Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Bad Muscle Aches And Joint Pain!


KurlyKat

Recommended Posts

KurlyKat Newbie

I was diagnosed two years ago and have been following gluten free however, I'm not sure if I am getting hidden gluten when I eat out and this is causing me problems for the last 5 months? I partially tore a bicep hamstring tendon in Jan and it is still not fully healed. From that I have severe muscle soreness in my right arm and hand, even my two middle fingers don't bend! All this pain on my right side only. I have always been active and had no problem with muscle strength, I am a gym rat and I lift weights. I went to a nutritionist and she put me on Metagenics Inflamax which is designed for Celiac patients in mind. I have an appt for a followup with a new gastroenterologist next week. This is really frightening me. I also don't sleep well and in the morning I can hardly move, i ache allow over. anyone have any similar pain?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

How much stretching do you do? You need to do lots of it, before and after exercise. It is wise to start and end your day with a stretching routine.

Link to comment
Share on other sites
Bromo Newbie
I was diagnosed two years ago and have been following gluten free however, I'm not sure if I am getting hidden gluten when I eat out and this is causing me problems for the last 5 months? I partially tore a bicep hamstring tendon in Jan and it is still not fully healed. From that I have severe muscle soreness in my right arm and hand, even my two middle fingers don't bend! All this pain on my right side only. I have always been active and had no problem with muscle strength, I am a gym rat and I lift weights. I went to a nutritionist and she put me on Metagenics Inflamax which is designed for Celiac patients in mind. I have an appt for a followup with a new gastroenterologist next week. This is really frightening me. I also don't sleep well and in the morning I can hardly move, i ache allow over. anyone have any similar pain?

I was Diagnosed about 2 months ago. I try to be very careful and eat GLUTEN Free, (I do not cheat). I have muscle aches and soreness also. It started on my left side, knees, hips neck now it is all over. I went to the Family doctor and she does not know much about Celiac Disease. I talk to the stomach dr and he did not think much about it either. I have also gained about 15 lbs in 1 1/2 months, and he did not think much about that either. I have been going the gym 3 to 4 days a week for 2 years now and have never felt like this. I also have trouble sleeping. I starting to think I am depressed. Not sure what kind of doctor to go to next. Please let me know if you get an answer!!!

BROMO

Link to comment
Share on other sites
KurlyKat Newbie
I was Diagnosed about 2 months ago. I try to be very careful and eat GLUTEN Free, (I do not cheat). I have muscle aches and soreness also. It started on my left side, knees, hips neck now it is all over. I went to the Family doctor and she does not know much about Celiac Disease. I talk to the stomach dr and he did not think much about it either. I have also gained about 15 lbs in 1 1/2 months, and he did not think much about that either. I have been going the gym 3 to 4 days a week for 2 years now and have never felt like this. I also have trouble sleeping. I starting to think I am depressed. Not sure what kind of doctor to go to next. Please let me know if you get an answer!!!

BROMO

Link to comment
Share on other sites
Nancym Enthusiast

Just FYI I had joint aches all over, jaw, wrists, fingers, feet, knees, hips, back, etc... and muscle aches and spasms and tendonitis. I was diagnosed with an autoimmune arthritis called ankylosing spondylitis and put on a drug called sulfasalazine and I'm feeling much, much better!

The way I got diagnosed is I made a list of all the weird little symptoms and things that had been bugging me and went to my doctor. I made the suggestion that I might have an autoimmune condition, they did the blood tests and figured out which one it was. I just knew that I shouldn't be aching and hurting so much and I was right!

Link to comment
Share on other sites
gabby Enthusiast

I looked up the product you're using and found a website that listed the ingredients which included Natural Flavors. Sometimes natural flavors include gltuen. It is worth calling the company and asking them straight up if their natural flavors are gluten free. Sometimes a product can say that it is free of gluten, but what it really means is that they themselves did not add any gluten...but it might already be present in some other ingredient (like natural flavors).

It is worth a shot to check it out. Let us know what they say

Best of luck.

Link to comment
Share on other sites
key Contributor

It could be eating out. I almost always get gluttened when eating out. I just dont' eat out hardly ever! I get fatigue and bone pain when I am gluttened. THis was a MAJOR problem before I found out I had celiac. I was exhausted. I am fine now though. I would try and take a break from eating out for a while and see if you feel better. Hopefully it will pass. I am doing much better now.

Monica

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



whitball Explorer

I have had muscle pain for most of my life. The pain at times was excruciating. Muscle fatigue did not start affecting me until my early 30's. The most frustrating thing about these symptoms, is that it is hard to figure out the source of the problem. I spent nearly 15 years trying to find a reason for why I could not run more than 50 feet without experiencing muscle failure. I've had emg's, mri's, blood tests, biopsies. What I learned from all of this is that not too many people will listen, and lots of people think it's in our heads. But, finally, someone did and tested me for Celiac disease. I have not had large muscle pain for almost three months after going gluten free. My advice to you is to keep asking the questions and if you do not get the answers to solve the problem, find another doctor. Talk to your doctor about pain and how to manage it. My doctor has helped me with a variety of different options. Good luck! Tara

Link to comment
Share on other sites
BoulderEm Newbie

could be fibromyalgia too....

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,189
    • Most Online (within 30 mins)
      7,748

    Carol Fletcher
    Newest Member
    Carol Fletcher
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Yes, wheat is common in most soy sauces now because it speeds up the fermenting process.
    • JoeBlow
      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
×
×
  • Create New...