Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stiff And Achy Is This Just Part Of It?


GFreeMO

Recommended Posts

GFreeMO Proficient

My gosh here lately, I am so so stiff and achy. I feel like I have the flu but I am not sick. I went to the dr. for this and was tested for lupus, RA, MS, Thyroid came back ok and arthritis and the blood work all came back ok except for elevated liver enzymes that I assume will straighten out after some time on the diet.

I am so tired of being stiff and achy. Any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Massage?

kareng Grand Master

I have been feeling like that. I started taking a beginner yoga for people with physical challenges. And I have been exercising more and my joint pain and stiffness seems to be going away.

shadowicewolf Proficient

weather?

gatita Enthusiast

I had horrible joint pain along with my GI stuff when all this started last year. I am sooo happy to say that after 6 months gluten-free all the pain and stiffness are gone.

Maybe it's a matter of time??

NorthernElf Enthusiast

I hear you. I have run the whole gamut of tests like you as well - everything is 'normal' except for the fact that I hurt ! The rheumy said I likely just have tendonitis......in my hands, wrists, elbows....runners knees....why do my ankles & feet hurt ? Neck pain and stiffness ? He doesn't know. Fatigue ? Doesn't know.

Guess I will just wait & see if anything develops. Cold weather is definitely worse...and I make sure I get enough rest. Sometimes that's just sitting down with a coffee or tea and relaxing here & there. Sometimes bloodwork doesn't show some conditions right away or at all. It is very frustrating.

I am very carefully gluten-free so I don't relate it to gluten at all.....only so far as celiac being an autoimmune and a chance of other autoimmune things developing.

dreacakes Rookie

I had these issues too. Joint pain, stiff, achy, easily got tendinitis, even had muscle spasms and other issues. All other autoimmune disorders tested negative, and no swelling at the sites of the pain. They told me I had "fibromyalgia" and just tried to give me pain pills. I declined!

What healed me was going on a totally grain free Paleo diet, and cutting out nightshade plants as well. The pain is due to inflammation from leaky gut, which won't heal on a regular gluten-free diet, and also from nutrient deficiencies due to the gut damage.

I also take sub-lingual B12 supplements and fermented cod liver oil (a great source of vitamin D, low levels of this nutrient are linked to pain. This is the best brand: Open Original Shared Link) Make sure you're eating foods with cholesterol in them as well, as it is actually essential to proper vitamin D absorption.

This condition is super common, I actually saw a doctor in Berkeley who knew exactly what it was and how to treat it, he was the one who got me on this diet in the first place.

The diet is really limiting, but totally worth it, I promise. If you need more info feel free to message me. :)

If you have a Kindle or reader, this book is helpful too: Open Original Shared Link

I hope you feel better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pegleg84 Collaborator

I also get the achiness, definitely after being glutened (for a couple days at least), but often without any link to something I might have eaten. I usually think it's sitting around too long at work or at home, but then why are my arms all achy and tingly?

They are right now, actually, and I know I have not eaten anything that could have been ccd with gluten/dairy/soy in over a week, but it started after I had a banana earlier this morning. So I don't get it.

I haven't been tested for arthritis or anything like that (maybe should? it runs in my family, but gad! I hope I'm too young for that to kick in now!), but it could be my vitamin levels or that "mild gastritis" still hasn't healed. I don't know!

GFreeMO, do you feel kind of jittery/tingly/unsteady as well?

It could just be that it's the middle of the winter and that's bad enough (depending on where you live).

Hope you figure it out!

Good to hear the Paleo diet is working for you, Dreacakes. I'm kind of too chicken to try it out. Yet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    2. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    3. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,270
    • Most Online (within 30 mins)
      7,748

    Hope2024
    Newest Member
    Hope2024
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
      This article might be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.