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Having A Celiac Break Down

valeriek

By valeriek
in Coping with Celiac Disease

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valeriek Apprentice
valeriek
Posted
  • Author

Thank you every one so much. You have all given some GREAT IDEAS and hope. Is there really a diet that will cure this?

Valerie :lol:

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Skylark Collaborator
Skylark
Posted

Rudi's and Udi's are both soft and have the right texture for bread. They're not crumbly like some gluten-free breads. Everything I've tried by Udi's has been good. Their cinnamon rolls are wonderful, the muffins good (a little sticky since they're frozen), and I just got a package of snickerdoodle cookies that were great. I just tried Multigrain Rudi's and it's really good too.

Glutino makes bagels that I like, though they're lighter than wheat ones. I get them sometimes as a treat and have them with lox and cream cheese. If you're wanting donuts, go for Kinniknnick. Glutino has cookies that are just like Oreos, called dream cookies.

I don't eat a lot of the gluten-free specialty foods because they're expensive. I have a rice cooker that I use a lot, and it's really easy to bake a potato in the microwave.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Hi

I just am a night owl. I eat the cool ranch doritos that are gluten-free. And the candy I eat is gluten-free. So the bread really is good? I bought some bread 1 time that weighed 5 pounds and horrible. I will try it. Thanks so much

There are lots of horrible gluten-free breads out there, but don't let that stop you from trying another type or brand. Udi's or Rudi's seem to be the favorites on this board. I've also heard Katz is pretty good but I haven't tried that one. gluten-free breads will not be exactly the same as gluteny bread but if you toast them (or make a grilled cheese) they are really close.

Another of my favorite products is King Arthur gluten-free flour. If you can find it where you live you have to try to make their pizza crust recipe. Open Original Shared Link

It does take a lot of time to wait for the rises but it's so worth it. This is one of my fovrite crusts.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Also do you have a crock pot? Check out this blog: Open Original Shared Link

Everything she makes is gluten free.

Some of my favorites are:

Orange Chicken

Turkey and wild rice soup

Salsa chicken

Chicken lettuce wraps

Lamb with Rosemary and Lemon

Meat loaf

fajitas

Tortilla soup

And those are just the ones that don't require cheese or soy sauce because I can't have cheese or soy. If you can have cheese and soy you've got a ton of more options!

kareng Grand Master
kareng
Posted

My god....can i come to your house to eat? Thank you so much. You are great.

Valerie

Nothing I made is complicated as I am very lazy. We eat a lot of the same things we ate before gluten-free.

I like to cook extra so I can have lunch or left overs. Left over chili is great on nachos, or to dip chips, taco salad, on a baked potato. Make a bunch of rice and grill up chicken & freeze in little baggies to use for many things. Frozen veggies are easy to add to the rice, chicken, canned black beans. You can get corn, rice or Teff tortillas & make Quesidillas, ham & cheese, etc.

Korwyn Explorer
Korwyn
Posted

Our dinner on Sunday was fried red potatoes, fried chicken gizzards, hearts, and livers lightly breaded in a flour blend (sorghum, brown rice, and white rice), seasoned with garlic powder, sea salt, and paprika, dipped in freshly cultured raw milk sour cream, and a salad.

*hangs head in shame* Yes, I know it wasn't GAPS or paleo compliant, but it was Father's Day, and I WANTED gizzards dang it! :P I did pay for it with a carb hangover all of yesterday though.

Dinner tonight will be at our local GiG meeting. I'm bringing mexican brownies made from Open Original Shared Link.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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