Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kicking In My Sleep


Fire Fairy

Recommended Posts

Fire Fairy Enthusiast

It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judy3 Contributor

It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?

I don't know if you need to be worried, it's more annoying than harmful I think. Don't know what causes it. I've had that same thing for my whole life and then was put on strong medication for it but now I'm off of that and doing fine thanks to a new chiropractor in my life. :) I can't contribute mine to gluten but who knows. The gluten seems to have affected everything else!!

Good Luck

kareng Grand Master

I don't know what causes this. My hub has it occcasionally so he has read about it a little. Seems it could be a vitamin deficiency (potassium?) or a lack of exercise or s sypmtom of mental illness. For him, exercise seems to help.

domesticactivist Collaborator

My partner had this problem. She also improved gluten-free then it came back. We're pretty sure it's due to mg deficiency. It resolves when she remembers to take her concentrace mineral drops.

domesticactivist Collaborator

Potassium and calcium deficiencies can also relate to muscle spasms

yorkieluv Newbie

It sounds like restless leg which can be caused by a low iron. I was having really bad restless leg and my iron was extremely low but once my iron started coming up it got better. My doctor is the one who said it can but not always can be because of a low iron.

Hope this helps!

Fire Fairy Enthusiast

Hmmm I think it is the Iron. At least it would make a lot of sense.

Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
Neshema1 Newbie

Pls read my post under darn forgot!

Neshema1 Newbie

On thread "hope this helps"

Korwyn Explorer

It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?

Both soy and gluten will trigger my RLS. By the way, I know the author of your signature quote: my mother! :blink: :blink:

tarnalberry Community Regular

It's worth being evaluated to see if it's actually restless leg, if you try other things and they don't help. I have RLS (though it's 90% ok right now). If it's a nutritional deficiency, it most often is low iron (but you do not want to supplement without checking your levels first - high iron is a problem too), but magnesium, calcium, and potassium often play a role. Potassium deficient leg cramping is different from RLS (feels different), but I'm not sure how I'd describe the senstaions if you haven't experienced them.

bartfull Rising Star

This is going to sound crazy but please try it! Put a bar of soap under the bottom sheet near your legs. Your restless legs will rest! I heard about this on a show called "The People's Pharmacy" on National Public Radio. As a matter of fact, they have mentioned this topic several times and all of the folks who call in to the show, and even the hosts of the show, swear it works.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.