Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Does The Pain Feel Like For You?


kabons

Recommended Posts

kabons Apprentice

I was diagnosed 4 months ago, but have been gluten free for about 10 months. I think I am finding that my sensitivity is getting more intense, which sucks.

One positive thing (ish) is that I think I am understanding my body more in terms of how I react. Although, it's a little different each time depending on different factors, especially how much I've eaten. And over time the symptoms have changed too. But lately I've been experiencing an intense pain when I accidently eat something with even a little gluten in it (ie flavouring with barley).

Anywho, I'm really curious what 'glutening' pain feels like for other people. People often talk about the sickness associated with it (which i definitely also get) but not as much the outright pain.

For me, the pain is a stabbing/cramping pain in my lower left side, which sometimes switches btw the right and left. I also feel it at my sides and sometimes lower back. It almost feels like it's in my ovaries (I also have endometriosis so I'm pretty aware of the presence of those guys). It throws me off because it seems like such an odd location for me to be feeling it.

Is this normal!?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Yep, it sounds normal, but remember everyone has different experiences. The learning curve for maintaining a gluten-free diet is steep. Review our Newbie 101 section under the "Coping" section for valuable tips. It sounds like you are getting glutened often! Plus, it can take a while to heal. A long time if gluten is sneaking into your diet.

Take care!

cap6 Enthusiast

Everyone reacts slightly differently. Everything you describe sounds quite normal for a glutened reaction. For myself, I feel slightly sick to my stomach, then I get diarrhea, followed by cold, clammy sweaty chills, then comes the vomiting and think I am going to die followed by passing out followed by several days of constipation. This is followed by renewed knowledge that I will go nowhere near gluten....ever! My last glutening was two years ago when I stupidly ate at a friends house. Broke my own rule and paid for it, big!!! I think everyone here has a slightly different reaction. And it can change as you go through the months/years of healing.

nonnarae Rookie

Well, vomiting was a new symptom for me. Went on vacation and didn't stick to my guns about the food because I felt like such a pain. Yes it is, but I paid for it dearly. 

 

 

First, migraine, then vomiting and then 4 days of gut wrenching pain in the just right of center area under my ribs. Right about the area where tummy meets intestine. 

 

That the stiff neck and swelling seem to last the longest!

 

IS it odd that I think I react very quickly after being glutened/? I am pretty certain it is within 3-5 hours and this past weekend seemed almost immediate after eating at a texas roadhouse.

cap6 Enthusiast

Again it is so different with everyone on reaction time. The first couple of years for me I swear I could feel it hit my gut almost immediately, now it takes a few hours.

  • 2 weeks later...
Selfmom5 Newbie

Mine varies the longer that I go gluten-free without having any cheating whatsoever my symptoms get more intense. Of course there's the normal stomach cramping just feeling like your stomach sore feeling constipated. Then there are those strange triggers for me when i feel like it's just a trace punt and then I spend the rest of the day and next vomiting and cramping! mine is wrapped up with having auto immune joint pain. So when i Eat gluten it sends my body into a spiral and my joints will really hurt and if I am in a "flare" it feels like porky pine needle coming out of my skin.

Serielda Enthusiast

sigh sorry for double post.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Serielda Enthusiast

For myself, I feel nauseated with horrendous stomach cramps and joint pain. Other things I deal with is bouts of d and brain fog and my anxiety is in overdrive.

  • 3 years later...
lilfawn Newbie

This  thread has been so helpful. My tests came back negative, but i experience a lot of these symptoms when  i eat wheat  and grains. 

I get this severe pain underneath my left and right ribs that radiates all down my sides. It feels almost like a burning / tight sensation and almost like the inside of my stomach is itchy! Super bloated to the point of looking pregnant, chronic d, brain fog, irritability, super loud stomach gurgling, gas. 

Ive just started the diet  so I'm  still quite sick, its been about 3 years w untreated symptoms..please tell me it gets better lol

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.