Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Cooking My Own gluten-free Food In My Friend's Kitchen Make Me Sick?


NoGrainNoPain

Recommended Posts

NoGrainNoPain Newbie

My friend invited me over for breakfast, but completely forgot about my diet and was making French Toast. No matter, I brought gluten-free pancake mix and breakfast sausages. Is making my own gluten free food in a french toast environment enough to make me sick? We did share a spatula that was supposedly washed, but maybe it was just rinsed. I wasn't paying attention at the moment.

 

Alternatively, is my gluten-free food making me sick? Seems like I do better not eating things labeled "gluten free".

 

Background: Lactose intolerant at 19. Thought I had leaky gut in my 20's. MD told me I had IBS in my 30's. Had a mysterious problem swallowing this past summer, and pain in my ear. New MD said, I had an ear infection, and my throat was fine. I was also having reflux. Ten days and minus six pounds later. My MD didn't have an answer. I suggested Celiac. My IGA panel was normal, so no scope was warranted. I was on a low gluten diet at the time, mostly because bread and past was making me gag. I have Vit D deficiency (new that) and border line low Iron (MCV). MD suggested a gluten-free diet. I avoided all grains at first, just because I was too sick to cook. I felt great, Eczema went away, Keritosis Pilars got smooth, no digestive symptoms. I ate raw broccoli, carrots and cauliflower for days and didn't have any noticeable gas.  Imagine that! Early on, I ate a handful of goldfish crackers at work by mistake. It seemed like a score, such a giant bag. I grabbed a cup to snack on them later at my desk. Two hours after consumption, I thought I was going to explode. After the following three days of bloat, I felt like I had been kicked in the stomach.

 

Not sure where to go from here. The diet is a challenge to learn. 

 

Advice? Thoughts? Comments?

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Did you say something about eating Goldfish crackers?  Were they the gluten-free ones?   You don't say when that happened or how long you have been actually gluten-free.  I think that if you are still accidentally eating gluten, it is too soon to worry about super sensitivity.  Why not give the regular gluten-free diet a proper try first?  Or, if you wish, do just produce and unprocessed meat first for quick healing and then try adding some of those gluten-free processed items.  You need to give the diet time.  If you are gluten intolerant, you need time to heal.  You also need time to learn the diet and stop making mistakes.  I hope you feel better.

felps89 Newbie

yes, if the surface its contaminated.

  • 1 year later...
mfarrell Rookie

Did you say something about eating Goldfish crackers?  Were they the gluten-free ones?   You don't say when that happened or how long you have been actually gluten-free.  I think that if you are still accidentally eating gluten, it is too soon to worry about super sensitivity.  Why not give the regular gluten-free diet a proper try first?  Or, if you wish, do just produce and unprocessed meat first for quick healing and then try adding some of those gluten-free processed items.  You need to give the diet time.  If you are gluten intolerant, you need time to heal.  You also need time to learn the diet and stop making mistakes.  I hope you feel better.

What is the regular gluten-free diet?  Is that the one that the nutritionist gives you? 

kareng Grand Master

What is the regular gluten-free diet?  Is that the one that the nutritionist gives you? 

 

This is a bit old, but I believe she just meant that this person needs to be gluten-free & not accidentally eating gluten for a while before they worry that they are "super sensitive".  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    4. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,621
    • Most Online (within 30 mins)
      7,748

    vikkigoe
    Newest Member
    vikkigoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.