Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take For The Muscle Weakness/Pain To Go Away?


capit

Recommended Posts

capit Newbie

The achy joints and sore muscles are going away. I've been off gluten for two weeks after a gluten trial which really did me in, but I'm impatient!

How long did it take you to get back to normal after ditching gluten? Did any of you end up feeling even stronger than before? (admittedly, that's what I'm hoping--I'd had a gluten-free period before the gluten trial, and it felt so good).

Did your iron levels improve?

And a question for long-distance runners--did the wall become much smaller/later after a while off gluten? I've run 6 or 7 marathons so far and had fueling problems with all of them except for one. I didn't carb load, didn't eat wheat the night before, no breakfast just juice, and had bananas, sports drink, and coffee during the race. No gels. And there was barely any wall, somewhere around mile 22 I felt kind of tired all of a sudden, but it went away after a few minutes. During all the other marathons, I'd hit the wall early and permanently, from mile 11 to 16. I didn't make the carb/wheat connection until recently. Wish I'd known about that earlier. lol

These days, my 'tough' runs are just 40 min jogs, but I'm recovering, I think. My mileage is still under 20 miles/week...used to be 50-60+, but a few weeks ago it was under 10 so I'm getting there slowly and surely. I'm hopeful and curious to know how it's been for other runners.

cheers!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katinagj Apprentice

I may not be much help. I am not a runner, but have always wanted to be. My joint pains and issues were holding me back most of my life as well as breathing problems that seem to be getting better this past week. I've only been gluten free for about two weeks, and it seems that for the most part my joint pains are gone. I actually feel like I could finally start running! I also do in fact feel A LOT stronger. So it is definitely a possibility for you! Good luck :)

capit Newbie

Thank you, and best wishes for your recovery!

I've had gut/absorption issues for years, and they interfered with running and daily life quite a bit but there were ways around that. I ran in the woods or planned my routes around bathrooms. When things got really unpredictable, I was told I had IBS and was prescribed Bentyl...at any rate, throughout all this, my muscles and joints felt fine. Wheat made me drowsy though so I gradually reduced my intake over the years. Then I had to eat it every day for the blood tests and after a few weeks, those aches started, and they were getting worse and worse. That took me by surprise. I never expected to feel arthritic! I just thought I was going to be pooping more.

I gave up wheat 25 days ago (and have had only one slip up at a restaurant, lol)....already it's made a huge difference. I still have a few sore joints, mainly in my fingers and one in my right foot, but running has become a lot better. I was down to running 15 minutes once or twice a week and it was very painful (worse than any marathon I've run--it felt like I had already run a marathon!), and now I can jog comfortably for 40 minutes, and I even jogged for 1.5 hrs last weekend because it felt so good.

So I really really hope that things go as well for you and that you can take up running. You'll have to start off slowly to avoid injury--there are plenty of learn-to-run programs out there. Most people start off by running intervals--jog 1 minute, walk 2 minutes (or more) and repeat. Eventually the running intervals get longer and the walking intervals get shorter. Let me know if you want more info or links.

dilettantesteph Collaborator

I am a super sensitive celiac. I was pretty athletic when I was younger, mainly skiing and ballet. I ran to condition for skiing. I got very sick before diagnosis and was unable to do much of anything. It would take me four days just to mow our 1/3 acre.

It took me almost a year to figure out the diet enough, and to heal enough, so that I could exercise like before. It's been two years now and I am training for a mini triathlon. I have a rowing machine and have records of my training times that go back 20 years, and now I am doing better than I was even 20 years ago when I had no idea that I was sick, despite being over 50 now.

One thing I've noticed is that strenuous exercise will really point out deficiencies (trace gluten) in your diet. I have had to be even more careful with what I eat. If I stay rigorously gluten free I have much less trouble with fueling that if not. When even slightly glutened I have all sorts of blood sugar level problems and get lightheaded and dizzy, problems with reflux, no energy, and just a plain inability to push. Rigorously gluten free, I can go and go. I'm sure that a whole marathon would quite another matter. I'm thinking dried fruit?

It is really wonderful to be able to exercise hard again.

  • 2 months later...
sb2178 Enthusiast

That's my question! I've been off running for almost 3 months now-- joint pain, digestive issues/uncertainty-- and am really hoping to be able to get back into it. Vaguely want to do a fall half or full marathon, but unless I can get the energy and feel confident that I won't be banging on someone's door to borrow a stranger's bathroom, it's not going to happen. Biking, meanwhile. Much easier to reach bathrooms ASAP :-).

Just started gluten-free three days ago, and feeling less pain. Not sure that removing gluten is the full diet (lactose, nightshades?) or that my kitchen is fully decontaminated yet, but hopefully will solve problems quickly.

Any general suggestions for distance fuel? I know Clif bar just created a gluten-free bar, and L'Arabar works, but what about Gatorade sorts of things?

tictax707 Apprentice

Gatorade & powerade are gluten free. Gu, gu chomps, and clif bloks are as well. I am really wary of consuming a lot of protein when you are out for long distances (ie - clif or larabars), but that's my personal fear. For longer distance stuff I have used a bite of purefit bar. (literally a bite - like 1/12 of a bar). There is also this stuff called Infinit. You can personalize everything - from the amount of carbs, caffeine, sodium/electrolyes, protein, and the strength of the flavor. it's a pretty cool concept. I think the website is infinit.com or something like that. Hope this helps!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    4. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    5. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,764
    • Most Online (within 30 mins)
      7,748

    Bonniecarbon
    Newest Member
    Bonniecarbon
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.