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Language Delay Connection?

sore joints

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sore joints Apprentice
sore joints
Posted

Hi everyone!

I am newly diagnosed and I'm wondering what to do about my kids. Neither has any symptoms. My daughter who is 21mths is low on the weight chart (3rd percentile) and is speech delayed. Do any of you know if there is a connection between language delay and celiac disease?

Alison

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GFBetsy Rookie
GFBetsy
Posted

Hello, and welcome!

I don't think that there is yet much substantiated research on this topic. There does seem to be some anecdotal evidence that SOME children (not all, by any means) do have such problems. You could check out the "Success Stories" at Open Original Shared Link. This site specifically addresses children with Autism Spectrum Disorders, but slow acquisition or loss of speech is one of the "symptoms" of autism.

The University of New York at Rochester is currently engaged in scholarly research on this topic (ie, whether a gluten-free, casien-free (the protein in milk) diet helps autistic children). (Doggone it! They took my Doctorate research idea away from me!) I think they've just barely started their study, though, so they may not be able to give you much more "substantiated" information than the gfcfdiet site.

Hope this information is helpful (even if it doesn't apply "completely" to your daughter's situation).

Beyond the speech delay information, though, gettting your children tested is a good idea. Research (someone correct me if I've got the numbers wrong) has shown that your children have about a 1 in 10 chance of having this disease because they've got a first degree relative (mom or dad) who has it. They probably should have their blood work done once every couple of years (if it comes back negative, that is), because celiac can be triggered later in life. (Great emotional, mental, or physical stress seems to make it "kick in" for some people.) And your daughter's low place on the growth charts could easily be an indication that she's got problems with gluten.

Good luck!

evie Rookie
evie
Posted
Hi everyone!

I am newly diagnosed and I'm wondering what to do about my kids. Neither has any symptoms. My daughter who is 21mths is low on the weight chart (3rd percentile) and is speech delayed. Do any of you know if there is a connection between language delay and celiac disease?

Alison

Alison; Do not have specific info for you but does sound like a possibility. I am a great grandma and we have 2 of them in same family who I am wondering about but not that specific a reason to suggest tests for them. I am sure there will be someone on who will have a better answer for you. :) Hang in there, you will find scads of help on this forum, I hope you are doing alright yourself. It is so typical that you have learned things about yourself and now are wondering about your dd. I have done the same, 1 of our three grown dd's has gotten tested and came out with a no amswer, the other 2 tell me they plan that too. wish you well, I have gotten a lot of good help here since mid Feb,06. evie :)

mythreesuns Contributor
mythreesuns
Posted

I'm actually curious about this as well. I'm still in the process of determining whether or not gluten is my issue (awaiting EnteroLab results) but I know that celiac can trigger neurological problems in some, and all 3 of my boys have neurological differences.

My oldest and middle child have had constipation/diarrhea issues, which I had at the time thought was behavioral (one is asperger's, one is OCD and tourette's) and my youngest (just 2) has had diarrhea on and off (noticed more with potty training) and he has a speech delay that we are finding out is neurologically based.

However, all my children are healthy weights. The first was 35 lbs at 18 mos, and at 12 is now about 120. My middle son is a smaller build, but he is not skinny. The little one is 2 3/4, and is probably over 40 lbs at this point. All 3 of them are tall, according to the "charts."

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    • trents
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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