Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This - And Frustrated!


WisconsinKim

Recommended Posts

WisconsinKim Newbie

UGH! I'm new to gluten-free, as I was only diagnosed with celiac last week. But so far the food is frustrating me. I've found that (yeah) there are a lot of gluten-free products on the marketing and the (boo) they are all so different. What is everyone favorite pasta? I have tired corn and while the color is different, I didn't mind the taste and texture. I love rice noodles, but found them a little gummy when I had them last night. PLUS there is the thickening agent. I made something last night that would normally use a roux - I didn't have a gluten-free flour (since that's expensive and I want to make sure I buy one that I will like) so I had to go a different direction and used evaporated milk. Different taste. Not a good different taste. Any advice for the newbie?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I use Trader Joe's gluten-free pastas.  The rice noodles don't contain a thickening agent.  That's just the rice starch breaking down (it does not cook the same as wheat pasta). 

 

To make a simple roux, I use cornstarch that's cheap and readily available (provided you don't have a corn intolerance). 

 

I'd recommend that you stick to whole foods and avoid the old wheat foods that you used to love for a few weeks.  Eventually, you'll "forget" what wheat pasta, bread, etc. used to taste like and you'll like the gluten-free versions better.  Although I hear UdI's frozen muffins are to "die for", I bake my own cupcakes/cookies which are much better than processed/packaged cookies.  Betty Crocker gluten-free mixes can be found in even regular grocery stores now.   They freeze well and I always keep a store of baked gluten-free goodies. 

 

Oh, and toast that frozen gluten-free bread......

 

Hope this helps.

WisconsinKim Newbie

Thanks, Cyclinglady,

 

We do have a Trader Joe's close, I'll try that. I have rice noodles when I go to noodles or at restaurants and I love them. But at home were gluey. Guess I need to relax and get used to this. This sight and all the support is such a blessing. 

mommy2krj Explorer

We haven't tried the corn noodles yet and I probably won't. The rice noodles are working for us and made my son so very, very happy. I found I do have to put the timer on for the noodles as they take longer to cook but are definitely gummy if over cooked!

We're in WI too....but no Trader Joe's by us....kinda jealous! :)

 

Bob's Red Mill All Purpose flour isn't too horribly bad price wise. I used it to make a roux the other day and it thickens well. Actually it thickens better than regular wheat flour did! And more quickly. I found a 2lb bag @ Festival Foods on sale for $5.98.

It's definitely a learning process. I plan on trying my hand at baked goods soon but we're currently just eating whole/real food and trying to stay away from the baked goods for a little while. We do go to our local farmer's market every week and get a gluten free chocolate chip cookie, it fills a need for a cookie and chocolate and my little guy feels special that there is something there that is made just for someone like him.

Anyway...good luck! It's mind boggling at first but it does get better. :) We're pretty new to this too...and the initial OMG what do we eat?!!?! Panic has gone away.

1desperateladysaved Proficient

I made a yummy white sauce by using 1 can of coconut milk and about 2 Tbsp almond flour.  I also added between 1/3 tsp salt. It thickened and I added this to wild rice and chicken and it was excellent. 

bartfull Rising Star

Corn starch is a good thickener. Mom always used it for gravies and stuff.

notme Experienced

i bought a bunch of different flours (white rice, brown rice, sorghum, almond, etc) and some tapioca starch & potato starch and some xanthan gum and i mix my own depending on what i'm making - tried bob's at first but the blend is to 'beany' for me.  they make gluten-free bisquick but it costs a mint  :o  if i am making a roux, i use unsalted butter and some white rice flour and a little cornstarch.  if i am thickening a sauce, i mix some cornstarch with cold water and thicken ahoy!

 

we like the tinkyada pasta as 'italian' pasta sub - good for mac & cheese and they will hold up in cold salads but don't last that long as leftover pasta salad.   i use udi's and rudi's and scharr!  (oh, my!) for sandwich bread (and lolz, it's true, i can't eat anything without toasting it - the rudi's is an improved recipe and is softer and fluffier - so i toast it anyway  :lol: )  we use bragg's amino for a sub for soy sauce.  

 

it takes some getting used to, but you will do fine :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Welcome to the Club Kim!

 

We also use Corn Starch mixed with water to thicken sauces....as time goes on you'll learn the easiest ways to replicate everything that used to have gluten in it.  For now...do keep it simple - whole, non-processed foods are the best for a healing gut and are the least frustrating to prepare.

 

Rice pasta is great when done right -- corn pasta is a bit more forgiving -- with each we rinse with hot tap water while in the colandar -- makes a bit less sticky and add a bit of olive oil to the pot when boiling.  We find corn pasta usually needs a min or two more than directions and the rice sometimes needs a minute less -- also try different shapes of pasta...spaghetti noodles were the hardest to cook perfectly (rice) for us in the beginning.

 

In the beginning we used every flipping gluten-free flour out there which made cooking very complicated.  After several months I quit looking for gluten-free recipes and just used all our old favorites or googled regular recipes...most of the time replacing the flour or maybe one other ingredient is all that was needed.  Keep it simple with All Purpose Flour for now.  Corn Starch for thickening and maybe rice flour if you like to bread porkchops or other meats.

 

Hang in there :)

AlwaysLearning Collaborator

When it comes to thickening agents, I've been using potato starch, and though you do have add it in tiny amounts while stirring to avoid clumps, perhaps a bit more so than we used to have to do with wheat flour, you don't have to wait for it to cook at all! So as soon as you have it to the thickness you want, it is ready to serve. It also doesn't seem to impart any of its own flavor, which to me is a good thing. Wheat flour and I never really got along that well and I messed up plenty of attempts at sauces/gravies because of it - so being forced to try something new was actually a good thing for me.

When it comes to pasta, they are all over the map. I personally don't care for the brown rice-only pastas. They seem to have a grittiness to them. That said, I did just buy another to try.

I've tried some quinoa/corn mixes and they have similar problems, but they also aren't great for leftovers, absorbing all of the moisture out of your sauce/dressing and yet still feeling dry when you eat them.

So far, my favorite for taste remains the rice/potato/soy pastas made by bionaturae. I try to avoid soy in general which is why I've been trying the others, but I keep going back to it. Yes, when it is done you end up with a soft pasta and plenty of white goop that has cooked out of it ... but that gets drained off. I do like that brand for allowing the sauce to win out and not have the flavor or the texture of the pasta interfere with my enjoyment of the meal.

And though the flavor of any of these is going to be different than wheat pasta, after a few months you probably won't notice any more. If we hadn't grown up on wheat pasta, it would probably be the pasta that tasted funny.

I've also thrown away quite a few pre-made gluten-free foods after one bite. Some are awful, others are okay, but some are pretty darned tasty. For pre-made baked goods, udi's brand is quite tasty so I'd start there. I've also been satisfied with just about anything that Glutino makes. 

But I think the other tip I might give you is to try to use this as an opportunity to try new foods rather than replace old ones. I think sometimes when they try too hard to duplicate a gluten-based product, not only for flavor, but for shape and coloring, we have too high an expectation for what it is "supposed" to taste like. Trying to get a gluten-free version of an old standby is sure to be a disappointment, especially if it looks right, but tastes wrong. But if there are no connections in the brain to some previous memory and experience, you can just enjoy the flavors for what they are.

The first couple weeks are definitely the toughest and you can expect to accidentally gluten yourself multiple times until you track down sources of accidental glutenings. It does get a ton easier and you're already on the right track if you've found this forum. There is so much information here to help avoid pitfalls and understand problems that I really don't think I'd be successful without it.

WisconsinKim Newbie

Oh you guys are wonderful!!! Can't thank everyone enough for the all the help! I honesly don't know how anyone would deal with this damn disease without all the help!!

 

thank you thank you thank you!!

christianmom247 Explorer

My family likes Ancient Harvest's corn & quinoa spaghetti best, followed by corn pasta.  As for the roux, I've always used cornstarch to thicken sauces and gravies, even before celiac.  Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.