Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disney Veterans


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

Dh and I are tossing around vacation ideas.....we haven't ever had a family vacation. The past few years have been more than rough, and now that things have settled down, and our youngest child will be 3 this summer, I feel like a vacation is in order.

We had originally thought of just renting a beach house, but since we are all (except dh) gluten free, I'll still have to cook each meal, pack a ton of food if we leave the house, etc. That really wouldn't be much of a break for me. I've read such great reviews about Disney here, and the prices seem the be similar to renting a beach house anyway. Being able to eat out as a family, and not spending most of my day in the kitchen would be amazing.

But where to stay? Does anyone have a favorite hotel, or most kid friendly hotel? We really want to make this all about the kids....they are the perfect ages, 3-10. After all they have been through, I feel like we all need some time to just have FUN!

Thanks for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

We have stayed at regular hotels off the Disney property. I make sure there's a microwave and fridge in the room for nighttime snacks. We do the Disney parks every other day. Those days that we don't do Disney parks we eat simple foods like gluten free cereal for breakfast, fruit for snacks, hot dogs and steam-in-bag veggies for lunch, gluten free crackers or such for snack, and then we do Downtown Disney (free entrance and parking) for dinner. The Portabello Yacht Club has fabulous gluten free food and if you call ahead they'll make sure they have Tinkyada pasta for you. :) Mmmmmmm.....

There's a Wild Oats or Trader Joe's or Wegmans or something just outside Orlando. I generally try to stick mostly to naturally gluten free foods though, they're easier to find. I bring my gluten free cereal and crackers from home. This is easier to do if you're driving rather than flying.

Disney parks are AMAZING for Celiacs. They actually get it. Just make sure you're careful. If something looks too "real" to be true, it probably is. Always double check and ALWAYS ask for the manager at counter service places.

Enjoy yourself! You will have a blast!

Sailing Girl Apprentice

DD and I go to Disney *frequently* (my parents live fairly nearby, and we visit Disney and then visit Grandma and Granddad). I agree -- Disney "gets it," and it's pure pleasure to go there.

We've stayed both on property and off-site, and I much prefer to stay on property -- you get a variety of perks that way, including extra hours in the parks, free transportation to the parks (don't have to worry about paying for parking!), and the Disney Dining Plan. The basic dining plan gives you two meals a day (one table service and one counter service), plus a snack, for around $40 per adult per day and $10 per child -- it's a good deal, especially given that every restaurant actually has food we can eat!

*All* the Disney-owned hotels are kid-friendly -- have a look around on their site and see some of the pretty amazing themes. They're also offering some good deals right now (recession pricing). Your kids are just the right ages -- they'll have a blast!

Can you tell I love Disney??? Post any other questions you have, and I'll be happy to point you in the right direction!

lovegrov Collaborator

Staying off property is somewhat cheaper but if you an afford it, staying on property is MUCH more convenient.

richard

dlp252 Apprentice

I stayed at Port Orlean's in Disneyworld. They don't have a table service restaurant, but the food court had a head chef who was VERY helpful for me. They can make gluten free pancakes with real maple syrup. They were very knowledgeable about food allergies and about celiac.

In Disneyland, we stayed off property...fortunately I had good luck with that except for one day, but we ate mostly in the park anyway, and that was also a good experience.

glutenada Newbie

We're taking our 4th annual trip to Disneyland January 25-31. We buy the City Pass and will spend 3 days at DL, 1 at Universal, and 1 day at The Wild Animal Park near San Diego.

This year we're staying at the Homewood Suites. All rooms have kitchens so I can cook up breakfast and dinner there.

I LOVE going to Disneyland. The first year there I ate my way through each day. I was 2 years into being gluten-free and it was simply amazing that there were gluten-free options for me. Pizza, burgers, fries, etc. Yummers!

I'm not sure what DWorld area is like, haven't been there in years, but in the years we've been going, the places with the kitchen are comparable to non-kitchen hotels and allow for saving money on eating out as well as a way to eat gluten-free when not at DL.

Have fun!!

nothungry Contributor

We go to a beach house every year and it is not relaxing at all...too much cooking and fussing!

We have been to WDW a few times in the past years and it is dreamy! They really take care of you there. We have stayed in a few resorts, but the value resorts have been great (from $80 a night, depending on the season, and cheaper when they are running promotions). So, it can be affordable. Even the food courts at the value resorts prepare pancakes, pasta, waffles, homemade chicken tenders etc. for us. We loved POP century, and All Star Music and All Star Sports (value resorts) and we stayed at Saratoga Springs also. It has more adult theming. The All Stars and POP century are decorated very fun and very much in the spirit of Disney! Kids can really appreciate it! (Adults too!) We also like that onsite you don't have to pay for parking ($12 per day) and you don't necessarily need a car onsite because of their transportation system. Have a great trip!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
CeliacMom2008 Enthusiast

We are huge Disney fans! We are going again over spring break just for the restaurants. We're staying on the property, but we will not be going to the parks this trip (too crowded for our tastes).

Where to stay?? There are so many good options!

The All Star resorts are great if you're on a budget or if you plan to spend most of your time at the parks. The pools are nice, but not as fancy as the more expensive ones. But with little little ones, things like water slides may not be appealing anyway, so the All Star pools would be more than fine.

Saratoga Springs is very nice with great pool. It also has a ferry boat that can take you over to Old Key West or Downtown Disney. When my little guy was a toddler boat rides, busses, and the monorail were his favorites! So much for the expensive park tickets!!

I wouldn't recommend Old Key West. It is a golfers resort and not all that kid oriented. My son has said it's his least favorite.

Want a beach? Carribean Beach Resort is really nice. Nice pool and wonderful sand beaches and playgrounds. You can rent bikes the whole family can fit into (one big bike with bench seats) or paddle boats. There is very nice hammock area next to playground equipment off a tropical trail that is really relaxing and feels very tropical.

We thought we'd need a kitchen, but you really don't. The people at Disney really do understand gluten free. You can eat out every single meal and not worry one bit. You'll have all sorts of selection (chefs come out and ask you what you feel hungry for and they try very hard to accomodate you - we have loads of positive stories about this).

You can eat at fancy sit down restaurants, family sit down restaurants, buffets (I was nervous to try buffets, but you needn't be. The chef walks the buffet with you and tells you what you can have and then you tell them what you want and they get fresh from the kitchen to avoid the possibility of CC.), walk up restaurants in the parks, Main Street Bakery in Magic Kingdom even sells gluten-free cookies, brownies, and rice crispy treats.

Go, go, and have a relaxing, wonderful eating experience...ummm, I mean vacation! B)

Sin3str0 Rookie

I'm so happy to have read this thread. One of my favorite places to go is Disney World and recently with finding out I have Celiac and could not eat all the delicious yummies there made me sad. Now I can go to Star Wars weekends with no worries. :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.