18 replies to this topic

[GFinDC]

Hi Bianacad,

 

Being hypothyroid could certainly cause some of your symptoms.  Hashimoto's thyroiditis is something celiacs get sometimes.  It is an auto-immune attack on the thyroid.  Vitamins and minerals being low can also cause many symptoms.

[0range]

You can have wonky thyroid results if you have Celiac (and vice-versa)... sometimes you have an additional (thyroid) autoimmune disease, like Hashimoto's or Graves, and other times it's untreated Celiac causing problems elsewhere. I have Hashi's and had extreme symptoms very similar to yours (shortness of breath, memory loss, paresthesia, you name it!) and ended up in emergency a few times -- but I was on a thyroid medication dose that was not right for me. I hope you find some answers soon!

[Juliebove]

Are you on any medications?  I just read about something last night but can't remember what it is called.  It's a very rare side effect that can happen with some medications and most Drs. are clueless about it.  It can cause swelling in any part of the body.  But when it causes swelling inside of you such as your lungs, stomach or various organs, it can cause shortness of breath.  Not saying that this is what you have but it's possible.

[biancad]

I'm not on any medications. I will see the liver doc and a immunologist in the next two weeks. Overall am feeling better though I begin to have foot and joint pain along with "attack" symptoms when I get glutened. I was shocked to find out that Trader Joe's pink salt is processed on a machine that processes wheat. Also, sashimi can still be cross contaminated from a cutting board or towels the sushi chefs use. I may never eat out again! I knocks me back over and over! 

I'm beginning to wonder if I shouldn't try an SCD diet for six months since I seem unable to eat grains, soy, coconut, dairy, eggs, honey, many fruits, tomatoes, etc. My diet is so limited and restricted right now. Frankly, I'm afraid of food at this point.

I've read that it may take a year to recover and being to add some of the above items back in but I really wonder if anyone fully recovers on a gluten free diet or if there will always be some lingering fatigue and stomach issues. ugh!