Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Idea - How About A gluten-free Convention


Nantzie

Recommended Posts

Nantzie Collaborator

Wouldn't that be fun? We could have it either centrally located somewhere in the middle/north US, or do a poll on where the most celiacs happen to be, and have it there the first time. Get all the gluten-free companies to have booths there.

We could have a cooking competition using gluten-free products. It could just be one basic thing that we can't eat mainstream versions of. Best cookie, best mac & cheese, best onion rings. Something like that.

I'm not the organizing type, but just thought I'd throw the idea out.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 89
  • Created
  • Last Reply
penguin Community Regular

I am SO DOWN with the gluten-free Iron Chef! Kick ass! :lol:

jerseyangel Proficient

I think that is a great idea! Hopefully others will be interested and we can get the ball rolling :D

floridanative Community Regular

I can't cook well enough with or without gluten to enter a cooking contest but I'm all about a conference and if I can swing it I'll be there. What about Chicago as a centralized location? CA is too far for most (I think) but Chicago is fairly central and always has lots of great hotel offers for groups. I may be able to help with planning starting this summer. Until I'm snowed under with work and learning my new lifestyle.

Also, some Celiac awareness group (maybe GIG) meets each year for a conference but it's always in Salt Lake City which is NOT centrally located in the US.

Guest BERNESES

I wuld definitely go- I can see it now CchelsE and me in a smack down iron Chef style. :P Seriously, it would be so fun to organize even just a central place to meet for a long weekend. Chicago would probably be PERFECT. Or we could go Canadian which would be fun too! Montral, toronto?

Guhlia Rising Star

They managed to pull of a gluten free beer festival Open Original Shared Link, so it sounds like a good idea to me! I'd be there!

Guest BERNESES

Guhlia- Thaat is so cool! If we could combine the two, I'd die andgo to heaven. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Robbin

I am seriously there!!! I love cooking!! Chicago sounds good. :)

Guhlia Rising Star

I don't know what I'd do if I were in a convention hall full of *safe* food and *safe* beer... I think I'd just burst into tears knowing that I could have anything I wanted in that room. Please tell me I wouldn't be the only dry eye... Does anyone have really good organizational tools to set something like this up? Think the gluten-free beer festival would be interested in joining hands with an entire gluten-free convention? We could have all the gluten-free companies bring samples and do ribbons like the gluten-free beer festival did. How better to get the word out about their product?!?!?!

Okay, I must go now... I'm drooling all over my computer just thinking about it... :unsure:

lorka150 Collaborator

I'm in.

TO WIN!

Ha!

Just joking, but really, I'm in. I can help organize!

Guhlia Rising Star

Do you think the mainstream product producers would have any interest in this? Maybe if we marketed it correctly to them? I know that Grandma Utz potato chips label as gluten free. So do Lays Stax, Thai Kitchen, and so many others. Maybe they would be interested in setting up booths with samples and coupons??? Just a thought. I think if we can somehow get the mainstream group to join us, we'll be able to reach out to so many more people. In addition, it may in turn raise celiac awareness. We already have the governmental labeling laws kind of on our side. This could be the perfect time for a breakthrough.

Maybe I'm thinking bigger than I should... So if this just sounds like an aimless pipe dream, please ignore it... I just desperately want the word to get out. And let me tell you, a room full of gluten free goodies is driving me up a wall! :D

paulasimone Rookie

i agree with guhlia 100%.

i am pretty confident i would start crying if i were surrounded by a convention hall full of gluten-free food and sympathetic celiacs. cook-off = brilliant! (sponsored by ...etc etc etc); booths thing = genius. that would be *so* much better than ordering food online to taste it.

guhlia, i see your pipe dream and raise you one implausible fantasy: celiac celebrity speakers/performers.

:)

paula

Guhlia Rising Star

Think Kid Rock would perform in memory of his little friend (sorry, can't remember his name right now). I'm not a Kid Rock fan, but is sure would be cool to have someone of that stature perform.

Paula *hugs* we can cry together. I think if I saw a convention hall of all that, I'd just be down on my knees sobbing with relief.

lorka150 Collaborator

i think that, in the least, the initial idea of a get together, where we all bake and have a mini-convention sounds fun.

Guhlia Rising Star

Would it be possible for one of the moderators to move this topic into the "coping with" forum to get more attention? I think you guys have an awesome idea here and that seems to be the most popular forum on here.

jerseyangel Proficient

I just love the idea for us all (as many that can) to get together for a weekend and visit face to face. If it were at all possible, I would be there. I think it would be great!

lorka150 Collaborator

i was doing some more thinking about this.

in the summer, i am opening up business at our farmer's market with all gluten-free and dairy-free stuff. if it takes off, i want to open business, officially.

anyway, i would be willing to cater the whole event.

danikali Enthusiast

I'll def. go!

It would be so AMAZING to be surrounded by people who UNDERSTAND (really understand) what I go through every day of my life. My eyes would def. not be dry!

And Chicago sounds perfect, since it's the biggest city right in the middle.

Can we really do this? It's sounds too good to be true!

Guhlia Rising Star

We can do it! We just need to get a group of people who have good organizational skills (and some free time). We need to pin down exactly what we want to do (ie: booths for gluten-free manufacturers, entertainment, contests, convention hall location, etc). I'm good at coming up with ideas and I'm good at coming up with an action plan to carry out those ideas, but I'm HORRIBLE at following through with things. I think that if we want this to happen, we can make it happen. It just takes a group of dedicated individuals with good resources. A sponsor wouldn't hurt either. Maybe Celiac.com would be willing to sponsor the event. It would be expensive to pull off without sponsorship. I imagine the convention hall would be pretty pricey, plus insurance, permits (I imagine we'd need permits if food or drink were involved, even if it were informal), plus whatever else is involved in something like this.

If we do it... Can we have one big group hug for all the pain and suffering that all of us have been through before, during, and after our diagnosis?

Nantzie Collaborator

I'm so excited that everybody thinks this would be fun too. I was thinking a weekend thing would be good at first. I know we could fill a whole week, but that's kind of a lot at first.

I actually posted this in the Coping With section originally because I didn't know where the best place for this was either. But it got moved here by a mod. It's funny that someone else thought that Coping With was a better area than this. But most people here just go to view new posts anyway, so I'm sure most people will see it.

I'm like you Guhlia. I can think of all sorts of ideas, but following though, organizing and all that stuff is just more than I can do right now.

Lorka, catering the event would be amazing. My mouth is already watering...

Okay, more ideas from me.

Try to find at least one or two mainstream food manufacturer to send a representative at the very least. Maybe if they seem interested when we contact them, we could even see if they would be willing to create or modify a product to be gluten-free, and test market it at the convention. Imagine gluten-free Campbells soups or gluten-free Ranch Dressing. Mmm.... Suggest that they offer it by internet order at first, since most of us order our gluten-free foods that way anyway.

Special invitation to General Mills for starting to put out gluten-free Trix and Cocoa Puffs. (Read those labels though, they're not everywhere yet).

Booths, booths, booths for established gluten-free companies, and discounted prices for booths for people who have celiac / gluten intolerance and are thinking about starting (or started) a small or local business that they want to market.

I would love to find a reasonably-priced hotel company that always has in-house restaurants that would be willing to really go all out to provide gluten-free food, and develop a permanent gluten-free menu. I haven't traveled much in recent years, but I don't think Holiday Inn always has a restaurant. My main idea with this being that wouldn't it be nice when traveling to know that Hotel XYZ always has a gluten-free menu and trained staff, and it's a safe place to stay for us.

Nancy

lorka150 Collaborator

I live down the street from a market that is really, really big on selling gluten-free stuff.

In addition, Sherk's is here, too.

MallysMama Explorer
I can't cook well enough with or without gluten to enter a cooking contest but I'm all about a conference and if I can swing it I'll be there. What about Chicago as a centralized location? CA is too far for most (I think) but Chicago is fairly central and always has lots of great hotel offers for groups. I may be able to help with planning starting this summer. Until I'm snowed under with work and learning my new lifestyle.

Also, some Celiac awareness group (maybe GIG) meets each year for a conference but it's always in Salt Lake City which is NOT centrally located in the US.

They have a conference in SLC?!?! When?? Do you have a website with GIG's info on it? I used to live in SLC...then moved to St.George, Utah (4 hours south)....now in Vegas (2 hours south of that)....so it's not TOO far for me! I would love to go to some type of convention! Unfortunately I doubt I'd be able to travel far - with a toddler in tow (not sure I'd leave her and go that far yet). But, if someone could clue me in to that conference in SLC thag GIG does, I'd really appreciate it!

kevsmom Contributor

What about Baltimore? Maybe the University of Maryland Center For Celiac Research would be interested in organizing something like this. Just think of all the data they could collect with all of us in one place.

Cindy

  • 2 weeks later...
tiredofdoctors Enthusiast

Okay, this is WAY too weird. My son asked me today if it would offend me if he organized a convention here for all my gluten-friends on the forum. He said it would be a get-together with nothing but STRICT gluten-free food (he is an EXCELLENT cook), and he wanted to get as many people as he could to get together. He wanted ideas for getting something started. I'll ask him if it's okay to publish his e-mail address, and if you want to start giving him ideas, he'll get the ball rolling. He was so jazzed about the idea. Weird that it happened the day that I get to use the computer and see this, huh? (Actually, it kind of freaked me out when I read the title -- it was that "goosebumps" moment -- think "Twilight Zone" music in your head!)

Guest BERNESES

I'm THERE! Anywhere. I would be willing to help organize, whatever. I think Chicago would be great because it's sort of a midway point, but I think U of M in Baltimore might really have an interest in doing something like this. Let me know if you want to start a letter writing campaign. I'd be happy to write to them. :)

Lynee- Where are you? I know you'e south of me but I forget where.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.