmmmmm... said not having the marker(s) would rule out celiac. Test results may come back next week... the local hospital was not sure how to run the test, so it was to be sent to Mayo's I think. I am unsure about all this. I DO feel better without gluten and dairy... and have always suspected corn to be an irritant... could the first blood test for the anitbodies have been a false negative? He seemed surprised to find the villous atrophy after the negative blood test. Sigh. Any insight would sure be appreciated! Thanks ever so much!