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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- trents replied to Stephanie Wakeman's topic in Coping with Celiac Disease1Is it common to develop a wheat allergy in addition to Celiac Disease?
Welcome to the forum, @Stephanie Wakeman! I don't know how common it is but it is certainly possible. In fact, as you may already be aware that, if you live in the USA, the FDA lists it as one of the eight most common allergens and if it is present in a commercial food product it must be declared in the allergen section of the product's nutritional analysis... -
- StuartJ replied to The Logician's topic in Related Issues & Disorders20Gluten Sensitivity
I don't think the eggs were to blame; yesterday was the first time she had made gluten-free bread using Xanthan gum as a thickener, and while this is generally assumed to be OK (and most gluten-free recipes call for it}, I read that Xanthan gum intolerance, or sensitivity, primarily manifests as gastrointestinal discomfort. The most common symptoms are related... -
- KimMS replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications4Gluten free thyroid medications
Thank you. This is very reassuring! -
- Stephanie Wakeman posted a topic in Coping with Celiac Disease1Is it common to develop a wheat allergy in addition to Celiac Disease?
Hello Everyone, I was diagnosed with Celiac disease over 15 years ago by the gold standard of endoscopy. Over the years, I've had a couple of accidental ingestion of gluten. The last 2 accidents, I stared to develop symptoms of an allergic response IN ADDITION to the typical GI symptoms experienced with gluten exposure. A couple weeks ago, I ate some... -
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Welcome to the forum, @Stephanie Wakeman! I don't know how common it is but it is certainly possible. In fact, as you may already be aware that, if you live in the USA, the FDA lists it as one of the eight most common allergens and if it is present in a commercial food product it must be declared in the allergen section of the product's nutritional analysis label. So, just judging from that, I would assume you are not the only celiac who is also allergic to wheat. Statistically, though, since only about 1% of the general population has celiac disease (and many or most of them aren't being diagnosed), combined with the fact that allergic reactions at the level of anaphylaxis are somewhat unusual in the general population, would think you probably won't hear of it much.
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I don't think the eggs were to blame; yesterday was the first time she had made gluten-free bread using Xanthan gum as a thickener, and while this is generally assumed to be OK (and most gluten-free recipes call for it}, I read that Xanthan gum intolerance, or sensitivity, primarily manifests as gastrointestinal discomfort. The most common symptoms are related to digestion. Individuals may experience bloating and gas due to the fermentation of xanthan gum by gut bacteria. Bingo. Since this was the only different ingredient she had used, I think we have found the trigger. Now to look for an alternative. Maybe this will help? https://theglutenlessmaximus.com/gluten-free-resources/how-to-gluten-free-baking-without-xanthan-gum/
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By Stephanie Wakeman · Posted
Hello Everyone, I was diagnosed with Celiac disease over 15 years ago by the gold standard of endoscopy. Over the years, I've had a couple of accidental ingestion of gluten. The last 2 accidents, I stared to develop symptoms of an allergic response IN ADDITION to the typical GI symptoms experienced with gluten exposure. A couple weeks ago, I ate some pasta that I thought was 100% chickpea, but instead it was a wheat/chickpea blend. I actually had an anaphylaxis reaction and needed medical attention. I now have an Epi-pen. Has anyone else developed an allergy in addition to Celiac? How common is this? Thanks in advance for your stories and support. Stephanie -
thank you so much for all your help and information its very helpful, mind blowing but helpful
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