Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overwhelmed


varthurs

Recommended Posts

varthurs Apprentice

Started gluten free diet yesterday. I have been reading up about what are safe and unsafe foods, but I am feeling very overwhelmed by the list. Any suggestions on how to start this up a little less painfully? I am reading labels and cross checking my unsafe list, but I can't deal with doing that every time I want to eat something. Should I go to a nutritionist? Would that be helpful?

Thanks,

Vicki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BrittLoves2Run Apprentice

Started gluten free diet yesterday. I have been reading up about what are safe and unsafe foods, but I am feeling very overwhelmed by the list. Any suggestions on how to start this up a little less painfully? I am reading labels and cross checking my unsafe list, but I can't deal with doing that every time I want to eat something. Should I go to a nutritionist? Would that be helpful?

Thanks,

Vicki

I found the easiest thing in the beginning was to just stick to things that I knew wouldn't be a problem. Meats, veggies, rice.. If I NEEDED some kind of snack, I made SURE it was labeled Gluten free. It's very overwhelming! Remember, we've all been there! It DOES get easier!

Metoo Enthusiast

Ditto the other poster, at first like you I tried to cross reference that huge list, but I wound up messing up.

Basically it was easiest and safest for me, to just eat everything labeled gluten free...and then of course veggies and meat (chicken can be packaged in chicken broth though so you have to check that).

Beware wheat free does NOT equal gluten free.

I still buy things labeled gluten free, and stray from that just occasionally.

Adalaide Mentor

It is super overwhelming at first. There is so much to know and it all seems like so much work. The suggestion to stick with meats, veggies and fruits is a great one. I am also sure to keep a stash of safe snacks in my house so I don't cheat when I just need to grab something now. Cocoa or Fruity Pebbles cereal bars are gluten free and make great grab and go snacks. I keep some gummy fruit snacks in my Jeep. Snyder's makes some good gluten free pretzels and they are way cheaper than the other brands, although the Glutino chocolate covered ones are quite tasty.

Check your local grocery store for a gluten free or health food section where you may have luck finding some tasty snacks. I do a lot of shopping at a health food store that has a whole gluten free section. Even when things say gluten free on them, I always read the ingredients. Some things claim to be gluten free based on the principle that they only have a little gluten.

dani nero Community Regular

Why are you starting the diet? Did you get diagnosed or you suspect you're intolerant?

If you're suspecting it, it might be better to go to a doctor first to get a diagnosis before going on the diet.. because doing the the diet first means you will have to eat gluten again to get positive diagnosis if you ever end up needing the doctor, which could be very troublesome for you.

First most important thing is to get your kitchen cleaned up from all gluten. It won't help to be on the diet if you keep getting yourself glutened through contamination.

As for the diet. It is always the hardest in the beginning because you're changing your eating habit. Basically the only thing that made it feel better for me was cooking really interesting meals that were filling, and contained some of my favorite ingredients. I don't need to read labels because I cook everything from scratch. It takes more time and work but it's worth it for the piece of mind and avoiding doubt.

I'm on a strict elimination diet right now so I'm basically banned from eating everything except greens, meat, and I just added citrus fruit a day ago. I ate charcoal grilled salmon with avocados for lunch, then clementines for desert. Really yummy. Yesterday I had chicken grilled with sweet pepper and a garlic/onion dressing. It was amazing with a salad. Be patient. I promise that after a week or so the new routine will start feeling more normal and less hard to live with.

Skylark Collaborator

Why are you starting the diet? Did you get diagnosed or you suspect you're intolerant?

She's celiac.

I agree with what other people have said. Stick to easy foods. Fruits, vegetables, meat you cook yourself, rice, potatoes, sweet potatoes, plain nuts (not flavored or dry-roasted), dried or canned beans. You will find whole foods easier to digest than processed foods and you don't have to get all worried about finding gluten on labels. It's not hard to determine that a head of broccoli or a whole potato is gluten-free. :)

Takala Enthusiast

Welcome to the World of Marking Everything with a Sharpie Pen !

Make a list or chart of what you tend to eat or like to eat at each meal, like this:

1. Breakfast

(example) cereal with milk, tea, fruit juice

2. Lunch

(example) sandwich, chips, beverage, or, salad, fruit, yogurt

2.b. snack

granola or cookie bar, peanut butter on something, etc

3. Dinner

(example) meat, vegetable, starch

Then you can think to yourself, what sort of staples do I need to keep on hand to make this happen, gluten free.

So your shopping list would look like this:

gluten free cereal

fresh oranges to replace boxed juice drink (altho the juice drink might be okay)

gluten free bread (can store in freezer)

gluten free corn tortillas if you can eat corn

rice cakes

sandwich protein staples, gluten free, such as safe lunchmeat, peanut butter, jelly, cheese, tuna, tofu if you do soy (a lot of us end up ditching soy flour and tofu)

condiments:

safe gluten free mayonnaise (Spectrum + Best Foods have gluten-free versions), ketchup (Heinz' is Kraft, and works, I have gotten cc'd by some supposedly safe specialty ketchups :angry: )

mustard (ditto, currently using a store brand mustard made with gluten-free ingredients that works, have reacted to so- called gluten free mustards)

pure apple cider vinegar- READ THE LABEL, use pure cider vinegar

pure olive oil

with the above condiments you can recreate almost any salad dressing or sandwich spread by mixing the ingredients, and they will be safe

~back to the list~

chips: use google to find gluten free corn + potato chip brands if you are into these.

yogurt- most yogurts are safe if you read the label, however, for the lactose sensitive amongst us, or those sensitive to additives, dry milk powders, thickeners, or antibiotic residue, yogurts are a minefield until you find "your brand" that works. I did not do yogurt for a very long time because of this.

fresh fruit and vegetables - gluten free

snack- in the beginning, you may want to stick with fruit or known labeled gluten free items like a Lara Bar. You can also mix up your own trail mix out of safe gluten-free nuts, chocolate chips, and raisins or craisins, or have peanut butter on a rice cake or hummus you've made on celery.

proteins:

Most plain raw meats are gluten free, just watch out for cross contamination issues and for what they tend to try to sneak into poultry

eggs are gluten free

Starches: rice, beans, potatoes, rice pastas

frozen gluten free pre made pizza shells can be found in health food stores & some better groceries

Fats: pure butter if you can do dairy. Coconut oil, coconut milk, avocado, nuts, even lard is used by some for baking if they can't handle the dairy, olive oil

milk substitute: you may end up using a rice or nut milk if you have to go off of dairy milk for awhile. MANY types of these boxed gluten-free milk subs are available in many flavors. Another way to avoid lactose is to just thin yogurt out with water and use that on cereal, or mix half and half with a nut milk.

_______

Breads, gluten-free homemade: can start with a pre packaged mix.

Specialty needs: if you are one of those who cannot handle starchy grains at all in the beginning, you may end up making your own bread out of your own gluten free flours. You can grind nuts easily in a blender, and you can also grind things like seeds (example, buckwheat) in a coffee grinder. If you cannot handle a lot of carb you can still make a high protein gluten free bread. Baking in the microwave in small servings ("bun-in-a-cup") is one of the fastest and easiest ways to get fresh gluten free bread without a 2 hour time and effort commitment, and many different prepared flour mixes can be used, besides your own creations if you need to customize.

________

Minimum utensil replacement: new dedicated cutting board, your own toaster, colander(s), and dedicated cast iron pan if you use that, plus get rid of plastic or rubber spatulas and get your own clean storage tupperware or start saving those Cool Whip tubs. Highly recommended to use your own clean, new teflon, not the nasty old scratched stuff, and new bakeware if you cannot scrub the old down to clean.

If your potholders are not disgusting, WASH THEM because they've been brushing up against gluten if you bake. May as well get a new set if they're looking pitiful, anyway.

If you don't want to buy a rolling pin yet, use a glass turned on its side and roll things out between sheets of waxed paper. They do make ceramic rolling pins :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sreese68 Enthusiast

You've gotten good advice. I'll add: do not go to the grocery store hungry. It makes things worse.

Don't buy a million gluten-free substitutes (bread, pasta, etc) at first. Try a little bit at a time and find out what brands, alternative grains, etc you like. It'll save you money.

Keep in mind that your tastebuds will adapt and gluten-free substitutes that taste not-so great now will taste better to you later.

Budget plenty of time to shop. It takes a long time to read labels on everything. It'll get easier as you discover what you can have.

Try to shop when you're in a decent mood. I'd bet serious money that most of us on this board have had a partial to full breakdown at the grocery store at first. It gets better. I still stare longingly at Pop Tarts, but I don't tear up over them anymore.

Find a comfort food that makes you smile. Mine is Fritos. I've even eaten them with baked potatoes or inside tacos.

red island Newbie

Since I live in a rural area, shopping gluten free meant going to several stores as everyone had just a few different products. I was very very fortunate to find a fellow celiac close to my neighborhood who very kindly invited me to his house and showed me the stuff he bought, told me where to find it and even gave me some of the snacks to try first before spending money on stuff I might not like. So if there is a local celiac group in your area that can tell you where the best places are to shop etc, that might be worth looking into.

I still hate reading labels so I generally just cruise the produce section and buy only a few of my favorite packaged foods. and if a company is kind enough to put a big old gluten free sticker on their label then I will be their friend for life.

In the meantime, keep reading here, even in my darkest moments, I found something on here that would enlighten me or perk me up and its very comforting to know that there are a whole bunch of people who know exactly what you are going through.

varthurs Apprentice

thank you all

lucky97 Explorer

You will get the hang of it, I was overwhelmed at first...particularly after the diagnosis when I walked into a grocery store like I always did but first realized "Hey, I can't eat most of this stuff anymore." It was totally weird. But not now, I'm over it.

The best thing to do I think is to make a couple lists. You won't need them forever, but will for awhile. List the foods you know are labeled gluten free (there are more and more all the time now). Then make a list of things you checked on the web that are gluten free but NOT labeled if you want to go that route...for example Ortega taco seasoning, according to their website, is gluten free. Coke on their website states it's gluten free. Stuff like that, but really check. I search on these forums AND the company website before I'll use it now, almost like a cross reference because ingredients and the like can change.

It's getting easier and easier all the time I've noticed to find gluten free things, and I've only been Celiac less than 18 months myself. Beer was the hardest thing to say goodbye to but there was no getting around that. If you drink, you'll figure out the safe things to have. It's a list, like the others.

Good luck in your gluten free adventures!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      5

      Why now?

    2. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      5

      Why now?

    3. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Confused about HLA-DQ Celiac gene test result

    4. - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      5

      Why now?

    5. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,437
    • Most Online (within 30 mins)
      7,748

    Thomasine
    Newest Member
    Thomasine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
    • trents
      @ainsleydale1700, the additional test information you provided is very significant! Here is the important part: "This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG." It looks to me that you may be a "seronegative" celiac. The frontline diagnostic tests for celiac disease are IGA tests, especially the tTG-IGA. However, another IGA test ("total IGA") was done to check you for IGA deficiency and you were found to be deficient. That means that the usual IGA tests done to diagnose celiac disease, such as the tTG-IGA, would not be reliable. That is why the IGG testing was done "reflexively" (which means in response to the results of a previous test, i.e., the total IGA test.). The IGG tests are not quite as reliable as the IGA tests for diagnosing celiac disease, meaning, there are more "other" possible causes for elevated IGG test scores. The IGG test did give a borderline positive result, however, so the physician ordered the endoscopy with biopsy to check for damage to the small bowel lining that would be caused by untreated (continuing to consume gluten) celiac disease. The biopsy showed no damage so the doc concluded you do not have celiac disease. However, the monkey wrench in the gears of the doc's conclusion is that he gave you permission to proceed with the gluten free diet which would have allowed for healing of the small bowel lining to commence. How long were you gluten free before the biopsy was taken? And how much damage to the small bowel lining was there to begin with? If the damage was minimal, it might have been fully healed by the time the biopsy was done. And the symptoms you describe involving vitamin and mineral deficiencies, tooth enamel loss, cessation of menses, neuropathy, constipation alternating with diarrhea . . . IMO all scream of celiac disease as opposed to NCGS.
    • trents
      Yes, other health challenges and even severe prolonged emotional distress are thought to be potential triggers for the latent celiac genes. Let me encourage you to get tested for celiac disease as soon as possible so that you can get on with eliminating gluten from your diet, which itself will involve a considerable learning curve in order to become consistent at it. Even pills and meds can contain gluten because wheat starch can be used as a filler. It's important to know if you have celiac disease for two reasons. First, it damages the lining of the small bowel and, over time, wears down those billions of little fingers that make up the lining and produce a huge surface area for absorbing nutrients from the food we eat. The small bowel is essentially the place where all of our nutrition is absorbed. Long term undiagnosed/ignored celiac disease therefore results in nutritional deficiencies even when we are eating well. You don't need that with the other health issues you are dealing with.  Second, many or most people find it difficult to be consistent with the gluten free diet if they don't have a formal diagnosis of celiac disease. It is just too inconvenient and limiting and they begin to rationalize that, "Well, maybe my problems are due to something else." Human nature has a remarkable capacity to rationalize. It can be argued that you can cheat a little bit on the gluten free diet with NCGS because it only creates a little discomfort and distress but not damage. That doesn't work with celiac disease. So, I feel it is important to know which you are dealing with, especially in the case where you have not yet begun the gluten free diet and you are a good candidate for beginning testing. Many people make the mistake of experimenting with the gluten free diet before they get tested for celiac disease and then they have to go back on gluten for weeks or months, the so-called "gluten challenge", in order to achieve valid test results. By the way, autoimmune diseases tend to cluster. When you get one, it is very common to develop others in time. 
    • ainsleydale1700
      Thank you!  I have the classic symptoms while eating gluten-constipation, diarrhea, weight loss, loss of appetite, etc.  My main problems right now are elsewhere in my body.  Dental issues...my teeth started breaking.  I had two teeth break in the past month.  My dentist looked at my teeth with a camera and said I have no enamel left.  Im really struggling with neuropathy, and gynecological conditions.  My periods stopped 6 years ago and Im not in perimenopause or menopause.  When I consume gluten, my resting HR goes up about 30 points, and takes a week or so to normalize.  The list goes on, its very overwhelming Ongoing vitamin D deficiency, magnesium, iron, blood creatinine is always low, dont know if thats relevant. Below is from the Celiac panel, otherwise the results were normal.  Not crazy high, but I wasnt aware the Celiac panel was included in the bloodwork.  So I didnt prepare for it in advance, and Ive been on a gluten-free diet for the past 4 years High t-Transglutaminase (tTG) IgG: 7, Reference Interval: 0-5, Unit: U/mL This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG.   I know I have a bad reaction to gluten.  But with the low likelihood of Celiac, any guidance on other paths to explore would be greatly appreciated!  Ive been trying to figure this out for years now, and more issues keep coming up.  It has been so overwhelming.  Thanks again.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.