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Visual Disterbance/ Migrain - Lasting 4 Months Now

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Posted 04 May 2010 - 01:53 PM

Hi - I've been dealing with a 13 month migraine because of a strong antibiotic kicking it off and the possibility that I also have a gluten intolerance.

I have been getting acupuncture and taking chinese herbs from my acupuncturist for the last few months and its safe to say that my migraine is almost gone. I was at the point of not being safe enough to drive too. The acupuncture doesn't hurt one bit and it hashelped with so many other issues I've had. I reccomment it highly and I look forward to it each week...it is amazing and helps you feel wonderful!

Good luck!
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Gluten-free 4/25/10 (as a test run)

When you wholeheartedly adopt a "with all your heart" attitude and go out with the positive principle, you can do incredible things. -Norman Vincent Peale

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Posted 11 May 2010 - 07:00 PM

A little while after I went gluten free, I started getting migraines, dizziness, nausea, etc... Some lasted all the time, some came and went.

For me? It's other foods. I found out I have other food allergies - none of them cause this. But after keeping a food log, and cutting my foods down to the bone, so I barely ate anything, and nothing I hadn't made from scratch, I started noticing a pattern. Eating peanuts? I've got a migraine. Legumes? A migraine. Citrus? Earaches. And so on...

I've been to both a neurologist and an ear, nose and throat specialist, who both could find nothing. And who both essentially implied that it was all stress or in my head. Considering that I have had all these foods by accident, and had the same symptoms, I know it's not all in my head.

There's no test that has said what this is, or why, and I know that intolerance tests don't exist for these foods. But if I don't eat them? No migraines, no dizziness, all gone.

And if I accidentally get them, wham, back comes the bad stuff. I honestly don't know what the heck it's from, or why it's happening, although my GI doc says he's seen other celiacs develop this kind of 'sensitivity' before, and that it usually goes away within a couple years of staying away from the foods. I'm only 8 months into it, so I can't say yet how that works. But...might be worth a shot, if nothing else works.

Hi all,

I was wondering if anyone has had a similar experience and if they found the root of the problem and/or a treatment (preferably a natural treatment - I'm nursing an infant).

I woke up one morning in the beginning of January not being able to focus unless I held my eyes and head very still. At first I just thought I was so tiered from lack of sleep for so long that I was just having a hard time coming out of the "sleepy fog". As the morning went on I realized that it was not getting any better and I was dizzy and nauseated.

I stayed so bad constantly for 12 days that I could hardly walk the 5 feet from my couch to the bathroom without feeling as though I would fall and lose my balance.

At about day 13 it started getting a little better, but did not go away and I had times of it being worse again. It has not completely gone away since and although it is not as extreme a lot of the time I still will have days when it is severe all day and most days I have a period of time (or several) when it is severe again.

I notice that if I get stressed it makes it worse, but sometimes it's worse without me noticing that I am any more stressed than usual (I do seem to be in a constant state of stress to some degree).

Has anyone else had a similar experience?

And if you have, how do you describe it? I have had a very hard time describing what it is like.

Thanks for any help/advice. I really appreciate it.

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Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 


Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive



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Posted 14 May 2010 - 07:45 PM

I saw my neurologist yesterday and all the tests i had came back okay. (I had an MRI, nerve testing and some blood work for other various diseases) The test for lupus came back "borderline", but the doc told me that it fell withing normal ranges, so it was nothing to worry about - whatever that means :huh:.

I talked with him about taking Tyramine out of my diet for the migraines that I have been having, and also I asked about having vitamin levels tested - especially B12. He conceded and ordered B12, Folate, Methylmalonic Acid, and vitamin A level. He also gave me a list of foods that contain tyramine and said that it would be okay to try taking that out of my diet for now and see what happens.

I'm a little unhappy with him for not suggesting the tyramine thing in the first place - especially because I specifically asked if there was something we could try first with diet or whatever, before trying medication.

We will see, I may be looking for a new doc.
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Posted 14 May 2010 - 07:58 PM

T.H., thanks for sharing your experience. It could be something like that for me too. I have cut out a ton of things from my diet: night shades, legumes, the cabage family, all nuts, etc... And I am just adding back in corn and rice to see if I can tollerate them.
So I am down to not many food items.

I may try cutting out more if this other stuff doesn't work.
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