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kennedymoore

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About Me

I am a 40ish female. I have celiac disease, Hashimotos, Lupus, Anemia, PCOS w/insulin resistance. I have had gastro problem for most of my life. In the last 12 years began to suffer terribly with migraines, unexplained weight gain, miscarriage, infertility, depression, neuropathy, night sweats, sleep walking, elevated cholesterol, anemia, fibromyalgia, narcolepsy, gallstones, liver disease, Vitamin D deficiency, acid reflux, persistent daily nausea and vomiting, cold intolerance, profuse sweating, low blood pressure, heart failure, and so much more. I spent 12 years going to doctors looking for answers. After 3 years of being bedridden I began to seek answers from God and not doctors. I finally diagnosed myself with celiac disease. Once my gastroenterologist confirmed it my then endocrinologist began taking my other complaints seriously and I was diagnosed with Hashimotos.

I am gluten-free, soy-free, Non GMO corn-free, grain-free, MSG-free, fruit-free, alcohol-free, tap water-free. I consume organic grass feed sources of dairy, grass fed meats, free-range poultry, vegetables. My favorite drink is filtered WATER!

I want to connect with others about Hashimotos, healthy supplement alternatives, managing hair loss, treating anemia and how they are healing emotionally.

  1. Tirosint is the only gluten free T4. I am a celiac and I take it without any problems. None of the other T4 compounds are gluten free - especially synthroid. Also, a compounding pharmacist can compound T4 and T3 for you with a Drs Rx.
  2. Hellopixies90, I just want to add that you can find comfort on this site by just having someone to talk to who cares about you and understands. Like so many celiacs I too don't trust doctors. It took me 12 years of seeing doctor after doctor and getting no relief. Even when I could not walk, had to close my business, could not drive, and was from a wheelchair...
  3. I have been trying for a while to make the connection between celiac disease, EBV, CMV, Parvo B19, Low Red Blood Count, Low Hemoglobin, Hematocrit, Low MPV. Bingo - there is a connection. With IV iron and the new oral iron EZfe my Hematologist got my ferritin to almost 300, total iron over 82. I still feel rotten and my hair is falling like crazy. I have...
  4. CVS Pharmacy 1. Pop Chips (2/$5) 2. Blue Bell Ice Cream (2/$3) 3. Haagen-Dazs: (3$10) Here is a list of HD that are not gluten-free. I found this posted earlier on this site. But as always double check. Haagen-Dazs: The only Ice cream and Ice cream snacks that contain Gluten are: Superpremuim ice cream: caramel cone chocolate chip cookie dough...
  5. I love this forum. I was getting my grocery list together, checking the sales and matching coupons when I saw BB on sale and thought.... I could have this around the house as a treat for me and my boys. Then I decided to double check in the celiac world to make sure no complaints. So, So glad I found this. I would have checked at the store but it helps to...
  6. I actually have celiac disease and I don't believe that the reaction to gluten is any different in celiacs than those who are non-celiac gluten intolerant. The obvious reaction to gluten is what most people focus on, however, because exposure can be "silent" you are still damaging your precious body. I would turn my entire kitchen and house gluten-free and...
  7. Thanks for posting that about BRM. I just purchased two of their products, one being the chocolate chip mix. I had already decided to return it because it contained soy. I have Hashimotos too and SOY is out for me. No one should consume soy unless it is fermented (my opinion). Now I am returning all of their products. Great tip!
  8. Sharon: I love this entry. You have an attitude of healing. The statement you made, "If it is as simple as modifying my diet, I can do that" should be given in bold letters by doctors to everyone diagnosed with celiac or gluten-intolerance with credit given to you. We are told by everyone how difficult giving up the food that hurts us will be...
  9. I read your post and could certainly identify with you. Thank you for trusting us enough to share your feelings. I know just having a place where you can say how you feel must have felt good. I often say that family friends get tried of us being sick because as far as they are concerned there is no end in sight. What they fail to realize is that good health...
  10. I've never heard of a dual Graves/Hashi Dx. I have Hashi. Besides hair loss I feel great. I attribute that to taking vitamin D3 and getting my iron issues resolved. My oncologist started me on EZFe iron supplement. It is incredible. I would suggest that you take a soy-free D3 (Premier Research Labs), soy-free Omega 3 (no omega 6 or 9), vitamin C.
  11. Are you using the premier research labs HCL and Activator? I see that you are on a low dose naltrexone- any success? I read about using it to improve immunity. What Dr. Rx'd it for you.
  12. So sorry to hear of your difficulty. Take a deep breath... you are going to get through this. I would suggest that you try doing a salt water flush. Open Original Shared Link Here is the link at the website Healthbeyoundhype.com. The salt cleanses the entire digestive system, something an enema won't do. Keep doing it until you get some relief. Aloe vera...
  13. Stick with the gluten free diet - it is the key to health. Focus on the gluten-free choices that do not come in a box or bag. You have the pick of the liter - fresh vegetables, fruit, grass-fed meats, seafood and the water you can stand. Go easy on the fruit the sugars exhaust our adrenal glands. You can do this.
  14. Sorry to hear that you have Hashimotos. I refer to mine as the DEVIL. However, you can live well with it, I am . Don't stress about it. Yes, that is easier said than done. Read the book by Dr. Datis Karrazhian. I have the ebook and will forward it to you if you like- just email me. Also, if you decide to go on a T4 replacement don't get on Synthroid...
  15. I am responding to your comment about Dr. Datis Kharrazian book. I read it and found it helpful. On my own I started a non-soy based vitamin D3 (Premier Research Labs D3 Serum) I take 5000 ius daily. It is in an olive oil base. I increased my vitamin C, tremendously, started taking LIPH to raise glutathione and SOD levels, I also take the Oxicell gluatathione...
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