Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Front Page Of Wall Street Journal


4getgluten

Recommended Posts

jerseyangel Proficient

Wow--yes--very cool! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

wow Deb--that's cool! how did he get connected with the article?

happygirl Collaborator

great picture! you are FAMOUS! :)

I just printed it out for my archives!

Nevadan Contributor

Deb, many thanks to your husband for participating in the WSJ celiac story. What a great opportunity to help spread celiac awareness.

Speaking of celiac in the media, in attempts to get more celiac coverage in the media to increase awareness keep in mind that one of the media's primary criteria for selecting topics is business based: how many customers would read, listen, view, etc. When there is an article such as this in a rather prestigious publication and it gets such high visibility (see my earlier post regarding how high it has rated in "Most Emailed" on WSJOnline) it can provide a good "attention getter" when you try to promote coverage in other media. (e.g. I have emailed the article to NPR's "Talk of the Nation Science Friday", one of my favorite radio programs, highlighting it's popularity at WSJ and suggested celiac as a Science Friday segment topic.) We need to keep up the momentum in spreading celiac awareness.

George

ms-sillyak-screwed Enthusiast

Deb -- Sorry about hubby. Many thanx! And God bless you.

You both have helped change and bring about awareness for celiac's, people and doctors.

We need to keep up the momentum in spreading celiac awareness.

I agree!

Any ideas?

Don't laugh. Call me Open Original Shared Link.

I think I'm going to send the article in my Xmas cards this year.

So people will get 'it'?!

dpath Newbie

Folks: I'm the author of the WSJ article. I just wanted to thank everyone who has written or posted about the story, and to apologize in advance if I'm not able to send personal replies to everyone who's written in. The response has been overwhelming; I've received something close to 150 e-mails since Friday, nearly all of them from celiacs or their family members. I've shared excerpts from a few messages with my editors in NY on a not-for-publication basis, just so they know what kind of effect the story has had.

I also wanted to thank several posters to these boards who replied to my inquiry and were kind enough to spend some time telling me their personal stories. We weren't able to include everyone in the story, unfortunately, nor to give each individual's story the time and attention it deserved, but we did our best given the natural constraints of newspaper publishing. I do hope to do some followup stories, and with luck I'll be able to include some of the material that didn't make the page-one story and to address some of the many suggestions I've received from readers.

I treat e-mail as personal correspondence, so we won't publish any of the notes I've received directly. If anyone would like to submit a letter for possible publication, please direct it to wsj.ltrs@wsj.com.

Many thanks again, and best of luck to all of you.

Best, David Hamilton

Canadian Karen Community Regular

Mr. Hamilton:

Thank you for taking the time to come to our forum to communicate with us directly to let us know the overwhelming response you have had to your article. We really appreciate what you have done to raise awareness for this disease (as I mentioned in my e-mail to you today), and wanted to reiterate to you just how wonderfully informative your article was. Instead of just doing the "technical, scientific" aspect of this disease, you captured the human aspect of this disease. You truly have a gift.

Kudos to you!

Many thanks,

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

David-

Again--Thanks so much for your interest in Celiac. Articles like yours share responsibility for the raising of awareness, which leads to more individuals being diagnosed. Thank you! -Jen

celiachap Apprentice
Hi All :) My husband is "Mr. Martin" and I am sure the WSJ editors in NYC cut some addtional info about him out as his interview with the author was about 40 minutes long. As many of you know, Mike has been plagued with other health problems over the years that stem from his misdiagnosed celiac.

We were very excited to be included in this story and we were caught off guard that it was finally published on 12/9 (the interview happened over a month ago). The photo is from our 2004 25th Wedding Anniversary. Deb :D

Thanks, Deb!

We're ALL appreciative of your, and Mike's, efforts - as well as everyone else that was involved in bringing this story in the Journal (as those of us here call it on the "Street", lol) to fruition.

I know that you've written about Mike's "other" celiac-related problems, but would you mind giving us another short rundown of them?

Bill

psawyer Proficient

I'm one of the people that David interviewed while he was working on his article. That was in early October. He has done a great job in telling our story, and it is just fantastic that it was a page-one story.

Thank you so much, David. It is a terrific article.

FaithInScienceToo Contributor

I was interviewd, too - and am also pleased with the resulting article.

Kudos, David.

Gina

CMCM Rising Star

The article said celiac disease can lead to Type 1 diabetes....that's wrong, isn't it....shouldn't it be Type 2 diabetes??

psawyer Proficient

Type 1 diabetes is correct. Type 1 is an autoimmune disease wherein antibodies are produced which attack the Islets of Langerhans in the pancreas leaving the body unable to produce insulin. The proportion of celiacs among type 1 diabetics is higher that the population as a whole, and the reverse is also true. Recent research is now suggesting that untreated celiac can trigger other autoimmune diseases, including type 1 diabetes.

I was finally diagnosed with celiac at age 46. I developed type 1 diabetes at age 31, but had been having celiac symptoms for years before that. Perhaps if the celiac had been recognized when I was in my twenties, and I had gone gluten free then, maybe I would not have developed the type 1 diabetes.

Type 2 diabetes is not an autoimmune disease. The Islets are still there, but they may produce insufficient insulin, or the other cells may resist it. The result in both cases is high blood sugar, which causes all of the complications associated with diabetes.

jerseyangel Proficient

Peter--Thanks for that explanation. I had read many times about the link, but never really understood the "how's and why's".

sillyyak Enthusiast

Where can I get a copy of this article? I would love to read it. Thank you

Rachel--24 Collaborator
Where can I get a copy of this article? I would love to read it. Thank you

The article is posted on the 1st page of this thread. :)

ms-sillyak-screwed Enthusiast

Update -- I brought the WSJ article with me and asked my new GASTRO DOC (treats celiac disease) if he had read it. He said NO I DON'T READ THE WSJ. So, I gave him a print out.

I just got off the phone with my cousin that works as an art director in NYC in advertising for the medical industry (RX companies)... She said DOCs don't read the WSJ (unless they have a business brain), but the EXECUTIVES from all the RX companies DO. She said when they read it and see there is a huge need to find the magic pill and all the $$$$$ in it for them to cure us, it will get their attention.

Just a thought...

stef-the-kicking-cuty Enthusiast
I think I'm going to send the article in my Xmas cards this year.

So people will get 'it'?!

This is a really neat idea. Maybe I'm silly, too :lol: .

But, oh, wow, this was an awesome article. Thanks so much, George and David, this is so cool. I will print this out and copy it for everyone I know...

Hugs, Stef

julie5914 Contributor

I am so happy that this made the front page! I haven't been able to look at the second article if anyone can share it...

I was interviewed as well - he did a great job on the story. My mom has diabetes type 1, and my doctor thinks I got celiac from her because of the autoimmune relation, even though she does not have celiac. I am a little nervous that I may develop DT1 because of that - she did not start to see pancreas trouble until she got pregnant, and I have not had kids yet. You never know what will happen when your immune system is overactive!

And I hope Mr. Hamilton will forgive me, but I thought it was interesting that he himself had been diagnosed with celiac and therfore has been through what we have with the diet. However, he was found not have it later when he had a biospy and went back on gluten without problems. So he has been there and back!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748

    Nick H.
    Newest Member
    Nick H.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...