Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Front Page Of Wall Street Journal


4getgluten

Recommended Posts

jerseyangel Proficient

Wow--yes--very cool! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

wow Deb--that's cool! how did he get connected with the article?

happygirl Collaborator

great picture! you are FAMOUS! :)

I just printed it out for my archives!

Nevadan Contributor

Deb, many thanks to your husband for participating in the WSJ celiac story. What a great opportunity to help spread celiac awareness.

Speaking of celiac in the media, in attempts to get more celiac coverage in the media to increase awareness keep in mind that one of the media's primary criteria for selecting topics is business based: how many customers would read, listen, view, etc. When there is an article such as this in a rather prestigious publication and it gets such high visibility (see my earlier post regarding how high it has rated in "Most Emailed" on WSJOnline) it can provide a good "attention getter" when you try to promote coverage in other media. (e.g. I have emailed the article to NPR's "Talk of the Nation Science Friday", one of my favorite radio programs, highlighting it's popularity at WSJ and suggested celiac as a Science Friday segment topic.) We need to keep up the momentum in spreading celiac awareness.

George

ms-sillyak-screwed Enthusiast

Deb -- Sorry about hubby. Many thanx! And God bless you.

You both have helped change and bring about awareness for celiac's, people and doctors.

We need to keep up the momentum in spreading celiac awareness.

I agree!

Any ideas?

Don't laugh. Call me Open Original Shared Link.

I think I'm going to send the article in my Xmas cards this year.

So people will get 'it'?!

dpath Newbie

Folks: I'm the author of the WSJ article. I just wanted to thank everyone who has written or posted about the story, and to apologize in advance if I'm not able to send personal replies to everyone who's written in. The response has been overwhelming; I've received something close to 150 e-mails since Friday, nearly all of them from celiacs or their family members. I've shared excerpts from a few messages with my editors in NY on a not-for-publication basis, just so they know what kind of effect the story has had.

I also wanted to thank several posters to these boards who replied to my inquiry and were kind enough to spend some time telling me their personal stories. We weren't able to include everyone in the story, unfortunately, nor to give each individual's story the time and attention it deserved, but we did our best given the natural constraints of newspaper publishing. I do hope to do some followup stories, and with luck I'll be able to include some of the material that didn't make the page-one story and to address some of the many suggestions I've received from readers.

I treat e-mail as personal correspondence, so we won't publish any of the notes I've received directly. If anyone would like to submit a letter for possible publication, please direct it to wsj.ltrs@wsj.com.

Many thanks again, and best of luck to all of you.

Best, David Hamilton

Canadian Karen Community Regular

Mr. Hamilton:

Thank you for taking the time to come to our forum to communicate with us directly to let us know the overwhelming response you have had to your article. We really appreciate what you have done to raise awareness for this disease (as I mentioned in my e-mail to you today), and wanted to reiterate to you just how wonderfully informative your article was. Instead of just doing the "technical, scientific" aspect of this disease, you captured the human aspect of this disease. You truly have a gift.

Kudos to you!

Many thanks,

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

David-

Again--Thanks so much for your interest in Celiac. Articles like yours share responsibility for the raising of awareness, which leads to more individuals being diagnosed. Thank you! -Jen

celiachap Apprentice
Hi All :) My husband is "Mr. Martin" and I am sure the WSJ editors in NYC cut some addtional info about him out as his interview with the author was about 40 minutes long. As many of you know, Mike has been plagued with other health problems over the years that stem from his misdiagnosed celiac.

We were very excited to be included in this story and we were caught off guard that it was finally published on 12/9 (the interview happened over a month ago). The photo is from our 2004 25th Wedding Anniversary. Deb :D

Thanks, Deb!

We're ALL appreciative of your, and Mike's, efforts - as well as everyone else that was involved in bringing this story in the Journal (as those of us here call it on the "Street", lol) to fruition.

I know that you've written about Mike's "other" celiac-related problems, but would you mind giving us another short rundown of them?

Bill

psawyer Proficient

I'm one of the people that David interviewed while he was working on his article. That was in early October. He has done a great job in telling our story, and it is just fantastic that it was a page-one story.

Thank you so much, David. It is a terrific article.

FaithInScienceToo Contributor

I was interviewd, too - and am also pleased with the resulting article.

Kudos, David.

Gina

CMCM Rising Star

The article said celiac disease can lead to Type 1 diabetes....that's wrong, isn't it....shouldn't it be Type 2 diabetes??

psawyer Proficient

Type 1 diabetes is correct. Type 1 is an autoimmune disease wherein antibodies are produced which attack the Islets of Langerhans in the pancreas leaving the body unable to produce insulin. The proportion of celiacs among type 1 diabetics is higher that the population as a whole, and the reverse is also true. Recent research is now suggesting that untreated celiac can trigger other autoimmune diseases, including type 1 diabetes.

I was finally diagnosed with celiac at age 46. I developed type 1 diabetes at age 31, but had been having celiac symptoms for years before that. Perhaps if the celiac had been recognized when I was in my twenties, and I had gone gluten free then, maybe I would not have developed the type 1 diabetes.

Type 2 diabetes is not an autoimmune disease. The Islets are still there, but they may produce insufficient insulin, or the other cells may resist it. The result in both cases is high blood sugar, which causes all of the complications associated with diabetes.

jerseyangel Proficient

Peter--Thanks for that explanation. I had read many times about the link, but never really understood the "how's and why's".

sillyyak Enthusiast

Where can I get a copy of this article? I would love to read it. Thank you

Rachel--24 Collaborator
Where can I get a copy of this article? I would love to read it. Thank you

The article is posted on the 1st page of this thread. :)

ms-sillyak-screwed Enthusiast

Update -- I brought the WSJ article with me and asked my new GASTRO DOC (treats celiac disease) if he had read it. He said NO I DON'T READ THE WSJ. So, I gave him a print out.

I just got off the phone with my cousin that works as an art director in NYC in advertising for the medical industry (RX companies)... She said DOCs don't read the WSJ (unless they have a business brain), but the EXECUTIVES from all the RX companies DO. She said when they read it and see there is a huge need to find the magic pill and all the $$$$$ in it for them to cure us, it will get their attention.

Just a thought...

stef-the-kicking-cuty Enthusiast
I think I'm going to send the article in my Xmas cards this year.

So people will get 'it'?!

This is a really neat idea. Maybe I'm silly, too :lol: .

But, oh, wow, this was an awesome article. Thanks so much, George and David, this is so cool. I will print this out and copy it for everyone I know...

Hugs, Stef

julie5914 Contributor

I am so happy that this made the front page! I haven't been able to look at the second article if anyone can share it...

I was interviewed as well - he did a great job on the story. My mom has diabetes type 1, and my doctor thinks I got celiac from her because of the autoimmune relation, even though she does not have celiac. I am a little nervous that I may develop DT1 because of that - she did not start to see pancreas trouble until she got pregnant, and I have not had kids yet. You never know what will happen when your immune system is overactive!

And I hope Mr. Hamilton will forgive me, but I thought it was interesting that he himself had been diagnosed with celiac and therfore has been through what we have with the diet. However, he was found not have it later when he had a biospy and went back on gluten without problems. So he has been there and back!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,021
    • Most Online (within 30 mins)
      7,748

    Mary larson
    Newest Member
    Mary larson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.