Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly (Mostly) Gluten-Free And Acting Wacky


tommysmommy

Recommended Posts

tommysmommy Newbie

My 21 month old son was just diagnosed with celiac after a terrible 2 month long illness. Our family of 5 has quickly gone gluten-free at home, and I'm obsessed with reading and learning more.

My husband has had stomache issues for 20 yrs, always baffled doctors, has rectal prolapse and likely bi-polar disorder (also sought help hot bit never diagnosed). I believe he has celiac too (havent tested yet), which would explain and help do many of his issues.

He has been eating gluten-free at home but has been cheating occassionally when out, mostly out of ignorance (this is so new to us). Last night he went put with a friend for a drink, got a gluten-free beverage but without thinking, ate a couple pretzels. He doesn't remember much else - his friend says he has 1 drink but threw up and went home. He remembers making 1 stop and came home 5 hours later, completely oblivious to time and not checking hid phone (not like him). Today he tried to work (he had hid own home improvement business) but can not remember doing the work, even though he got paid for it. He got lost in our own neighborhood on his way home. Came home and went to sleep, has little appetite.

Clearly he needs a doctor asap. It seems to me that after yrs of problems his body has so accepted the mostly gluten-free choices this week, he is getting wildly sick from gluten that didn't affect him the same way last week. I also suspect a serious vitamin deficency.

Sound familiar to anyone out there? Celiac is scaring us to death!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I would call the doc right away! It may have nothing to do with gluten. He may have had a stroke or something else that needs to be looked at right away.

jerseyangel Proficient

I agree with Karen, I think he needs a workup to determine what, exactly, is going on. Best of luck to him :)

ravenwoodglass Mentor

I agree with the others. Take him to the ER and tell them what has been happening. If he is hard to wake up call an ambulance.

rosetapper23 Explorer

I agree with the others....but, after being checked out, if the doctors find "nothing" wrong, it's important to know that ingestion of gluten can cause reduced blood-flow (oxygen) to the frontal lobes of the brain. This was only discovered a few years ago and accounts for some of the neurological symptoms suffered by people with celiac. And, yes, it could be that your husband is suddenly being bothered by this symptom because gluten was removed for a bit and then reintroduced. It's odd, though, that he would be reacting so soon after the gluten was removed. For many of us, after we've been on a gluten-free diet for a while, we become dizzy and suffer headaches when we accidentally ingest gluten. Celiacs sometimes suffer from depression or bipolar, too.

When your husband visits the doctor, he should request a thyroid test while he's there. His behavior might be explained by a hypothyroid condition like Hashimoto's.

Please let us know what happens!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      40

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,380
    • Most Online (within 30 mins)
      7,748

    Debbie Pattenden
    Newest Member
    Debbie Pattenden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.