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Having A Celiac Break Down


valeriek

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valeriek Apprentice

Thank you every one so much. You have all given some GREAT IDEAS and hope. Is there really a diet that will cure this?

Valerie :lol:


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Skylark Collaborator

Rudi's and Udi's are both soft and have the right texture for bread. They're not crumbly like some gluten-free breads. Everything I've tried by Udi's has been good. Their cinnamon rolls are wonderful, the muffins good (a little sticky since they're frozen), and I just got a package of snickerdoodle cookies that were great. I just tried Multigrain Rudi's and it's really good too.

Glutino makes bagels that I like, though they're lighter than wheat ones. I get them sometimes as a treat and have them with lox and cream cheese. If you're wanting donuts, go for Kinniknnick. Glutino has cookies that are just like Oreos, called dream cookies.

I don't eat a lot of the gluten-free specialty foods because they're expensive. I have a rice cooker that I use a lot, and it's really easy to bake a potato in the microwave.

GlutenFreeManna Rising Star

Hi

I just am a night owl. I eat the cool ranch doritos that are gluten-free. And the candy I eat is gluten-free. So the bread really is good? I bought some bread 1 time that weighed 5 pounds and horrible. I will try it. Thanks so much

There are lots of horrible gluten-free breads out there, but don't let that stop you from trying another type or brand. Udi's or Rudi's seem to be the favorites on this board. I've also heard Katz is pretty good but I haven't tried that one. gluten-free breads will not be exactly the same as gluteny bread but if you toast them (or make a grilled cheese) they are really close.

Another of my favorite products is King Arthur gluten-free flour. If you can find it where you live you have to try to make their pizza crust recipe. Open Original Shared Link

It does take a lot of time to wait for the rises but it's so worth it. This is one of my fovrite crusts.

GlutenFreeManna Rising Star

Also do you have a crock pot? Check out this blog: Open Original Shared Link

Everything she makes is gluten free.

Some of my favorites are:

Orange Chicken

Turkey and wild rice soup

Salsa chicken

Chicken lettuce wraps

Lamb with Rosemary and Lemon

Meat loaf

fajitas

Tortilla soup

And those are just the ones that don't require cheese or soy sauce because I can't have cheese or soy. If you can have cheese and soy you've got a ton of more options!

kareng Grand Master

My god....can i come to your house to eat? Thank you so much. You are great.

Valerie

Nothing I made is complicated as I am very lazy. We eat a lot of the same things we ate before gluten-free.

I like to cook extra so I can have lunch or left overs. Left over chili is great on nachos, or to dip chips, taco salad, on a baked potato. Make a bunch of rice and grill up chicken & freeze in little baggies to use for many things. Frozen veggies are easy to add to the rice, chicken, canned black beans. You can get corn, rice or Teff tortillas & make Quesidillas, ham & cheese, etc.

Korwyn Explorer

Our dinner on Sunday was fried red potatoes, fried chicken gizzards, hearts, and livers lightly breaded in a flour blend (sorghum, brown rice, and white rice), seasoned with garlic powder, sea salt, and paprika, dipped in freshly cultured raw milk sour cream, and a salad.

*hangs head in shame* Yes, I know it wasn't GAPS or paleo compliant, but it was Father's Day, and I WANTED gizzards dang it! :P I did pay for it with a carb hangover all of yesterday though.

Dinner tonight will be at our local GiG meeting. I'm bringing mexican brownies made from Open Original Shared Link.

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    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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