Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disney Veterans


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

Dh and I are tossing around vacation ideas.....we haven't ever had a family vacation. The past few years have been more than rough, and now that things have settled down, and our youngest child will be 3 this summer, I feel like a vacation is in order.

We had originally thought of just renting a beach house, but since we are all (except dh) gluten free, I'll still have to cook each meal, pack a ton of food if we leave the house, etc. That really wouldn't be much of a break for me. I've read such great reviews about Disney here, and the prices seem the be similar to renting a beach house anyway. Being able to eat out as a family, and not spending most of my day in the kitchen would be amazing.

But where to stay? Does anyone have a favorite hotel, or most kid friendly hotel? We really want to make this all about the kids....they are the perfect ages, 3-10. After all they have been through, I feel like we all need some time to just have FUN!

Thanks for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

We have stayed at regular hotels off the Disney property. I make sure there's a microwave and fridge in the room for nighttime snacks. We do the Disney parks every other day. Those days that we don't do Disney parks we eat simple foods like gluten free cereal for breakfast, fruit for snacks, hot dogs and steam-in-bag veggies for lunch, gluten free crackers or such for snack, and then we do Downtown Disney (free entrance and parking) for dinner. The Portabello Yacht Club has fabulous gluten free food and if you call ahead they'll make sure they have Tinkyada pasta for you. :) Mmmmmmm.....

There's a Wild Oats or Trader Joe's or Wegmans or something just outside Orlando. I generally try to stick mostly to naturally gluten free foods though, they're easier to find. I bring my gluten free cereal and crackers from home. This is easier to do if you're driving rather than flying.

Disney parks are AMAZING for Celiacs. They actually get it. Just make sure you're careful. If something looks too "real" to be true, it probably is. Always double check and ALWAYS ask for the manager at counter service places.

Enjoy yourself! You will have a blast!

Sailing Girl Apprentice

DD and I go to Disney *frequently* (my parents live fairly nearby, and we visit Disney and then visit Grandma and Granddad). I agree -- Disney "gets it," and it's pure pleasure to go there.

We've stayed both on property and off-site, and I much prefer to stay on property -- you get a variety of perks that way, including extra hours in the parks, free transportation to the parks (don't have to worry about paying for parking!), and the Disney Dining Plan. The basic dining plan gives you two meals a day (one table service and one counter service), plus a snack, for around $40 per adult per day and $10 per child -- it's a good deal, especially given that every restaurant actually has food we can eat!

*All* the Disney-owned hotels are kid-friendly -- have a look around on their site and see some of the pretty amazing themes. They're also offering some good deals right now (recession pricing). Your kids are just the right ages -- they'll have a blast!

Can you tell I love Disney??? Post any other questions you have, and I'll be happy to point you in the right direction!

lovegrov Collaborator

Staying off property is somewhat cheaper but if you an afford it, staying on property is MUCH more convenient.

richard

dlp252 Apprentice

I stayed at Port Orlean's in Disneyworld. They don't have a table service restaurant, but the food court had a head chef who was VERY helpful for me. They can make gluten free pancakes with real maple syrup. They were very knowledgeable about food allergies and about celiac.

In Disneyland, we stayed off property...fortunately I had good luck with that except for one day, but we ate mostly in the park anyway, and that was also a good experience.

glutenada Newbie

We're taking our 4th annual trip to Disneyland January 25-31. We buy the City Pass and will spend 3 days at DL, 1 at Universal, and 1 day at The Wild Animal Park near San Diego.

This year we're staying at the Homewood Suites. All rooms have kitchens so I can cook up breakfast and dinner there.

I LOVE going to Disneyland. The first year there I ate my way through each day. I was 2 years into being gluten-free and it was simply amazing that there were gluten-free options for me. Pizza, burgers, fries, etc. Yummers!

I'm not sure what DWorld area is like, haven't been there in years, but in the years we've been going, the places with the kitchen are comparable to non-kitchen hotels and allow for saving money on eating out as well as a way to eat gluten-free when not at DL.

Have fun!!

nothungry Contributor

We go to a beach house every year and it is not relaxing at all...too much cooking and fussing!

We have been to WDW a few times in the past years and it is dreamy! They really take care of you there. We have stayed in a few resorts, but the value resorts have been great (from $80 a night, depending on the season, and cheaper when they are running promotions). So, it can be affordable. Even the food courts at the value resorts prepare pancakes, pasta, waffles, homemade chicken tenders etc. for us. We loved POP century, and All Star Music and All Star Sports (value resorts) and we stayed at Saratoga Springs also. It has more adult theming. The All Stars and POP century are decorated very fun and very much in the spirit of Disney! Kids can really appreciate it! (Adults too!) We also like that onsite you don't have to pay for parking ($12 per day) and you don't necessarily need a car onsite because of their transportation system. Have a great trip!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
CeliacMom2008 Enthusiast

We are huge Disney fans! We are going again over spring break just for the restaurants. We're staying on the property, but we will not be going to the parks this trip (too crowded for our tastes).

Where to stay?? There are so many good options!

The All Star resorts are great if you're on a budget or if you plan to spend most of your time at the parks. The pools are nice, but not as fancy as the more expensive ones. But with little little ones, things like water slides may not be appealing anyway, so the All Star pools would be more than fine.

Saratoga Springs is very nice with great pool. It also has a ferry boat that can take you over to Old Key West or Downtown Disney. When my little guy was a toddler boat rides, busses, and the monorail were his favorites! So much for the expensive park tickets!!

I wouldn't recommend Old Key West. It is a golfers resort and not all that kid oriented. My son has said it's his least favorite.

Want a beach? Carribean Beach Resort is really nice. Nice pool and wonderful sand beaches and playgrounds. You can rent bikes the whole family can fit into (one big bike with bench seats) or paddle boats. There is very nice hammock area next to playground equipment off a tropical trail that is really relaxing and feels very tropical.

We thought we'd need a kitchen, but you really don't. The people at Disney really do understand gluten free. You can eat out every single meal and not worry one bit. You'll have all sorts of selection (chefs come out and ask you what you feel hungry for and they try very hard to accomodate you - we have loads of positive stories about this).

You can eat at fancy sit down restaurants, family sit down restaurants, buffets (I was nervous to try buffets, but you needn't be. The chef walks the buffet with you and tells you what you can have and then you tell them what you want and they get fresh from the kitchen to avoid the possibility of CC.), walk up restaurants in the parks, Main Street Bakery in Magic Kingdom even sells gluten-free cookies, brownies, and rice crispy treats.

Go, go, and have a relaxing, wonderful eating experience...ummm, I mean vacation! B)

Sin3str0 Rookie

I'm so happy to have read this thread. One of my favorite places to go is Disney World and recently with finding out I have Celiac and could not eat all the delicious yummies there made me sad. Now I can go to Star Wars weekends with no worries. :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.