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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Shaky, Nausea, Feel Weird After Eating.....help?
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5 posts in this topic

Well it has now been 4 1/2 months of gluten free-ness, and still little improvement. I am concerned with these peculair symptoms that I continue to have. Started with new GI doc, and I like him, seems to listen, but still have so many odd ball symptoms. Hoping you guys can help.

I notice about 2-3 minutes after eating, and it can be as simple as a banana, eggs, apple, anything for that matter, that I have episodes that begin with feeling nauseous, out of my head-foggy, and shakiness, and seem to have a tremoring feeling. This lasts sometimes for about 45 minutes to an hour, and I just feel aweful, then I return to my usual chronic achiness in the upper belly with nausea and back pain. I have checked my blood sugar and it is normal during this time frame as well as my blood pressure, also normal. Seems like after one of these episodes, I then get very drowsy, lasting for 2-3 hours or so, and feel like I need a nap???

any thoughts, or anyone else have similar things going on??

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I think I may have told you this already, but I had the same thing going on for many months after going gluten-free. It took a while for my system to calm down.

I found that I NEEDED PROTEIN with any carb I ate--fruit or starchy---to stop that nausea, jittery feeling, spaciness and afternoon fatigue.

I also needed B-12, Folate, D supplementation.

Eventually, all that stopped --unless I get CCed by accident.

I may have asked you this on another post you made, and I know you are still struggling post- cholecystectomy, but are all your vitamin/minerals levels up to par??

A deficiency in any one of those can wreak havoc on the body, even causing the symptoms you describe. Post surgery and a new celiac DX?--you may be deficient in a few of them.

Maybe you should ask your doctor to check them for you?

What did the GI doctor say--did he check you for other possible GI tract issues yet? You are having quite a struggle, I know. Sorry.

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IrishHeart - as ususal - is right on target. I had these symptoms for years even pre-diagnosis. I could never eat just an apple it has to be an apple plus peanut butter or cheese or an egg.

In addition to what she said, a sublingual multi B is my choice because I know it will get absorbed. Plus I have to have a Magnesium supplement daily or I feel "off".

So, yes more protein. D, B and Magnesium supplements. Best of luck to you.

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Was gluten free for 2 weeks feeling fine then eat kale. I have been nausea for the past month. Not much helps it I have started steriods about 5 days. What is going on. Can just eating kale make so sick for so long? What should I do? I thought once I was gluten free I would be fine but doesnt seem so. Help any suggestion is welcome

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Everyone seems to be different with what they can tolerate and not tolerate. I had my gallbladder removed about 5ish years ago. I cannot tolerate fat at all until several weeks after gluten-free. If I slip, then it is back to the drawing board. Even a single egg would lead me to run to the restroom, plus lots of bloating, sometimes nausea.

We all seem to be broken down in slightly different ways and each seems to have their own weird issues. It would be interesting if it was not so devastating.

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    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
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    • celiac disease is psychosomatic
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    • celiac disease is psychosomatic
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    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
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