Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sudden Adversion To A Food I Can Eat?


RuskitD

Recommended Posts

RuskitD Rookie

Due to beef, pork, corn, soy, dairy and gluten (all grain) out of my diet, I already seem to have a limited amount of things to choose from. I am somewhat fearful to try new things. I just want to keep healing, not slow it with a reaction to something. (not that it hasn't happened!)

I thought maybe fish would be good. I love fish! I can't have tuna, I reacted to it, assuming it was the 'water' (broth) they add to it.

So I sat down two months ago to eat tilapia. I used to eat it once or twice a week before the 'gluten crash' and changing my diet. I was only able to eat a few bites and I suddenly felt I couldn't eat it or I would be sick.

So I threw it away.

I kept thinking that my mental reaction to that was SILLY. I LOVE FISH! So I tried again, determined that I would get past my mind, playing tricks on me before. I didn't get through three bites before I knew I had better stop, or I would throw up my entire supper and not eat.

Any one else have this happen? A sudden aversion to a food you used to love? That for all you know, is ok for you to eat?

Have I developed a sudden neurosis? My logical mind says I love fish. (or it used to, now it says stay away from it) But when put in my mouth, I want to be sick. I suppose it could be my body warning me it doesn't want fish.

I have NEVER in my life had a reaction to a food like that before. I am a person who would try anything edible. I might not like it, but I would go ahead and swallow it. It wouldn't gag me.

Someone please tell me this happened to you, so I don't feel so odd!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FruitEnthusiast Enthusiast

Boy do I hear you on this one. I too have so few things my body will tolerate. I try not to think about what will happen if there is nothing left for me to eat. Yes, you can develop a problem to a food all of a sudden when you used to tolerate it fine. It's happened to me several times. Most recently nightshade plants gave me a bad reaction out of the blue. I don't know why fish would bother you in particular, but I would listen to your body, if it doesn't like it that much. Mercury or something else toxic from the water is all I can think of that could give you a problem with fish.

Pauliewog Contributor

I have had the same thing happen especially with fish. I love grilled fish but right now I can't go near it. I have no desire to eat it. I am still ok with sushi! In my case, I think weather plays a part too. It is really hot and humid where I live right now. I have no interest in even warm food. I have been eating all my meals cold. I usually steam a bunch of vegetables then cool them and have big mixed veggie salads. I just had tuna for lunch. That doesn't seem to bother me. So no, you aren't odd.... unless I am too!

RuskitD Rookie

~whew~ Thank you so much! I feel so much better knowing I am not alone in this! As I said, I used to be game to try any food! I never turned down a chance. So for me to suddenly gag at eating something so common, that I always loved and enjoyed just seemed so bizarre!!!! Of course, this life of being suddenly intolerant to many foods is bizarre also!

Thanks!!

Pauliewog Contributor

Unfortunately, I have yet to have an aversion to chocolate!

bartfull Rising Star

I love eggs. Always have. When I was a sick little kid, soft boiled eggs was the only thing they could get me to eat. If I were about to be executed, a bacon egg and cheese sandwich would be on the menu for my last meal.

But after going gluten-free I would get nauseous every time I would eat eggs. Someone here mentioned that eggs cooked in the shell might do that, whereas eggs exposed to air wouldn't. So now I eat my eggs fried or scrambled. I miss my soft boiled, but they still turn my stomach. :(

T.H. Community Regular

This has happened to me too, yup.

I've been doing this not too long, really, about 3 years now. But so far, most of the time, I eventually find a reason for my aversion that makes total sense, once I figure it out. Now I've learned to trust that feeling, even if it makes no sense.

Sometimes it's the food itself, but most times, it's contamination of the food with something I can't have. I can't have gluten, plus a few allergens and sulfites.

I went through a period where anything salty made me gag. I had to force myself to eat it. Which seems stupid, you know? What sense would that make? Turns out that I react to low levels of sulfites that can be used to bleach salt. When I found a safe salt, all of a sudden my salty dishes didn't bother me anymore.

You react to corn, yes? I could think of one possible issue with the fish that could affect those with very sensitive corn reactions. I react to sulfites, and many corn derivatives are sulfited during processing, so I've had to keep track of both the corn and corn derivatives now, for both my reactions to corn AND to sulfites, ugh.

So what I've found is that fish sometimes get a citric acid wash as the anti-bacterial wash (beef too, sometimes, but that's rarer). There is also ice that can be used on the fishing boats, to store the fish in, that is a mix of water and citric acid. I don't know if the acid is added by the fisherman, or if they purchase it already combined - if it's the latter, the fisherman may not even know that it's there.

Again, it's a good anti-bacterial, so you can see why they'd use it. Oh, and if you have fish that comes in a styrofoam tray with one of those little pads underneath, the pads usually have citric acid in them, too. :-/

The citric acid penetrates a few layers into the flesh, so it can't be washed off.

If you react to citric acid, it might be worth checking out other brands, maybe, see if they sit better with you, yeah?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RuskitD Rookie

Everyone, thank you for the posts! I don't feel so weird now. Won't rush off to get my head examined just yet. LOL

PaulieWog, I have no aversion to it chocolate either, but my body does. I was making my own little cocoa/cane sugar thick chocolate syrup to eat with a spoon for a choco fix. But I got raging heartburn so bad.... I gave it up. Ohhhhhh how nice it would be to have chocolate on my tongue! Have a piece for me... please?

Other than the chocolate, I refuse to pity myself. I am luckier (so far) that I can still have things many here cannot. Eggs being one!

Shauna, thank you so much~! I had already decided what you suggested. It feels good to have validation! I figured if my body said NO, then NO is the answer! :) At this point, it knows more than I do. I listen closely, and give it what it asks for, and keep from it what it doesn't want.

This can be a wild ride sometimes, figuring what we have to live without, while trying to eat SOMETHING! Yes, I have reacted to fresh, already cut up watermelon from the store. It had no packet in it, and no ingredient on the label other than watermelon, but it did a number on me. I later realized, of COURSE they sprayed it with citric acid to keep it 'pretty'. So, though I don't 'know' I reacted to citric acid, my body knows I ate something very wrong.

I gave up regular table salt too. I guess the iodine is a corn derivative. Either way, it felt like it was killing me.

Thank you all!!!!!!!!!!!!!!!!!!!!!!!!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.