Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Hand Tremors


Debbie48

Recommended Posts

Debbie48 Rookie

Does anyone else have hand tremors? Shaky/jerky fingers?

I've had so many strange symptoms for the past 7 months and they're only getting worse. I'm trying to figure out what is going on, but doctors don't have a clue.

When my blood work came back positive on the antigliadin antibodies a few weeks ago, I was hopeful that this might be the cause. The shaky fingers, almost like Parkinson's Disease seems so strange for celiac. Is it? Does anyone else have this?

I continue to do research to try to figure out what's going on. I have muscle cramping in my upper arms. The lower part of my body has more numbness and tingling than anything else.

Yesterday, I felt like I had a slightly better day. This morning already has been horrible, especially the shaking and arms cramps.

I made sausage and sourkraut last night. I looked up about the Hillshire Farms sausage and it said it was gluten free. What about Franks quality Kraut? Anyone know about that? I assumed it was gluten free, but I so new to reading labels.

Ingredients of the kraut:

cabbage, water, benzoate of soda, and sodium metabisulfite added as preservatives. Was it the preservatives?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

There isn't any gluten in the kraut, could just be a coincidence?

I have a book here called "Recognizing Celiac Disease

signs, symptoms, associated disorders & complications"

I recommend this book very highly.

In it, you can look up any symptom and it tells which vitamin/mineral you're low on and tells which foods contain it. Or you can get a gluten-free supplement.

For tremors/neuromuscular disturbances it says the culprit is low magnesium and/or phosphorus. For now it might be best to take a supplement?

The numbness/tingling can be low B12. You can get sublingual B12(you place it under your tongue and it's absorbed better).

If you have damage in your intestine it's not absorbing the nutrients from your food like it should.

pricklypear1971 Community Regular

Yep, I have shaky fingers. They shake left to right not up and down. It's especially bad if I try to do the "Spock" move.

It started with my left hand - thumb actually. Then I went gluten-free and it almost disappeared. Then it came back. Now it's gone again, but my hands hurt like someone slammed an encyclopedia down in them. I'm also in the middle of an allergy attack/cold and lots of muscles ache and my nose is so stopped up I can't even make a Neti Pot work...

I wasn't low in B's but am low in D and iron. If I am super-strict about taking my supplaments I think lots of things improve. I also think right now I am dealing with a glutening (ate out a lot during the holiday and I think it accumulated).

It's a mess.

My ND says its neuro damage from the Celiac but I think I want to look into it more. I'm wondering RA.

ravenwoodglass Mentor

My hands shook so bad before diagnosis that doctors thought I was hiding alcoholism. I wasn't. Between the shaking and the severe arthritis it made it hard to do anything. Shaking and the arthritis both resolved gluten free. It is amazing how many different parts of the body can be impacted by this disease.

AVR1962 Collaborator

Yes, and as long as I take extra magnesium and potassium I do fine. If I back off they start again. Also, blame some of my stiffness to lack of magnesium especially my back. I had terrible stiffness in my back and neck and did everything to get it to move and then one day realized I had backed off my magnesium, upped it again and it went away. Another supplement I have added to help all my muscles is manganese. I did some reading on it and it is very good for the body.

domesticactivist Collaborator

I don't know if I have celiac disease. I was gluten-free for a year and now am doing a gluten challenge so I can get tested.

Anyway, I wanted to add that I have shaky hands. It got much better and barely noticeable when I was gluten-free (and on GAPS), but came back a couple weeks into my gluten challenge. My partner noticed it the other day, so I know it's not just me imagining things.

My hands also stopped being able to make a fist in the morning and I have some mild joint pains in my hands and toes, plus bone pain in my shins below my knees. I also have persistent tingling in my face and my legs fall asleep a lot, and I wake up with paresthesia in weird places all over my body. These (and many other symptoms) are not super extreme for me, I'm very functional still. However, they went away on GAPS/gluten-free and are back now that I am doing the challenge. I've also started to get really bad muscle cramps in weird places.

My son had bone and joint problems and pain and muscle cramps, (in addition to a whole lot of other symptoms). In fact this landed him in emergency surgery and is the reason we decided to try a gluten-free diet. It set us on this road.

IrishHeart Veteran

I had shaky hands. I felt like I could not get them to do what I wanted. I could not lift things, open things, or carry things while very ill from Un- Dxed Celiac. I shook all over actually--legs, too.

My hands hurt so bad, I cried. Yes, I have osteoarthritis, but the pain and shakiness made no sense. I have body -wide muscle/joint/bone pain and nerve damage and major loss of muscle mass, but it is slowly resolving and I hope for the best.

My hands no longer shake and my hands are increasingly stronger each month I am off gluten.

Hang in there--you're just beginning to heal. It will get better. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Diane-in-FL Explorer

I had the shaky hands too and legs as well. Sometimes I thought they were going to give out on me. Much better now. I can reach for things with the trembling. It made me feel so feeble!

There is a typo here....I meant to say that "I can reach for things without the trembling now".....sorry about that.

hspichke Apprentice

I have a tremor, which was first said to be from the temporary hyperthyroidism I got after having my son but that is now back to normal and my hands are still shakey. I just found out that my entire celiac panel was positive, but I have not gone gluten free yet. ( waiting for endoscopy) So it could be a symptom?

notme Experienced

i had the shaky hands as well. gone. one more thing i can check off the list of things i thought were something else (that i was going to die of.) i am alot less spastic, also, as in i can catch that pencil rolling off the table or that jar of stuff falling out of the fridger.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748

    rednecksurfer
    Newest Member
    rednecksurfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.