Happy Yet Frustrated With New Diagnosis
Posted 07 December 2011 - 10:08 PM
Posted 07 December 2011 - 11:18 PM
Pizza and cinnamon rolls were my 2 big misses. There are gluten-free pizza crusts and I buy a frozen gluten-free pizza which is actually pretty good and it takes the edge off missing these foods. I make my own cinnamon nut muffins and while it is not Cinnabon, it is a close second especially for gluten-free.
There are also gluten-free beer, could mention brands myself but I do knwo they exist.
Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.
Posted 07 December 2011 - 11:29 PM
Initially it is a big shock and a hard ask t eliminate the gluten from your diet. We have had members who have burst into tears and go running out of the supermarket on their first gluten free shopping expedition. So don't go expecting it to be easy. On the other hand, once you get the hang of it it isn't really all that hard. It is just a big change. All that label reading!!!
So the best way to ease into the diet is to forget the processed stuff, things with more than three or more ingredients. Eat the naturally gluten free, whole, unprocessed foods around the outside walls of the supermarket --no,no, walk right past the bakery Buy the meats, the fish, the vegetables, the fruits, the cheese and yogurt (if you are okay with casein) - forget the milk and lactose products for now because you won't be able to digest those, most likely, and will have to do a trial on the cheese and yogurt too. You can sneak into the ceter of Whole Foods, for example, to buy some Tinkyada pasta and some Udi's bread, along with some rice, and then skadoodle right back out again and go home and cook - I hope you do cook, because you are going to have to learn if you don't.
So now you have done your shopping you can cook simple foods, broiled, poached, sauteed in olive oil fish and meats. vegetables, rice, potatoes, pasta, fruits for dessert, nuts and seeds for snacking, also carrots and celery - my goodness, you are going to be healthy!!! You can also have a glass of win with dinner, or a spirits cocktail, go easy on the caffeine, drink lots of water. Once you have stabilized on eating like this you can start adding back in the things (one every 3-4 days) that might give you trouble - things like corn, eggs, soy - even the nightshade family gives some people trouble so be on the lookout for tomato and potato problems, but it ain't necessarily so.
Then you can start thinking about the gluten free substitute foods, things like Panela's baking mix, Van's waffles, taking note of any reactions you have and abandoning things you initially react to - you might be able to add them in again later. Bly now you are reading labels and will look at the beer label before you put it in your basket, and you will have learned from reading what to look for - Rome wasn't built in a day and there is a learning curve. You just have to make sure you go through the stages of crawling, walking and running
Try not to be impatient - it is not like turning off a faucet and you are better. You have a damaged gut and you have to heal before your digestion gets better. Along the way you might need to take some probiotics, some digestive enzymes, have your nutrient levels tested by your doctor for malabsorption, check your thyroid, have a bone density scan if your B12 is low. But right now, just start cooking yourself some wholesome, naturally gluten free food. A crockpot is ideal for this. And treat your tummy gently - don't give it too much raw stuff to deal with at first.
Good luck on your gluten free journey.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 07 December 2011 - 11:29 PM
My daughter has food allergies and not celiac. For her she started to get better right away and then at about the 2 week mark she got so sick to her stomach she had to stay home from school. She was also super cranky.
And then the next day? She got a lot better.
Posted 08 December 2011 - 05:32 AM
Welcome to the boards and your new health!
I would echo everything mushroom said (those 'shrooms can be pretty smart sometimes), as well as suggest you get the book Living Gluten-Free for Dummies. Seriously. It helped me a lot.
I also wanted to suggest that you do go to whole/unprocessed foods for a while. Untreated celiac disease or non-celiac gluten enteropathy seems to often cause people to develop reactions/sensitivities to other foods. For many people these will clear up after you have began healing. For some they don't. Also, the gluten issue can mask other serious issues.
For example, my untreated celiac disease masked the fact that I cannot eat soy in any form. I don't have an allergy in the conventional sense, but if I ingest soy it causes some severe psychological and neurological issues that take a couple weeks from which to recover. It took me an additional three months after going gluten-free to discover this, which is when I went to a whole/unprocessed foods diet (GAPS diet).
It was a good year before I could eat peppers again without having some reactions, but now I'm fine (as long as I don't eat an entire quart of pickled jalapenos). *sniffle*
There is another reason to switch to a whole/unprocessed foods diet for a while. It allows you to try different types of gluten-free foods/cooking and find out if you are reacting to gluten-free foods that aren't really gluten free. Some gluten-free foods may satisfy the labeling requirements for gluten-free, but still be over what your body can tolerate. This may not be the case, but it may be. It is really hard to tell for many people in the first few months as they try and do a 1:1 substitution of gluten-free foods for non-gluten-free and it gets very confusing and stressful for many.
My recommendation to newly diagnosed or people who are just wanting to test out a gluten-free diet is always: switch to whole/unprocessed foods only for at least two months.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas!
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk!
Posted 09 December 2011 - 07:33 AM
Posted 09 December 2011 - 06:40 PM
Posted 09 December 2011 - 09:11 PM
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