Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Perfumes...


shadowicewolf

Recommended Posts

shadowicewolf Proficient

Alright, so i've had somewhat of a bad day today. Went to class, got to my third one of today, walk in and it smelt like someone had dumped an entire bottle of perfume there. I could feel the start of a major headache/throat ache coming on. Fine, told the professor that i might have to leave because of it (as the classroom has NO ventilation whatsoever). Had to stick it out because the attendence sheet went around whilst i was out of the classroom (i had to go outside for a bit, but left my digital recorder in place). Fine and dandy.

Came back to my apartment after missing the shuttle (ugh) and ate lunch (pb and honey on corn tortillas + some honey on a rice cake (yes i know, carb overload, leave me be)). Went back out to my next class, where i was for about 3 hours. On my walk over to my final course, I felt something strange.

My left side of my face felt as if i had been laying on a heating pad for a while (including the ear). I had also just passed a group of people that smelt like they had drenched themselves in perfume... again.

Its just now starting to go away (after a long shower which helps). I used to get this type of reaction (though more of a burn with it but it would start out like this) when i would eat tomatos. It is NOT a fun feeling (or memory for that matter). I say this because benadryl (should this keep up for another hour or so) is the only thing after an exposure to something. I kid not.

Taking into account that it had been about 4 and a half hours after i ate, I do not believe that is the cause. Every single time i've had an reaction, it was always within the first 30 or so minutes after exposure.

I should also note, such allergies to chemical like things run majorly within my family. For example, my grandmother cannot step into home depot without breaking out in hives. The same goes for being around perfumes and whatnot.

Just thought i'd come on for some ideas.

/end somewhat paranoid rant


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I understand the sensation you are describing. Happens to me in department stores or if I walk by one of those perfumey stores like Bath &Body or VS.

I can get an immediate, growing crushing headache very quickly. Fresh cool air, and avoiding "migraine" triggers is all I can do. A shower helps. Washing my face in the bathroom helps. Washing my sinuses with a Neti pot helps, too. So does an antihistimine.

It is MUCH LESS SEVERE now gluten-free;however, during allergy season it's much easier to trigger a scent reaction.

shadowicewolf Proficient

glad i'm not alone. This is the first time with the face thing though, so i got spooked :unsure:

Its, i'd say, completely gone now. So strange though <_<

T.H. Community Regular

Can you have wine at all, or does it make you sick?

I react to the same thing - perfume, big-time, plus store-bought tomatoes, too.

My own reaction has been due to sulfites. They are used as a preservative in the majority of perfumes, which is why I react to those, and they are in a commonly used spray to ripen tomatoes, too.

If wine makes you sick, too, you might want to check out sulfites. If it doesn't, then there is no way it's sulfites, as wine is high in sulfites. However, maybe it would be worth your while to check out common ingredients in perfumes and ingredients in any common sprays or ripening agents used on tomatoes and see if there are any ingredients used in both. Might be able to find out what you react to, you know?

Oh, another possibility? There are a few genetic enzyme deficiencies that can be checked by a geneticist. I do not know the names, but was just talking to someone about this the other day who had a deficiency that wouldn't let her body process certain toxins - some in perfumes - properly. Since so many in your family have this, that might be worth a look, too, if you save up for the tests, you know?

shadowicewolf Proficient

i've never drank wine, but i've had it in food stuff (its been a while though) with no issues.

I'll definently look into it.

pricklypear1971 Community Regular

I can drink wine...though after my wine tasting experience last fall I have a hard time drinking more than one glass of red.

Wine can give me a headache, other times I'm fine. But alcohol in general can make me headachey -especially if its allergy season.

Essential oil scents don't make me sick, and some perfumes are fine...but a "store full" bugs me, as well as spending too much time in the cleaning products line at the grocery store.

And don't get me started in the old guy that wears a bottle of cologne TO THE GYM....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748

    Pbaentine
    Newest Member
    Pbaentine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.