Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This - And Frustrated!


WisconsinKim

Recommended Posts

WisconsinKim Newbie

UGH! I'm new to gluten-free, as I was only diagnosed with celiac last week. But so far the food is frustrating me. I've found that (yeah) there are a lot of gluten-free products on the marketing and the (boo) they are all so different. What is everyone favorite pasta? I have tired corn and while the color is different, I didn't mind the taste and texture. I love rice noodles, but found them a little gummy when I had them last night. PLUS there is the thickening agent. I made something last night that would normally use a roux - I didn't have a gluten-free flour (since that's expensive and I want to make sure I buy one that I will like) so I had to go a different direction and used evaporated milk. Different taste. Not a good different taste. Any advice for the newbie?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I use Trader Joe's gluten-free pastas.  The rice noodles don't contain a thickening agent.  That's just the rice starch breaking down (it does not cook the same as wheat pasta). 

 

To make a simple roux, I use cornstarch that's cheap and readily available (provided you don't have a corn intolerance). 

 

I'd recommend that you stick to whole foods and avoid the old wheat foods that you used to love for a few weeks.  Eventually, you'll "forget" what wheat pasta, bread, etc. used to taste like and you'll like the gluten-free versions better.  Although I hear UdI's frozen muffins are to "die for", I bake my own cupcakes/cookies which are much better than processed/packaged cookies.  Betty Crocker gluten-free mixes can be found in even regular grocery stores now.   They freeze well and I always keep a store of baked gluten-free goodies. 

 

Oh, and toast that frozen gluten-free bread......

 

Hope this helps.

WisconsinKim Newbie

Thanks, Cyclinglady,

 

We do have a Trader Joe's close, I'll try that. I have rice noodles when I go to noodles or at restaurants and I love them. But at home were gluey. Guess I need to relax and get used to this. This sight and all the support is such a blessing. 

mommy2krj Explorer

We haven't tried the corn noodles yet and I probably won't. The rice noodles are working for us and made my son so very, very happy. I found I do have to put the timer on for the noodles as they take longer to cook but are definitely gummy if over cooked!

We're in WI too....but no Trader Joe's by us....kinda jealous! :)

 

Bob's Red Mill All Purpose flour isn't too horribly bad price wise. I used it to make a roux the other day and it thickens well. Actually it thickens better than regular wheat flour did! And more quickly. I found a 2lb bag @ Festival Foods on sale for $5.98.

It's definitely a learning process. I plan on trying my hand at baked goods soon but we're currently just eating whole/real food and trying to stay away from the baked goods for a little while. We do go to our local farmer's market every week and get a gluten free chocolate chip cookie, it fills a need for a cookie and chocolate and my little guy feels special that there is something there that is made just for someone like him.

Anyway...good luck! It's mind boggling at first but it does get better. :) We're pretty new to this too...and the initial OMG what do we eat?!!?! Panic has gone away.

1desperateladysaved Proficient

I made a yummy white sauce by using 1 can of coconut milk and about 2 Tbsp almond flour.  I also added between 1/3 tsp salt. It thickened and I added this to wild rice and chicken and it was excellent. 

bartfull Rising Star

Corn starch is a good thickener. Mom always used it for gravies and stuff.

notme Experienced

i bought a bunch of different flours (white rice, brown rice, sorghum, almond, etc) and some tapioca starch & potato starch and some xanthan gum and i mix my own depending on what i'm making - tried bob's at first but the blend is to 'beany' for me.  they make gluten-free bisquick but it costs a mint  :o  if i am making a roux, i use unsalted butter and some white rice flour and a little cornstarch.  if i am thickening a sauce, i mix some cornstarch with cold water and thicken ahoy!

 

we like the tinkyada pasta as 'italian' pasta sub - good for mac & cheese and they will hold up in cold salads but don't last that long as leftover pasta salad.   i use udi's and rudi's and scharr!  (oh, my!) for sandwich bread (and lolz, it's true, i can't eat anything without toasting it - the rudi's is an improved recipe and is softer and fluffier - so i toast it anyway  :lol: )  we use bragg's amino for a sub for soy sauce.  

 

it takes some getting used to, but you will do fine :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Welcome to the Club Kim!

 

We also use Corn Starch mixed with water to thicken sauces....as time goes on you'll learn the easiest ways to replicate everything that used to have gluten in it.  For now...do keep it simple - whole, non-processed foods are the best for a healing gut and are the least frustrating to prepare.

 

Rice pasta is great when done right -- corn pasta is a bit more forgiving -- with each we rinse with hot tap water while in the colandar -- makes a bit less sticky and add a bit of olive oil to the pot when boiling.  We find corn pasta usually needs a min or two more than directions and the rice sometimes needs a minute less -- also try different shapes of pasta...spaghetti noodles were the hardest to cook perfectly (rice) for us in the beginning.

 

In the beginning we used every flipping gluten-free flour out there which made cooking very complicated.  After several months I quit looking for gluten-free recipes and just used all our old favorites or googled regular recipes...most of the time replacing the flour or maybe one other ingredient is all that was needed.  Keep it simple with All Purpose Flour for now.  Corn Starch for thickening and maybe rice flour if you like to bread porkchops or other meats.

 

Hang in there :)

AlwaysLearning Collaborator

When it comes to thickening agents, I've been using potato starch, and though you do have add it in tiny amounts while stirring to avoid clumps, perhaps a bit more so than we used to have to do with wheat flour, you don't have to wait for it to cook at all! So as soon as you have it to the thickness you want, it is ready to serve. It also doesn't seem to impart any of its own flavor, which to me is a good thing. Wheat flour and I never really got along that well and I messed up plenty of attempts at sauces/gravies because of it - so being forced to try something new was actually a good thing for me.

When it comes to pasta, they are all over the map. I personally don't care for the brown rice-only pastas. They seem to have a grittiness to them. That said, I did just buy another to try.

I've tried some quinoa/corn mixes and they have similar problems, but they also aren't great for leftovers, absorbing all of the moisture out of your sauce/dressing and yet still feeling dry when you eat them.

So far, my favorite for taste remains the rice/potato/soy pastas made by bionaturae. I try to avoid soy in general which is why I've been trying the others, but I keep going back to it. Yes, when it is done you end up with a soft pasta and plenty of white goop that has cooked out of it ... but that gets drained off. I do like that brand for allowing the sauce to win out and not have the flavor or the texture of the pasta interfere with my enjoyment of the meal.

And though the flavor of any of these is going to be different than wheat pasta, after a few months you probably won't notice any more. If we hadn't grown up on wheat pasta, it would probably be the pasta that tasted funny.

I've also thrown away quite a few pre-made gluten-free foods after one bite. Some are awful, others are okay, but some are pretty darned tasty. For pre-made baked goods, udi's brand is quite tasty so I'd start there. I've also been satisfied with just about anything that Glutino makes. 

But I think the other tip I might give you is to try to use this as an opportunity to try new foods rather than replace old ones. I think sometimes when they try too hard to duplicate a gluten-based product, not only for flavor, but for shape and coloring, we have too high an expectation for what it is "supposed" to taste like. Trying to get a gluten-free version of an old standby is sure to be a disappointment, especially if it looks right, but tastes wrong. But if there are no connections in the brain to some previous memory and experience, you can just enjoy the flavors for what they are.

The first couple weeks are definitely the toughest and you can expect to accidentally gluten yourself multiple times until you track down sources of accidental glutenings. It does get a ton easier and you're already on the right track if you've found this forum. There is so much information here to help avoid pitfalls and understand problems that I really don't think I'd be successful without it.

WisconsinKim Newbie

Oh you guys are wonderful!!! Can't thank everyone enough for the all the help! I honesly don't know how anyone would deal with this damn disease without all the help!!

 

thank you thank you thank you!!

christianmom247 Explorer

My family likes Ancient Harvest's corn & quinoa spaghetti best, followed by corn pasta.  As for the roux, I've always used cornstarch to thicken sauces and gravies, even before celiac.  Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    2. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Dried Chickpeas

    4. - ainsleydale1700 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,434
    • Most Online (within 30 mins)
      7,748

    LexiBusch
    Newest Member
    LexiBusch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
    • ainsleydale1700
      Hi, could someone help me understand the result of my gene test? DQ2 (DQA1 0501/0505,DQB1 02XX): Negative DQ8 (DQA1 03XX,DQB1 0302): Negative The patient is positive for DQB1*02, one half of the DQ2 heterodimer.  The doctor said I don't have Celiac genes.  I asked him to clarify about my positive DQB1*02, and he said it's a gene unrelated to Celiac.  I have all the symptoms and my bloodwork is positive for antibodies, despite being on a gluten-free diet for the past 4 years.  He also did a biopsy but told me to continue a gluten-free diet and not eat gluten before the biopsy.  Based on the gene test and biopsy (which came back negative) he ruled out Celiac, leaving me very confused.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.