Recovery Is So Up And Down. Anyone Else Struggle With This?
Posted 22 June 2011 - 06:50 PM
Posted 22 June 2011 - 07:47 PM
Real Diagnosis - Gluten & Casein (milk protein) Intolerance, Cross Reactivity to Yeast & Buckwheat
Recommend: Tests: Entero Labs Gluten Sensitivity & Gene Testing
Books: * Allergies by Dr. Carolee Bateson-Koch (digestion, yeast, parasites, body pH...)
* Why Do I Still Have Thyroid Symptoms by Dr. Datis Kharrazian (gluten & autoimmune problems)
* Change Your Brain Change Your Life by Dr. Daniel Amen (foods, supplements...)
Supplements: * digestive enzymes, * probiotics (dairy free - Klaire Labs - Pro5)
Posted 22 June 2011 - 11:31 PM
Posted 24 June 2011 - 05:09 PM
I suggest that you look for other food intolerances, visit other specialists and keep searching. I am sitting in a room having a breath test today-to see if I have SIBO and last week I had heaps of blood tests. My Dr said that not to place too much hope on a diagnosis since some autoimmune diseases don't show up on blood tests for years.
I am really sorry you feel so bad. Don't give up - keep hassling your Drs to keep an eye on your vit and mineral levels. In the meantime keep up your healthy gluten-free diet. Perhaps keep a food diary?
Thanks for your post. Please let us know how your recovery goes.
March 2010 Still Anaemic and very fatigued, abdominal pain still (Drs had thought it was related to abdom operation)
May 2009 Anaemic - had abdominal surgery; hysterectomy to remove large fibroid
March 2009 Vestibular neuritus (not sure if related but who knows!)
November 2008 Depression (still on meds - working well)
Posted 26 June 2011 - 11:49 AM
i do want to say, try to infuse your day with things that you love and enjoy and make you laugh. laughter is good medicine as they say.... give yourself some small things.....flowers, sketching, looking at beautiful art in books...or whatever it is you love. things that elevate the spirit. do something that is gratifying. doing something small but nice for someone else can help you be 'away' from your struggles for a small amount of time. maybe writing letters for Amnesty International or some other nonprofit/charity group who needs many, small actions. these could be done at your own pace while resting at home.
where i live, there are a lot of mountain bikers and i like one of their analogies for staying on the course and not wiping out, "look where you want to go". it's incredibly simple....but reminds one to pay attention and focused in order to not get distracted and stay in control (of what can be controlled). Maybe we can remain focused on those things that keep us in better spirits, in between the bouts of YUCK!
all the best to you! hang in there!
Negative blood test for Celiac 2011, but incomplete testing....
All recent: Soy, casein and egg sensitive. Peanut and Shellfish allergy.
Still learning about what all this means....
Barn's burnt down-
I can see the moon.
Masahide, Japanese poet, 1657? – 1723
Posted 27 June 2011 - 04:49 AM
Are you using a kitchen shared with gluten eaters? Can you make your own kitchen with a dorm fridge and microwave? Can you cut out processed foods and stick to produce and meat?
I hope you feel better soon.
Posted 28 June 2011 - 05:59 PM
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users