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Bloating/gas Without Gluten?!?

Lilypad517

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Lilypad517 Rookie
Lilypad517
Posted

Hello. I've been diagnosed with celiac since November 2011. I have led a strict gluten-free diet since then. Lately, I've been experiencing extreme bloating and gas. I am very distended and uncomfortable. I haven't had any gluten, and it doesn't seem to matter what I eat. I have even tried going Paleo for a while off and on and there is no difference. I try to eat healthfully, with fruit, veggies, hummus, yogurt, rice, meats, and nuts making up the majority of my diet.

What else could be causing this? Going dairy free hasn't helped. As well as soy free. Ugh. HELP!

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cyclinglady Grand Master
cyclinglady
Posted

If you don't think you've developed food intolerances/allergies (mine are odd like mushrooms and garlic), then not to alarm you, but have you checked out symptoms for Ovarian Cancer?  Abdominal bloating and gas are the main symptoms.  Chances are you don't have it, but it's best to play it safe.

Brandiwine Contributor
Brandiwine
Posted

Does the bloating come and go? Any other symptoms?

Coeliacblog Newbie
Coeliacblog
Posted

Hi there, I have had the same problem myself. At first I thought it was because of Lactose so I to cut out the diary but the wind and bloating did not go away. I have had all the tests and everything is ok, they think I have IBS due to stress. 

 

Are you stressed? Perhaps it could be IBS. I am currently following a low fat diet, which has really helped. Try Fennel Tea also.

 

At this stage to suggest you might have a cancer without any tests (as the poster above mentions) is a bit much.

 

Get tested though, you never know.

 

 

ndw3363 Contributor
ndw3363
Posted

Same thing happened to me awhile back - after supplementing digestive enzymes and HCl with every protein filled meal (I'm mostly Paleo, so protein is with almost every meal), my symptoms subsided.  Only time I really have trouble now is when I go a little overboard with carbs or with dairy....or if I'm in PMS week - can't figure out how to get rid of the bloat during PMS week, but hey, at least I know what it is right?  Look at the symptoms of low stomach acid and see if they meet what you're going through.  Stuff saved me from a lot of pain and suffering.

dilettantesteph Collaborator
dilettantesteph
Posted

If it is from your food you can try to figure it out with elimination/challenge diets.  Try to keep your diet simple.  Change one thing per week.  It can take that long to notice a difference.  Keep track of your symptoms.  You have the option of eating more to see if your symptoms worsen, or eliminating to see if your symptoms improve.  That is about the only way I have to figure out what I can eat safely.

 

I agree that it is important to go to the doctor to check for other more serious causes.

 

I hope you feel better soon.

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    • trents
      Why now?

      By trents · Posted

      Yes, other health challenges and even severe prolonged emotional distress are thought to be potential triggers for the latent celiac genes. Let me encourage you to get tested for celiac disease as soon as possible so that you can get on with eliminating gluten from your diet, which itself will involve a considerable learning curve in order to become consistent at it. Even pills and meds can contain gluten because wheat starch can be used as a filler. It's important to know if you have celiac disease for two reasons. First, it damages the lining of the small bowel and, over time, wears down those billions of little fingers that make up the lining and produce a huge surface area for absorbing nutrients from the food we eat. The small bowel is essentially the place where all of our nutrition is absorbed. Long term undiagnosed/ignored celiac disease therefore results in nutritional deficiencies even when we are eating well. You don't need that with the other health issues you are dealing with.  Second, many or most people find it difficult to be consistent with the gluten free diet if they don't have a formal diagnosis of celiac disease. It is just too inconvenient and limiting and they begin to rationalize that, "Well, maybe my problems are due to something else." Human nature has a remarkable capacity to rationalize. It can be argued that you can cheat a little bit on the gluten free diet with NCGS because it only creates a little discomfort and distress but not damage. That doesn't work with celiac disease. So, I feel it is important to know which you are dealing with, especially in the case where you have not yet begun the gluten free diet and you are a good candidate for beginning testing. Many people make the mistake of experimenting with the gluten free diet before they get tested for celiac disease and then they have to go back on gluten for weeks or months, the so-called "gluten challenge", in order to achieve valid test results. By the way, autoimmune diseases tend to cluster. When you get one, it is very common to develop others in time. 
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    • heart390
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      THANK YOU Trents!!!  No, I have not been tested - but have several autoimmune diseases ( MS over 50 yrs.) MAJOR GAS  & fatigue are my most severe problems.  Possibility STRESS helped kick it off?  It's a sad additional problem to add to the latter part of my life!
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      Welcome to the celiac.com community @heart390! Genes connected with the development of celiac disease remain latent until triggered or activated by some biological stressor. The stressor can be many things and our knowledge in this area is incomplete. Suspects include viral infections, antibiotics, pesticides, preservatives and other harmful chemicals in the environment. The onset of celiac disease can happen at any stage in life. It is a long outdated misconception that gluten intolerance is a childhood phenomenon that you eventually outgrow. You use the term "gluten problems". What do you mean by that? Have you been formally diagnosed with celiac disease (aka, "gluten intolerance")? There is also NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity") for which there is not yet any testing available. It shares many of the same symptoms with celiac disease but is not autoimmune in nature and does not damage the lining of the small bowel. A diagnosis of NCGS depends on first ruling out celiac disease for which we do have tests. If you would seek testing for celiac disease, you must not begin the gluten free diet until all testing is done with or you will have invalidated the testing. There are two stages to the testing. The first stage involves a simple blood draw to check for certain antibodies produced by celiac disease. If the antibody testing is positive, doctors normally order an endoscopy with biopsy of the small bowel lining which checks for damaged caused by the inflammation associated with the autoimmune response. That is the second stage of diagnostic testing.
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