Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Hand Tremors

Debbie48

By Debbie48
in Coping with Celiac Disease

Recommended Posts

Debbie48 Rookie
Debbie48
Posted

Does anyone else have hand tremors? Shaky/jerky fingers?

I've had so many strange symptoms for the past 7 months and they're only getting worse. I'm trying to figure out what is going on, but doctors don't have a clue.

When my blood work came back positive on the antigliadin antibodies a few weeks ago, I was hopeful that this might be the cause. The shaky fingers, almost like Parkinson's Disease seems so strange for celiac. Is it? Does anyone else have this?

I continue to do research to try to figure out what's going on. I have muscle cramping in my upper arms. The lower part of my body has more numbness and tingling than anything else.

Yesterday, I felt like I had a slightly better day. This morning already has been horrible, especially the shaking and arms cramps.

I made sausage and sourkraut last night. I looked up about the Hillshire Farms sausage and it said it was gluten free. What about Franks quality Kraut? Anyone know about that? I assumed it was gluten free, but I so new to reading labels.

Ingredients of the kraut:

cabbage, water, benzoate of soda, and sodium metabisulfite added as preservatives. Was it the preservatives?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

There isn't any gluten in the kraut, could just be a coincidence?

I have a book here called "Recognizing Celiac Disease

signs, symptoms, associated disorders & complications"

I recommend this book very highly.

In it, you can look up any symptom and it tells which vitamin/mineral you're low on and tells which foods contain it. Or you can get a gluten-free supplement.

For tremors/neuromuscular disturbances it says the culprit is low magnesium and/or phosphorus. For now it might be best to take a supplement?

The numbness/tingling can be low B12. You can get sublingual B12(you place it under your tongue and it's absorbed better).

If you have damage in your intestine it's not absorbing the nutrients from your food like it should.

pricklypear1971 Community Regular
pricklypear1971
Posted

Yep, I have shaky fingers. They shake left to right not up and down. It's especially bad if I try to do the "Spock" move.

It started with my left hand - thumb actually. Then I went gluten-free and it almost disappeared. Then it came back. Now it's gone again, but my hands hurt like someone slammed an encyclopedia down in them. I'm also in the middle of an allergy attack/cold and lots of muscles ache and my nose is so stopped up I can't even make a Neti Pot work...

I wasn't low in B's but am low in D and iron. If I am super-strict about taking my supplaments I think lots of things improve. I also think right now I am dealing with a glutening (ate out a lot during the holiday and I think it accumulated).

It's a mess.

My ND says its neuro damage from the Celiac but I think I want to look into it more. I'm wondering RA.

ravenwoodglass Mentor
ravenwoodglass
Posted

My hands shook so bad before diagnosis that doctors thought I was hiding alcoholism. I wasn't. Between the shaking and the severe arthritis it made it hard to do anything. Shaking and the arthritis both resolved gluten free. It is amazing how many different parts of the body can be impacted by this disease.

AVR1962 Collaborator
AVR1962
Posted

Yes, and as long as I take extra magnesium and potassium I do fine. If I back off they start again. Also, blame some of my stiffness to lack of magnesium especially my back. I had terrible stiffness in my back and neck and did everything to get it to move and then one day realized I had backed off my magnesium, upped it again and it went away. Another supplement I have added to help all my muscles is manganese. I did some reading on it and it is very good for the body.

domesticactivist Collaborator
domesticactivist
Posted

I don't know if I have celiac disease. I was gluten-free for a year and now am doing a gluten challenge so I can get tested.

Anyway, I wanted to add that I have shaky hands. It got much better and barely noticeable when I was gluten-free (and on GAPS), but came back a couple weeks into my gluten challenge. My partner noticed it the other day, so I know it's not just me imagining things.

My hands also stopped being able to make a fist in the morning and I have some mild joint pains in my hands and toes, plus bone pain in my shins below my knees. I also have persistent tingling in my face and my legs fall asleep a lot, and I wake up with paresthesia in weird places all over my body. These (and many other symptoms) are not super extreme for me, I'm very functional still. However, they went away on GAPS/gluten-free and are back now that I am doing the challenge. I've also started to get really bad muscle cramps in weird places.

My son had bone and joint problems and pain and muscle cramps, (in addition to a whole lot of other symptoms). In fact this landed him in emergency surgery and is the reason we decided to try a gluten-free diet. It set us on this road.

IrishHeart Veteran
IrishHeart
Posted

I had shaky hands. I felt like I could not get them to do what I wanted. I could not lift things, open things, or carry things while very ill from Un- Dxed Celiac. I shook all over actually--legs, too.

My hands hurt so bad, I cried. Yes, I have osteoarthritis, but the pain and shakiness made no sense. I have body -wide muscle/joint/bone pain and nerve damage and major loss of muscle mass, but it is slowly resolving and I hope for the best.

My hands no longer shake and my hands are increasingly stronger each month I am off gluten.

Hang in there--you're just beginning to heal. It will get better. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Diane-in-FL Explorer
Diane-in-FL
Posted

I had the shaky hands too and legs as well. Sometimes I thought they were going to give out on me. Much better now. I can reach for things with the trembling. It made me feel so feeble!

There is a typo here....I meant to say that "I can reach for things without the trembling now".....sorry about that.

hspichke Apprentice
hspichke
Posted

I have a tremor, which was first said to be from the temporary hyperthyroidism I got after having my son but that is now back to normal and my hands are still shakey. I just found out that my entire celiac panel was positive, but I have not gone gluten free yet. ( waiting for endoscopy) So it could be a symptom?

notme Experienced
notme
Posted

i had the shaky hands as well. gone. one more thing i can check off the list of things i thought were something else (that i was going to die of.) i am alot less spastic, also, as in i can catch that pencil rolling off the table or that jar of stuff falling out of the fridger.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.