Good Morning All-
About a week ago I was able to add almonds back to my limited list of safe foods. I find almond butter quite expensive, so I purchased a four pound bag to make my own. It was really easy to make, unfortunately I had a gluten-like reaction within the first hour. My initial symptoms to gluten ingestion are bloating, suddenly tired and very grumpy - followed by two or more days of other fun symptoms.
I email the company that processed the almonds and was thankful to get a response that confirmed my suspicions - as many small companies do not respond leaving lingering suspicion. I asked them to consider adding a shared facility statement to their products and am posting their email here so that the next person to research Spicy World products will find info. Please note this company is Spicy World, not Spice World.
" Re: almonds - gluten
1 message
<spicyworldofusa@gmail.com> Sat, Oct 13, 2012 at 1:06 AM
To: Lisa <@gmail.com>
Hi Lisa
Yes there is. I am very sorry.
Thanks
Katherine
Spicy World of USA
On Oct 11, 2012 10:15 PM, "Lisa " <@gmail.com> wrote:
Is there any gluten used in the same facility that your whole almonds are packaged?
Thank You!"
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6 replies to this topic
#1
GottaSki
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"Migratory flight complete."
Posted 13 October 2012 - 06:11 AM
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
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#2
GottaSki
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"Migratory flight complete."
Posted 13 October 2012 - 06:21 AM
PS...for those of you that are thinking it...I've already kicked myself for not sending this email before I purchased and ate these almonds. This isn't the first time I've gotten burned trying to save money. More caution will be used next time - well maybe 
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#3
IrishHeart
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Posted 13 October 2012 - 06:55 AM
So sorry, honey. 
FWIW, I have called a company and asked BEFORE eating their products and they assured me it was safe (wheat is not processed in the same facility --but could not guarantee what the source for all materials was---and if they did share lines, they run the gluten-free ones first on Monday and clean them thoroughly)
Now, I did not stop to think...okay, but then, they are going to run the other products all week long, clean the lines and then run more gluten-free products the next Monday....
DOH!
Yes, it bit me on the butt and was sick as a dog for 2 weeks (thus earning me the sensitive label from my doc), so don't beat yourself up over this one.
I always recommend nuts.com (no, I am not a paid spokesperson and not affiliated with them because if I were, I'd have them lower those dang shipping costs!!)
But they are my go-to company for certified gluten-free nuts, gluten-free flours, dried fruits, etc. and I love the quality. I have received an order in 24 hours, no kidding.
I have never had a reaction.
Hope you're feeling better.
FWIW, I have called a company and asked BEFORE eating their products and they assured me it was safe (wheat is not processed in the same facility --but could not guarantee what the source for all materials was---and if they did share lines, they run the gluten-free ones first on Monday and clean them thoroughly)
Now, I did not stop to think...okay, but then, they are going to run the other products all week long, clean the lines and then run more gluten-free products the next Monday....
DOH!
Yes, it bit me on the butt and was sick as a dog for 2 weeks (thus earning me the sensitive label from my doc), so don't beat yourself up over this one.
I always recommend nuts.com (no, I am not a paid spokesperson and not affiliated with them because if I were, I'd have them lower those dang shipping costs!!)
But they are my go-to company for certified gluten-free nuts, gluten-free flours, dried fruits, etc. and I love the quality. I have received an order in 24 hours, no kidding.
I have never had a reaction.
Hope you're feeling better.
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. 
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#4
GottaSki
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Posted 13 October 2012 - 07:16 AM
Thanks IH 
Not beating myself - I give a quick kick and move along - had plenty of "dohs" - certainly enough to know this won't be my last
My grumpy and froggy symptoms are much better this morning - digestive and body aches and pains will last a bit longer, but I know they'll improve.
Not beating myself - I give a quick kick and move along - had plenty of "dohs" - certainly enough to know this won't be my last
My grumpy and froggy symptoms are much better this morning - digestive and body aches and pains will last a bit longer, but I know they'll improve.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#5
Celiac Mindwarp
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Posted 13 October 2012 - 07:27 AM
Glad to hear your frogginess is hopping off.
Great news about getting almonds back.
I can eat them, but my son is anaphylactic allergic, so I can only have them away from home on my own. Roll on my November nut fest.
I can't tell you what a joy trying to to gluten free nut free is in the uk (not!!!)
Great news about getting almonds back.
I can eat them, but my son is anaphylactic allergic, so I can only have them away from home on my own. Roll on my November nut fest.
I can't tell you what a joy trying to to gluten free nut free is in the uk (not!!!)
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#6
GottaSki
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"Migratory flight complete."
Posted 13 October 2012 - 08:11 AM
Thanks MindwarpGlad to hear your frogginess is hopping off.
Great news about getting almonds back.
I can eat them, but my son is anaphylactic allergic, so I can only have them away from home on my own. Roll on my November nut fest.
I can't tell you what a joy trying to to gluten free nut free is in the uk (not!!!)
Living with multiple allergies/intolerances sure does make life interesting. Anaphylaxis makes it plain scary - had my first such reaction last year - boy I thought I had it tough before - not!!! Sure hope your son is able to stay safe every day.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#7
shadowicewolf
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Posted 13 October 2012 - 08:32 AM
Ouch. I thought about doing the same with peanut butter, but for the life of me, could not find a package without the "being processed with...." blah blah blah.
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Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
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