Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coming Off My Anti Depressants


Skittles

Recommended Posts

Skittles Enthusiast

Hello, I havent written in here in a little while but I really need somewhere to vent. I feel like no one understands what i'm going through. I went to my doctor about 5 years years ago with an eating disorder and other problems such as no energy and no drive to do anything. I needed some help as I was a university student and stopped attending classes. My doctor put me on an anti depressant, citalopram (Celexa) 40 mg. I have only been diagnosed with celiac this past April. After being diagnosed I now know why I was experiencing all of these symptoms. I have wanted to go off my anti depressants for a couple of years now but I just found it difficult to do so. Finally this past February I decided I was going to stop them. I was not in any rush so I slowly decreased my doses and finally finished them about 2 weeks ago. I was doing very well while decreasing my doses. It wasn't until about the last week before coming off that I found myself to be emotional. But about a week after coming off them completely I find that I am extremely erritable! And so cranky! and if one thing goes wrong (even something that would seem so little to someone else) I cant handle it at all. I can't cope at all. I get terrible mood swings. Living with my boyfriend, I just take it out on him, which I hate and don't want to do.

I am not going back on the anti depressants. I am not depressed and dont even think that I was before I went on them. Everything I was experiencing was related to my untreated celiac. Its just that after being on them for so long I am having a hard time coming off It's just the mood swings that I hate!!

Has anyone else been on anti depressants and experience anything like this? Andd do you have any advice? or can anyone give me a time frame as to when you started to feel like yourself again?

I feel like no one around me knows what im going through or why I am feeling the way im feeling :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

what was your taper? they are VERY hard to get off. perhaps the last step was too quick?

Takala Enthusiast

You know that mood swings and crankiness are also a side effect of being glutened, don't you ? Perhaps you have a cross contamination problem instead of a pill problem. And if it is only six months you have been avoiding gluten, you may not have all the ins and outs down yet - like, if the boyfriend eats it, he needs to brush his teeth before kissing you.

Also, for moods, taking a multivitamin, calcium/D/magnesium mineral, eating good fats, and exercising regularly really help.

MitziG Enthusiast

Just want to make sure you understand, depression isn't always manifested as sadness. Irritability, short temper, mood swings can all be symptoms of depression. Likely you were depressed, even if celiac was the root cause.

Depression can be caused by many things, and when it is caused by gluten, it doesn't necessarily go away when you stop eating it. I know for myself, my depression is much better now that I am gluten free, and like you, I thought I could handle it without meds and tried to stop. But I couldn't. I take a lower dose now, but I still need them. Its been 18 months gluten-free now, and maybe I need more time for my body to repair what gluten did to my brain. Or maybe it can't be repaired. Time will tell.

There is no shame in having depression, or taking medicine for it. It is an illness as a result of our body malfunctioning, not a personal weakness.

I would advise you to resume your meds at a lower dosage for another 6 months, then try weaning off them again and see how you do.

Just my two cents.

MitziG Enthusiast

Also, be sure to have your Vit D, iron/ferritin and B12 levels checked. They are often low in celiacs and can contribute to depression. Having a thorough thyroid checkup would be a good idea too.

YoloGx Rookie

I agree with what Mitzi said, though other things can contribute like the cross contamination and damaged villi in the intestines causing mal absorption of basic nutrients you need for healthy nerves and brain etc. like B vitamins and vitamin E as well as the minerals (calcium, magnesium, zinc, trace minerals).

Sometimes taking pancreatic enzymes and probiotics to improve digestion, and things like dandelion root or nettles or barberry (we are all so very individual--what agrees with one may not with another) to help out the liver, and perhaps St. John's Wort (as a tea--not as a tincture due to gluten likely in the alcohol) as a mild herbal non addictive anti-depressant can be a winning combination.

One other thought--are you certain there was no gluten in the anti-depressant pills?? Sometimes its there and then you go through withdrawal symptoms when you finally go off them.

Other possible sensitivities can also create depression and mood swings too--like lactose or casein or various food chemicals (salicylates, amines and even oxalates or tannins). Often the damage the gluten does sets us up for other sensitivities that really can affect our moods amongst other things. Sugar by the way is in general really damaging and can set up addictive mood swings all by itself.

So my best suggestion is to keep sleuthing and narrow down the possibilities.

Bea

ravenwoodglass Mentor

You have gotten some good advice already. As others have mentioned glutening in itself can cause mood issues so do make sure you are doing all you can to prevent even small amounts of CC. Eat as cleanly as possible. One thing that wasn't mentioned was excercise. Getting out and going for a walk or jog, swimming or doing in home excercise can help a bit. For some talking with a counselor can be helpful in learning to deal with stuff and how not to take it out on those we care for.

If you do decide to go back to a low dose of your meds, or any med, be sure and let your doctor know if you are using any herbals or supplements that contain them as some combinations can have bad side effects on their own and especially when combined with prescription meds.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

I have suffered with psychatric issues since teenage years. I understand your thinking getting off the meds. Some you can lower doses but you may still need a bit extra to get thru.

You may want to research some mood stabizers. They can be effective, especially since you feel you are not depressed. Fish Oil is a natural mood stabilizer. Lentra is another mood stabilizer. There are also other supplements to help with depression and anxiety. SAMe or L tyrosine and Deplin. And of course Be Complex.

There are more, I just can't think of them but, you can find them with research.

There are also devices such as light boxes and neural stimulators, one is Alpha Stim.

Good luck and I hope you find some relief.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,363
    • Most Online (within 30 mins)
      7,748

    NAC
    Newest Member
    NAC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...