Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Perfumes...


shadowicewolf

Recommended Posts

shadowicewolf Proficient

Alright, so i've had somewhat of a bad day today. Went to class, got to my third one of today, walk in and it smelt like someone had dumped an entire bottle of perfume there. I could feel the start of a major headache/throat ache coming on. Fine, told the professor that i might have to leave because of it (as the classroom has NO ventilation whatsoever). Had to stick it out because the attendence sheet went around whilst i was out of the classroom (i had to go outside for a bit, but left my digital recorder in place). Fine and dandy.

Came back to my apartment after missing the shuttle (ugh) and ate lunch (pb and honey on corn tortillas + some honey on a rice cake (yes i know, carb overload, leave me be)). Went back out to my next class, where i was for about 3 hours. On my walk over to my final course, I felt something strange.

My left side of my face felt as if i had been laying on a heating pad for a while (including the ear). I had also just passed a group of people that smelt like they had drenched themselves in perfume... again.

Its just now starting to go away (after a long shower which helps). I used to get this type of reaction (though more of a burn with it but it would start out like this) when i would eat tomatos. It is NOT a fun feeling (or memory for that matter). I say this because benadryl (should this keep up for another hour or so) is the only thing after an exposure to something. I kid not.

Taking into account that it had been about 4 and a half hours after i ate, I do not believe that is the cause. Every single time i've had an reaction, it was always within the first 30 or so minutes after exposure.

I should also note, such allergies to chemical like things run majorly within my family. For example, my grandmother cannot step into home depot without breaking out in hives. The same goes for being around perfumes and whatnot.

Just thought i'd come on for some ideas.

/end somewhat paranoid rant


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I understand the sensation you are describing. Happens to me in department stores or if I walk by one of those perfumey stores like Bath &Body or VS.

I can get an immediate, growing crushing headache very quickly. Fresh cool air, and avoiding "migraine" triggers is all I can do. A shower helps. Washing my face in the bathroom helps. Washing my sinuses with a Neti pot helps, too. So does an antihistimine.

It is MUCH LESS SEVERE now gluten-free;however, during allergy season it's much easier to trigger a scent reaction.

shadowicewolf Proficient

glad i'm not alone. This is the first time with the face thing though, so i got spooked :unsure:

Its, i'd say, completely gone now. So strange though <_<

T.H. Community Regular

Can you have wine at all, or does it make you sick?

I react to the same thing - perfume, big-time, plus store-bought tomatoes, too.

My own reaction has been due to sulfites. They are used as a preservative in the majority of perfumes, which is why I react to those, and they are in a commonly used spray to ripen tomatoes, too.

If wine makes you sick, too, you might want to check out sulfites. If it doesn't, then there is no way it's sulfites, as wine is high in sulfites. However, maybe it would be worth your while to check out common ingredients in perfumes and ingredients in any common sprays or ripening agents used on tomatoes and see if there are any ingredients used in both. Might be able to find out what you react to, you know?

Oh, another possibility? There are a few genetic enzyme deficiencies that can be checked by a geneticist. I do not know the names, but was just talking to someone about this the other day who had a deficiency that wouldn't let her body process certain toxins - some in perfumes - properly. Since so many in your family have this, that might be worth a look, too, if you save up for the tests, you know?

shadowicewolf Proficient

i've never drank wine, but i've had it in food stuff (its been a while though) with no issues.

I'll definently look into it.

pricklypear1971 Community Regular

I can drink wine...though after my wine tasting experience last fall I have a hard time drinking more than one glass of red.

Wine can give me a headache, other times I'm fine. But alcohol in general can make me headachey -especially if its allergy season.

Essential oil scents don't make me sick, and some perfumes are fine...but a "store full" bugs me, as well as spending too much time in the cleaning products line at the grocery store.

And don't get me started in the old guy that wears a bottle of cologne TO THE GYM....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,136
    • Most Online (within 30 mins)
      7,748

    GFTom
    Newest Member
    GFTom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.