Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

18 Month Old Failure To Thrive
0

7 posts in this topic

Hello, I am new to this forum and hope I can get some answers! My 18 month old has been steadily not gaining weight since 10 months. She is officially off the charts. Her stools are loose all the time, at time almost beige in color, and despite eating a ton of food she just can't gain weight. We just recently tested her for allergies and celiacs blood tests. I tried a cows milk free diet with no change in stools. then, I did put her on gluten free diet for a few weeks and her poops became normal for the first time since birth! I spoke to her peds and went back on gluten for 2 weeks then did all the tests. Her poops became loose again 48 hrs after reintroducing gluten. However, her igg and iga were in the normal range, and even though her rast for wheat was slightly elevated at 0.17 it is not considered am allergy. She did test positive for class 2 cows milk allergy! So I am putting her on dairy free diet but my question is should I still a valid gluten? Can she still have celiacs? It does run in our family. Her inflammation markers were also negative. Her plt were elevated also but that can just be a reactive response to being allergic to cmp? I just don't know if I should push for a biopsy or if it is not needed at all to confirm no celiacs? Thank u. Laura

0

Share this post


Link to post
Share on other sites


Ads by Google:

Dairy is also broken down at the tips of the villi, this is why many docs now tell patients to cut out dairy...Goat's milk is easier to digest so down the road you may want to give that a try.....no one can say for sure if she has celiac or not.. Trial & error will give you the answer. She is still very young ... SO your options would be to start out with no dairy for three month & watch for changes & make your move from there or to just remove both dairy & gluten immediately. As a parent that is your choice...

When our grandchild was like your daughter we did the scope with biopsies age 2 1/2 years... Best thing we ever done.... now 12 & growing ... A very picky eater though as I think the remembrance of food making him ill is in the back of his mind....

I think the real problem happens when school age begins because without proper documentation the school may not be willing to assist with the gluten-free diet...

And there are people who have celiac who show no intestinal damage...

My heart goes out to you as we have been there & as a parent/grandparent we never want our kids to be nothing but healthy....

0

Share this post


Link to post
Share on other sites

Laura.......blood testing in children that young is notoriously unreliable partly because it can take years for antibodies to build up to the point where it shows in blood work.  An 18 month old is still too new on the planet for a definitive diagnosis.  :)   It can happen but many parents of young children struggle to get a proper diagnosis.  Here is what stands out for me......Celiac runs in your family, you did a quickie dietary trial and noticed big improvements in her bowel habits and then re-introduced gluten with a return of symptoms. She has stopped growing.  I would make sure they did a FULL Celiac Panel on her, not just a couple of tests from the panel and you might want to consider a biopsy, even though I would have trouble with letting a doctor scope a child that young....but that's just me.  However, at her young age, a biopsy might very well be negative at this point in time but you never know.

 

Let me tell you this......my great nephew, who is about 9 years old, is very small in stature and weight.  He has behavorial issues and developmental issues....not bad, but they are there.  His brother, who is 4 years younger, is the same size.  I have been telling my niece that this poor kid has Celiac from about Day 1 but she is in denial and her dopey GI keeps telling her he doesn't...because the scope did not show blunted villi yet.  But his duodenum was inflammed.....why would his duodenum be inflammed in a child so young?  So...he is still on a gluten diet and now has developed full blown asthma and is taking other meds for severe constipation.  This is driving me batty and I want to shake my niece by her toes because she is slowly killing her child because of an arrogant GI doctor who doesn't know his ass from his elbow.  Please do not let this happen to your daughter.  Repeat the blood work, doing all of the testing in the panel and consider a scope. If everything is still negative, put her on a strict gluten-free diet and don't look back. Otherwise, your daughter will never grow and she could start to develop any one of the many autoimmune problems that come with undiagnosed celiac. (Like asthma) Sometimes the medical community fails us miserably and you have to go your own road for the sake of a healthy kid.

 

Oh yeah.......I would also suggest gene testing to see if she carries one of the main celiac genes. That could help bolster a diagnosis.

 

Good luck!  :D

0

Share this post


Link to post
Share on other sites

Personally I would retest blood. That's what we did. And it all started with a 12 month old FTT that ended up with DX at 18 months.

0

Share this post


Link to post
Share on other sites

Testing is not perfect, particularly with a young child. While a medical diagnosis is preferred, if your baby is obviously healthier on a gluten free diet.. make her gluten free (dairy and gluten problems often go hand in hand), it's only food. I suggest keeping a journal and note her reaction to foods, stool appearance & weight gain... I more than suspect you will see it! Then in a year, review her progress and your notes with your doctor and or peds gastroenterologist. Get her healthy momma, your instincts are right on & then discuss if it's worth getting an official medical diagnosis with the professionals. It isn't going to hurt her to live without gluten and dairy if you make sure she is getting nutrients from good sources, it sounds like it is going to help her!

0

Share this post


Link to post
Share on other sites




My 18 month old had similar symptoms; beige and VERY acidic diarrhea. Sudden onset such that we thought it was a stomach virus, but it just never went away. Husband is celiac so we eliminated gluten and she started having normal stools again. We also did the blood test (altho not the complete panel) and it came back negative. With family history and response to diet, we went gluten-free and never looked back. There are good reasons to do the endo, though. Just wasn't for us. Maybe we'll let her decide to do that when she's older. If she can tolerate eating a gluten diet for that long, that is.

1

Share this post


Link to post
Share on other sites

Lactose intolerance is ALWAYS the first sign of celiac disease imho. It shows up long before the tests will, it's an early sign, be happy for the early signs. I don't even believe you can have one without the other and if anyone tells me you can I wouldn't believe it :).

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,887
    • Total Posts
      919,486
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle, The celiac testing process usually includes a blood test for gliaden antibodies first, and then an endoscopy to take biopsy samples of the small intestine to check for damage.  So while it's good to get the celiac panel done, don't go gluten-free until the whole testing process (including endoscopy) is completed. Vitamin deficits are a problem in celiac disease, so that issue does match up.  Anxiety and digestion problems are common too.  Celiac is tied to a few genes, so if your mom has it, you might have it also or might develop it at some point in life. Don't be too scared of it if it does turn out to be celiac disease.  The gluten-free diet can be a big change but the end result of it is you'll feel better.  You'll probably end up eating better more nutritious food than most people also. Celiac is a great disease in one way, because we know the trigger (gluten) and can treat ourselves with diet.  Most times doctors don't know the cause of autoimmune diseases and can't do anything but medicate the patient.  Our medicine is food.  Yum!  
    • Depression / anxiety issues
      You are welcome Chris.  The vitamin D council site linked below has info on how much vitamin D we need and how much sun is needed to get it, what foods contain it etc.  Around my neck of the woods I can only get UVB rays (needed to make Vitamin D in skin) from 10 am to 2 pm.  So a food source or vitamin pill is a good option,  Especially in winter when you probably won't get any V-D from sun exposure.  Foods sources are mackeral, salmon, tuna and a few plants like spinach and kale.  You can find a review of various V-D brands on the labdoor website.  Some pills are useless so it pays to verify you are taking a good one. http://www.vitamindcouncil.org/about-vitamin-d/ https://labdoor.com/rankings/vitamin-d  
    • Eeek confused! Positive biopsy, negative blood test???
      Sealy-yak - Can you confirm if they did the Full Celiac Panel? Some Celiac blood tests are more reliable than others.   
    • Eeek confused! Positive biopsy, negative blood test???
      the whole celiac/doctor issue is as frustrating as it is common, unfortunately   my gp, who knows full well that i have celiac, tried to give me this new 'miracle drug' for ibs-d when i told him i was still having indigestion/inflammation for seemingly no reason.  "it's expensive, but i have a coupon for the first month"  O BOY LUCKY ME!  i told him, ok, that i would try it.  (i think i have an idea of what my problem is and i originally asked for something different to try to see if it would work.  he didn't even know what it was)  i'm not gonna try it.  it's a narcotic, it has side effects i don't need or are the same as my symptoms.  i'm gonna switch doctors.  and switch doctors again and again until i find one that KNOWS MORE ABOUT THIS THAN ME.  on top of that, they computerized all their records, which i have been going there for 20 years, ASKING WHAT I'M ALLERGIC TO!  i said:   umm, don't you have that in my MEDICAL RECORDS??!!  well, we have your paper records.  i said, i'm HERE.  don't ya think ya shoulda pulled my file out??  i mean, y'all knew i was coming.  you know, the appointment thing....... LOLZ yeah, i've been gluten free for 6 years, and this clown tells me 'you know, you can't drink beer'  i said yes i can.  he says no, you can't.  i said why not?  because of the alcohol, haha?  no, because it has hops in it and if you're celiac, you can't have hops.  i said it's BARLEY.  O MY GOSH!!!!!!!!!!!!  i said, you're the doctor.  rolled my eyes and left. welcome to the board  sorry for all the yelling, lolz.  
    • Eeek confused! Positive biopsy, negative blood test???
      Thank you! My PA said that she still thinks it's celiac....but I don't feel like she's fully explained why. Some people are hard to get a solid answer out of! I think I'm gonna get a second opinion somewhere else.....appreciate the feedback. Makes me feel a little less crazy
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,929
    • Most Online
      1,763

    Newest Member
    Robyn08
    Joined