Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Gluten Free For Health Reasons, But No Underlying Gluten Issues?


come dance with me

Recommended Posts

come dance with me Enthusiast

It seems to be a common thing at the moment where people are deciding to remove gluten from the diet of the entire family because it's a "healthy" way of eating, when nobody in the family has any issues whatsoever.  No sensitivities to gluten, no intolerance, nobody has coeliac disease, they see it as just a healthier lifestyle.

 

Can anyone shed some light on that?  I wasn't sure where to put this, but just wanted to ask in here what people thought about others seeking out an entirely gluten free diet for themselves and their families without it causing any concern and without a family history of gluten problems?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

There are a lot of reasons to try a gluten free diet, many of them have nothing to do with celiac disease or a gluten sensitivity. It can be helpful with treating a variety of other health issues. The pizza crusts I prefer to buy were developed by a bakery in response to doctor pointing out that autistic children responded well to a gluten free diet. He felt that no child should go without delicious pizza, so he created an amazing crust that they could enjoy. I have an uncle with Crohn's, his wife has lupus and their son may be autistic (and whether or not he is, genetically speaking... he's screwed), gluten problem or not their family could benefit greatly from going gluten free.

 

Frankly, as long as people take it seriously I don't see the problem. The issue is when people treat it like a weight loss diet or some random fad. It is a diet designed specifically to address health issues. As much as I want to see the fad end, I think the attitude some people have that celiacs and gluten sensitive people own this diet needs to stop. It just creates a divide when we should be happy to welcome anyone who embraces being gluten free for their health into our community. And for the record, embraces meaning takes it seriously without cheating.

GF Lover Rising Star

Interesting question.

 

My brother is a health nut.  I say nut because he will eliminate anything with gluten, dairy, preservatives, gmo's, antibiotics and so on.  He exercises fanatically and takes large amounts of vitamins.  He chooses not to buy health insurance and believes he will never get seriously sick.  He is very healthy at the moment.  He has no autoimmune issues and no chronic conditions. 

 

That said, he will woof down a slice of pizza if placed in front, drinks beer if he wants too.  Is he a hypocrite?  Maybe, maybe not.  He makes his food choices for personal reasons, not for medical reasons.  When he eats a slice of pizza, is he cheating?  Not really because he has no medical obligation to the diet he chose. 

 

Colleen

mommida Enthusiast

I think when people have noticed the drastic improvement of a Celiac following a gluten free diet they are amazed.

 

Gluten is a more complex protein chain for human digestion.  Removing it from the diet and consuming more fruits and vegetables (gluten free people tend to start eating more fruits and vegetables ~ cause hey it's gluten free!) seems to improve health.

 

There is supporting evidence that it can *help* in many auto-immune illnesses, but not adding more stress to the gut to process.  I have seen a drastic improvement for a woman with MS.  (She was having problems affording medication and seemed to have no other options.  She started the diet and avoided sugars too.  She looked 15 years younger and was not limping! 

 

Not only that but when stories come out that things like beaver anal secretions are used as raspberry flavoring in foods!!?  Don't you think it's about time that people start thinking about what they are eating and start making some choices about what should not be acceptable to put in their bodies.  (*this ws on a morning radio show and I just don't even want to research this.  It's just too nasty.)  The more people that want to eat gluten free the better.  Just be polite when interacting with people in restaurants and such so you don't give other gluten free people bad reputations.

come dance with me Enthusiast

The more people claim to be gluten free, but then are inconsistent, the harder it is for people to have a true understanding of how strict a person has to be when they have coeliac disease, or a child with it.  Someone who sais they are gluten free, talks to waitstaff about the gluten free options, then order a drink that contains barley malt, will give the impression that it's ok to have a bit of gluten. 

Rucko Apprentice

You might want to read "Grain Brain" by Dr. David Perlmutter for some excellent reasons not to eat grains.  Here's a link to his recent interview in Toronto where he says it better than I can:

 

Open Original Shared Link

 

 

Also check out some of the Paleo books by Robb Wolf, Loren Cordain and Nora Gedgaudas for other reasons people are encouraged to try to eat more like our ancestors.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.