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When Should I Try? Help


L13

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L13 Rookie

I just got my biopsy and pretty sure it will come back positive. Haven't heard anything yet. I miscarried at the beginning of the this year (March 09) and was 8.5 weeks. I didn't know that it could have been b/c of celiac disease.

I am concerned b/c I have a 3.5 & 5.5 year old and want another child. We were already supposed to start trying. I read 2 months of Gluten-Free and you could try again. Has anyone heard that? My doctor is saying 5-6 months from now. I know to him that is not a big deal but it is to me. However, if it means not another miscarriage - or other issues then it is worth it. I just don't know if I want to wait and if we "have" to I may be done. I don't want a large span of time b/w kids. I have 2 sisters and we are very close whereas my husband has 2 siblings and they don't even talk about they are 5 years apart. I know each family is different and there are so many stories but I want them to share growing up together. I don't know I am annoyed and confused. He is also saying he wants to do ANOTHER biopsy to check my status after those 5-6 months. Can't he just do another blood screening. I think that is a LITTLE invasive! :angry:

  • 3 weeks later...

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brigala Explorer

I would wait the 5-6 months. The first couple months gluten-free are just a learning period. You'll be making a lot of mistakes and still getting gluten during that time. Also, if you are going to consent to your doctor's suggestion of a follow-up biopsy (this is standard, by the way, and I think it's important), it would make sense not to be pregnant when you go in for the biopsy.

Your best chance of a healthy pregnancy will be if you are both well-established in the gluten-free diet to minimize your exposure to gluten during pregnancy and also if your gut is well-healed enough to be able to absorb the nutrients you need from your food. This is why there are two good reasons for waiting -- one for establishing yourself on the diet and the other because you can check the intestines for a "status report" to see how well they're doing.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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