I am new to this forum and decided to post my current situation with two hopes: that others may have some acquired wisdom they can share, and to also help anyone else out there who may be struggling.
I have had chronic vertigo, inability to concentrate (foggy headedness), inflammation in the glands and inner ear, and sore throat for 17 months now. The symptoms ebb and flow, with some days being more tolerable and the flare-ups making me bedridden.
The symptoms began during the flu season and began with a flu-like illness that developed into the syndrome. I saw two general practitioners who were puzzled and sent me to an ENT. The ENT diagnosed the vertigo as the type that occurs when the crystals in the inner ear get shaken up and said he 'didn't care' about the chronic sore throat or swollen glands. He sent me to a physical therapist who disagreed with his diagnosis and said the vertigo was likely due to neuritis, or inflammation of the nerve in the inner ear, which is thought to be caused by a viral infection. This is much more likely, but doesn't explain why I cant shake it, and there is no accepted cure for neuritis.
I have been gluten free for several years. (Prior to that, I was a vegetarian and ate massive amounts of wheat gluten daily and so developed Candidiasis (thrush), another saga that involved skeptical or hostile doctors and the necessity to do research and self-diagnosis.)
In the last two weeks I've also developed joint pain in the right hand and my vision is sometimes blurry or 'off'.
The evidence seems to point towards some kind of autoimmune disorder, such as lupus, rheumatoid arthritis or thyroiditis.
I'm now looking into lectins in food and their apparent connection to immune suppression/disorders in some people, but the research is scant. I'm going to eliminate high-lectin foods (grains, legumes, dairy and nightshades) for a week to see if this impacts the symptoms.
Has anyone ever experienced anything similar, or has any substantive information about the lectin connection?
Thanks so much and so nice to see this forum!