Why 3 Weeks Dizzy After Gluten?

[AVR1962]

Just curious what happens in the body that takes 3 weeks of being dizzy, issues with speach and terrible memory issues after being glutened? Does it take this long for a small amount of gluten to work itself out of the body? I have had food poisoning several times and it's normally over in 24 hours.

[ravenwoodglass]

What is happening is antibody action in the brain. It takes some time for the antibodies to clear out of the system. It does seem that those of us who are impacted neurologically are also very sensitive to CC issues and need to be really careful to avoid it.

[YoloGx]

I agree, it can easily take three weeks or longer to get over being cross contaminated with gluten. It seems neurologically affected people often are a little more sensitive than others.

By the way, I have discovered recently that homeopathics can shorten the duration of a gluten attack. Might be worth checking out, no?

Plus if you have some salicylate involvement, as it seems you do, your intestines are probably more sensitive than many since you have both the sals as well as the gluten messing up the villi and creating leaky gut.

Thus using things like nattokinase and pro-biotics can really help. Plus you can make veggie smoothies out of safe vegetables that help you to detox faster: parsley, celery and ice-burg lettuce with a bit of water. It can really help. Almost no sals at all, if any.

Baths taken with epsom salts will also help you to detox, as well as long walks -- daily if you can muster it.

If you still are having problems, you may need to reduce your salicylate content even more. Hope not, but it is possible. Many with this too have to heal a while before we can tolerate even bananas or peeled golden delicious apples, not to speak of other fruit or chancy items like nuts and seeds. When I do have bananas or apples (which now is rare) I find cooking them makes them more tolerable. If I don't cook (and peel them), I get neuro problems...all by itself (i.e., no gluten involved).

Good luck!

Bea

[pricklypear1971]

Take a good multivitamin, sublingual b complex, mag/cal/vitD.

Helps my hand shakes go away.

[AVR1962]

Many with this too have to heal a while before we can tolerate even bananas or peeled golden delicious apples, not to speak of other fruit or chancy items like nuts and seeds. When I do have bananas or apples (which now is rare) I find cooking them makes them more tolerable. If I don't cook (and peel them), I get neuro problems...all by itself (i.e., no gluten involved).

Good luck!

Bea

Thanks Bea, this is something actually that I was pondering, wondering if the salicylate sensativity could be causing more of my neuro issues than I was aware of. I have a long list of foods I have taken out of my diet because of the senativity and quite honestly I am feeling much better. Is it possible that this also could be affecting my balance, do you know?

[AVR1962]

Take a good multivitamin, sublingual b complex, mag/cal/vitD.

Helps my hand shakes go away.

Have you heard of WSN Nerve Support Formula? Most of my deficiencies were linked to the very vitamins you mentioned as well as potassium. I read that vit B has a hard time absorbing into our system in supplement form as there was something else it needed to help absorb.....can't find my notes now to reference, it may have been methylcobatamin, don't quote me. The supplement I mentioned is Vit B1 (thiamin), B12, B6, folic acid and methylcobatamin. It claims to help neuropathy issues. I just started taking it last night.

[AVR1962]

Plus if you have some salicylate involvement, as it seems you do, your intestines are probably more sensitive than many since you have both the sals as well as the gluten messing up the villi and creating leaky gut.

Thus using things like nattokinase and pro-biotics can really help. Plus you can make veggie smoothies out of safe vegetables that help you to detox faster: parsley, celery and ice-burg lettuce with a bit of water. It can really help. Almost no sals at all, if any.

[Pie Lover]

I'm new to all this and am wondering what salicylate involvement is?

[AVR1962]

I'm new to all this and am wondering what salicylate involvement is?

It involves the anti-inflammatory component in certain foods, kind of like over doses on asprin if you eat too much or have problems with it. Things like oranges, blueberries, strawberries, tangarines, tomatoes, zucchini, red wine (some sites say all alcohol), canned green olives and alot more.

We had gone on vacation and to keep safe I was eating lots of salads with salads, olive oil and cucumbers.....all on the list. Got home and continued to eat lots of the same, husband ws put on a low protein diet so I thought eating more veggies was the answer. I started itching everywhere. Went off the foods on the list and in a few days the itching was gone. I also read that it can cause ringing in the ears as well as a whole list of problems celiacs suffer from. The ringing in my ears has not stopped yet but I am hopeful.....this was a recent discovery with Bea's help, I have had the ringing for 7 months now.

[YoloGx]

I don't know where I would be today without the help and advise from this group. I do take a pro-biotic. What is nattokinase? The veggie drink sounds interesting enough to try, thanks for the thought. Can you explain leaky gut? I have heard the term but wasn't sure what it meant.

Hi again.

The nattokinase is a fibronylitic enzyme derived from natto, soybeans that have fermented after being inoculated with a bacteria found in straw--something the samurais discovered over 1000 years ago care of their hungry horses. It is a strong anti inflammatory and acts against scar tissue--which is important to heal the damaged villi in the intestines.

In case you react to all soy, there are other anti inflammatory agents--like the active ingredient in Vitalzymes, whose name I am forgetting right now. It is basically the enzyme derived from silk worms. Its easy to look up. Unfortunately many of the other (lesser) fibronylitic agents are full of salicylates....like bromelain. However papain is probably safe. These fibronylitic agents are good for getting rid of plaque in the blood vessels too. A lot of research has been done on them for people who have heart problems.

Garlic helps too.

By the way, the nattokinase is best taken on an empty stomach, as are the enterically coated pro-biotics.

Leaky gut comes about after the villi are damaged, often flattened or scarred. Then without them, undigested proteins leak through the lining of the gut and into the blood stream. Then the proteins are mistaken as foreign invaders and the body's system of defense attacks them and often the surrounding material becomes inflamed. Thus are born many sensitivities and seeming allergies.

Also wanted to mention that for me I have to take co-enzyme B vitamins or else they do me little good. The co-enzyme factor makes it so they go directly into the blood stream, rather than having to pass through the liver first. For this to happen however they need to be taken on an empty stomach. I take them with the above mentioned nattokinase and pro-biotics.

I use the co-enzyme B complex by Country Life. I hear Now also has some. Who knows what is available in Germany?? Maybe you? I avoid the sublingual kind since I am sensitive to sorbitol, not to mention the increased expense. If you like whatever kind you like, you can usually find them online and order a big bottle for a lot less money.

Again, hope this helps.

Bea

[AVR1962]

Leaky gut comes about after the villi are damaged, often flattened or scarred. Then without them, undigested proteins leak through the lining of the gut and into the blood stream. Then the proteins are mistaken as foreign invaders and the body's system of defense attacks them and often the surrounding material becomes inflamed. Thus are born many sensitivities and seeming allergies.

Bea, thanks so much for all the info. Everything you have posted has been extremely helpful!

[Twinklestars]

I also want to say thanks to you Bea Your posts are teaching me a lot, and I'm so grateful for the wealth of knowledge I've found here.

And Bea, did I read your sig right? You were diagnosed celiac as an infant but were never told? All that suffering for nothing. That is so incredibly sad

[pricklypear1971]

Bea, thanks for all of the info. I spent a good portion of yesterday with D- from the liquid B complex. I know it was that - each time I took it my stomach got worse and worse. Anyway, I'll try chewable again (I have some but wanted liquid since it was supposed to absorb better). It helps me tremendously with SLEEP. I had a restless night - with it I sleep like a rock. My hands are shakier this morning, too.

Also, about salicylates.... I don't notice an issue with whole foods (fruits, veggies), but I notice it with preservatives, additives, colors - which are basically sals on steroids. You will find something called gluten-free, and even "natural" and have it be high in those sals. Those are big no-nos for me. Example - Riceworks Chips.

[YoloGx]

I also want to say thanks to you Bea Your posts are teaching me a lot, and I'm so grateful for the wealth of knowledge I've found here.

And Bea, did I read your sig right? You were diagnosed celiac as an infant but were never told? All that suffering for nothing. That is so incredibly sad

Thanks Twinklestars, and everyone else here. It is nice to hear the info I have gleaned is understood and appreciated. Its a good contradiction to my immediate family who are mostly in denial about this and related conditions, including the salicylates.

And yes, it was/is incredible I was not told until after I finally figured it out 3 1/2 years ago when I was 59 years old. I was incensed. However, it fit the times I have learned since then. Back into the 1950's most doctors felt one could "grow out of it," so to speak--since one of the big signs for this celiac sprue was "failure to thrive" which meant one stopped growing or had stunted growth. I was taken off gluten for my first 4 years and then put back onto it. The fact I got sick was overlooked. What seemed important to them is that I continued to grow. Though its hard to say if I wouldn't have been 4 or 5 inches taller than I am now without growing up eating all that gluten.

Its also very likely I would have had far less trouble with my kidneys, teeth, heart, bones, hair etc. etc. As a child I used to peel my fingernails, they were so flakey. And my teeth of course were abysmal. The silver amalgam fillings always gave me a taste of metal in my mouth. For years I had gum boils. Sheesh! Now I don't get any cavities any more since I have been off all trace gluten.

However despite all I was and am too stubborn to just cave in. I have always had an image of myself as being strong and capable of overcoming anything. More like I was those first 4 years. For instance I have a memory of everyone else being sick with Whooping Cough, whereas for me I was not affected--this was at age 3. Later I got everything under the sun, at least twice as long as anyone else. Fortunately I have a lot of patience.

All this stuff. This is why I think having celiac/gluten intolerance support groups is important--not just for the physical stuff but also all the emotional and social reasons too. Know what I mean? I am not alone in this. The gluten intolerance (and salicylate intolerance too) often make people anxious and a little nuts. This is the one way I can forgive my family since I know what they are going through affects their perceptions and opinions. They aren't entirely off the hook, however its not black and white either.

[AVR1962]

Thanks Twinklestars, and everyone else here. It is nice to hear the info I have gleaned is understood and appreciated. Its a good contradiction to my immediate family who are mostly in denial about this and related conditions, including the salicylates.

Its also very likely I would have had far less trouble with my kidneys, teeth, heart, bones, hair etc. etc. As a child I used to peel my fingernails, they were so flakey. And my teeth of course were abysmal. The silver amalgam fillings always gave me a taste of metal in my mouth. For years I had gum boils. Sheesh! Now I don't get any cavities any more since I have been off all trace gluten.

However despite all I was and am too stubborn to just cave in. I have always had an image of myself as being strong and capable of overcoming anything. More like I was those first 4 years. For instance I have a memory of everyone else being sick with Whooping Cough, whereas for me I was not affected--this was at age 3. Later I got everything under the sun, at least twice as long as anyone else. Fortunately I have a lot of patience.

All this stuff. This is why I think having celiac/gluten intolerance support groups is important--not just for the physical stuff but also all the emotional and social reasons too. Know what I mean? I am not alone in this. The gluten intolerance (and salicylate intolerance too) often make people anxious and a little nuts. This is the one way I can forgive my family since I know what they are going through affects their perceptions and opinions. They aren't entirely off the hook, however its not black and white either.

Bea amazing! As I had mentioned before I have been in counseling since mid Feb since all my sytmpoms landed me in ER. Yesterday in counseling she asked about my health issues, and I have been so so much better than 7 months ago, but it has been a real tough journey. I told her my support has been this group. I just cried so I do understand what you are saying about family and their denial. I almost feel like my family sees me as a complainer. Inside I try to be so strong but looking back I realize just how sick I was. Thank goodness for the support here!! And good for you Bea!!

How odd, I too would get layers on my finger nails that I would peel off. I had acne so bad in my teen years that kept getting repeatedly infected that my dad, who had access to meds, kept me on antibiotics for 8 years. Once off I had repeated cases of strep throat. I too could taste the metal fillings in my mouth and in my 20's when I cracked a tooth all my fillings were replaced. I started having problems with kidney infections and stones when I was 24. Have two 8mm stones lodged in a pocket in my kidneys that have been there approx 20 years. I did not make the connection with my past medical history to what is going on today.

[YoloGx]

Bea, thanks for all of the info. I spent a good portion of yesterday with D- from the liquid B complex. I know it was that - each time I took it my stomach got worse and worse. Anyway, I'll try chewable again (I have some but wanted liquid since it was supposed to absorb better). It helps me tremendously with SLEEP. I had a restless night - with it I sleep like a rock. My hands are shakier this morning, too.

Also, about salicylates.... I don't notice an issue with whole foods (fruits, veggies), but I notice it with preservatives, additives, colors - which are basically sals on steroids. You will find something called gluten-free, and even "natural" and have it be high in those sals. Those are big no-nos for me. Example - Riceworks Chips.

Hi Prickly pear,

Do consider taking the co-enzyme B complex by Country life or Now. Both are gluten free. They go directly into your blood stream if taken on an empty stomach. They help me with my sleep problem too.

Tonight I am going to try out taking the homeopathic Hypericum Perforatum by itself. A single remedy is supposed to be better than multiple ones. Its good for nerve damage. Its derived from St. John's Wort.

And boy with all these problems with damaged villi, many of us have nerve problems up the gazoo due to difficulty taking in basic essential nutrients, minerals and vitamins. I take the little homeopathic tablets. The lactose bothers my tongue a little but its not too bad. I hear there are glycerin based homeopathics too that I mean to look up.

Yes, those kinds of salicylates that you mentioned (the preservatives, food colorants, additives) bothered me for years, though I had no exact name for the why of it. So thanks for the heads up!

What a surprise to discover I should not have been using heavy duty herbs like I was. I will warn you, avoid peppermint and aloe vera --it seems laughable since both of them appear to be so benign. However it is one of the heavy lifters salicylate wise. I used to visit an old boyfriend and he'd ply me with peppermint tea half the night--and afterwards I would be twitching around hardly able to sleep at all, my nerves all aflame.

Bea

[YoloGx]

Bea amazing! As I had mentioned before I have been in counseling since mid Feb since all my sytmpoms landed me in ER. Yesterday in counseling she asked about my health issues, and I have been so so much better than 7 months ago, but it has been a real tough journey. I told her my support has been this group. I just cried so I do understand what you are saying about family and their denial. I almost feel like my family sees me as a complainer. Inside I try to be so strong but looking back I realize just how sick I was. Thank goodness for the support here!! And good for you Bea!!

How odd, I too would get layers on my finger nails that I would peel off. I had acne so bad in my teen years that kept getting repeatedly infected that my dad, who had access to meds, kept me on antibiotics for 8 years. Once off I had repeated cases of strep throat. I too could taste the metal fillings in my mouth and in my 20's when I cracked a tooth all my fillings were replaced. I started having problems with kidney infections and stones when I was 24. Have two 8mm stones lodged in a pocket in my kidneys that have been there approx 20 years. I did not make the connection with my past medical history to what is going on today.

I guess it just goes to show we have a lot in common. I am betting the combo of celiac with salicylate sensitivity would make a basket case out of anyone. Certainly it makes one mineral and vitamin B and often E and D deficient.

Did they replace the fillings gradually or not? You could have gotten a nasty dose of mercury if they were taken out too quickly.

How ironic you got kidney stones. There are homeopathics that treat that condition by the way. It makes me feel better to know there are remedies out there for the kidneys etc. besides just antibiotics or herbs. Ditto for metal poisoning etc.

Did you develop allergies to most antibiotics like I did? My big period of antibiotic use was in college when I was constantly coming down with something or other. Finally in graduate school I was quickly losing my right kidney. Looking back I was so uninformed. But who was there to inform me? No one. The herbs back then helped save what was left of my kidneys, plus I began exploring the vagaries of diet. I discovered for instance being a vegetarian was killing me and I needed to avoid all alcohol. I also discovered I needed to avoid citrus. And finally figured out I was "allergic" to wheat and rye. Well, it was a beginning.

The antibiotics through your teens must have been horrific. I hope you are taking some good enterically coated pro-biotics every day on an empty stomach.

Meanwhile there is that emotional body we all have to heal, eh? I am glad to hear you are getting some counseling. I too have had to learn to ask for help and have gotten a lot of therapy along the way. There is of course always more to do that way. I have found that meditating plus writing and visual art are essential for putting my life back together.

Perhaps all this struggle is in some ways a gift; with a background like what we have experienced, it teaches one about the preciousness as well as the precariousness of life.

[AVR1962]

I guess it just goes to show we have a lot in common. I am betting the combo of celiac with salicylate sensitivity would make a basket case out of anyone. Certainly it makes one mineral and vitamin B and often E and D deficient.

Did they replace the fillings gradually or not? You could have gotten a nasty dose of mercury if they were taken out too quickly.

How ironic you got kidney stones. There are homeopathics that treat that condition by the way. It makes me feel better to know there are remedies out there for the kidneys etc. besides just antibiotics or herbs. Ditto for metal poisoning etc.The antibiotics through your teens must have been horrific. I hope you are taking some good enterically coated pro-biotics every day on an empty stomach.

Meanwhile there is that emotional body we all have to heal, eh? I am glad to hear you are getting some counseling. I too have had to learn to ask for help and have gotten a lot of therapy along the way. There is of course always more to do that way. I have found that meditating plus writing and visual art are essential for putting my life back together.

Perhaps all this struggle is in some ways a gift; with a background like what we have experienced, it teaches one about the preciousness as well as the precariousness of life.

Bea, I am not taking vit E. What does that help with? I do take the others including a probiotic on an empty stomach. I was not aware that anything could be done about my lodged stones, docs told me because of their location they more than likely will not move and even if they broke them up they would not be able to flush out because they ar in a spot that liquids do not pass. My fillings were replaced and I have had no problems since. I didn't notice the antibiotics in my teen years doing anything for me except keeping the infections away from the acne issues I had. My teeth have a gray coloring to them which I read years ago could be due to the antibiotic use. Yes, our emotional health is extremely important in all of this. I have been trying to think of this all as a blessing, almost like I am trying to convince myself more than anything. What I can say, it that I think this has affected me for a long time and I finally feel like I am getting better, and that is a good feeling!

[YoloGx]

Bea, I am not taking vit E. What does that help with? I do take the others including a probiotic on an empty stomach. I was not aware that anything could be done about my lodged stones, docs told me because of their location they more than likely will not move and even if they broke them up they would not be able to flush out because they ar in a spot that liquids do not pass. My fillings were replaced and I have had no problems since. I didn't notice the antibiotics in my teen years doing anything for me except keeping the infections away from the acne issues I had. My teeth have a gray coloring to them which I read years ago could be due to the antibiotic use. Yes, our emotional health is extremely important in all of this. I have been trying to think of this all as a blessing, almost like I am trying to convince myself more than anything. What I can say, it that I think this has affected me for a long time and I finally feel like I am getting better, and that is a good feeling!

Vitamin E is helpful for a whole variety of things. We with celiac etc. tend to me low in the oil based vitamins by the way, increased for some of us by salicylate sensitivity--due to damage to the villi. Some of the bone, nerve and muscular distress can be relieved by taking vitamin E. It is good for the heart and helps prevent cancer. It is a wonderful antioxidant. Its great for the eyes. etc. Here's a link that tells more: Open Original Shared Link Use This To Link To Spam.com/?Why-Take-A-Vitamin-E-Supplement?&id=980771

I don't know if the homeopathics will help you get rid of the old stones, however they may help you prevent new ones.

I am glad to hear having your fillings replaced caused you no problems. They did for me unfortunately. It took at least a year before I started feeling better. The mercury toxicity released gave me a big whammy even though mine were taken out fairly slowly.

And yes I agree, feeling better is where its at!