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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- trents commented on Scott Adams's article in Autumn 2025 Issue32Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
@JoJoColes, I was thrice vaxed (Moderna) during the original COVID pandemic era and still got COVID twice within after that. Although it may have lessened the severity of the infections, it certainly didn't prevent it. The long-term potential dangers of the MRNA vaccines as well as the steady decline in the severity of infection connected with COVID strains...- adult
- adult onset
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- JoJoColes commented on Scott Adams's article in Autumn 2025 Issue32Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
Having Discoid lupus and skin lupus I see a rheumatologist every six months. He explained that a bad infection such as covid can activate a dormant gene. I had covid just months before symptoms of lupus showed up and also six months before celiac diagnosis. My primary doctor at that time, advice against getting a Covid vaccine weeks later I had Covid. She...- adult
- adult onset
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- trents commented on Scott Adams's article in Autumn 2025 Issue32
Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
@Anne65, yes, presently, in order to diagnose celiac disease, a person must be actively consuming regular amounts of gluten. The first stage of testing is designed to detect antibodies produced by an inflammatory autoimmune reaction to gluten in the villous lining of the small bowel. When you remove gluten from the diet, the inflammation begins to subside...- adult
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- chrisinpa commented on Scott Adams's article in Autumn 2025 Issue32Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
BTW...it's possible that Scott Adams might weigh in on this one.- adult
- adult onset
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- chrisinpa commented on Scott Adams's article in Autumn 2025 Issue32
Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
I'm not an expert but if it were me I would return to gluten for a short period of time and see if the symptoms return. Apparently there is just a difference between gluten intolerance and Celiac where antibodies attack your system...a form of autoimmune disease. One thing I believe...gluten isn't good for anyone....hard to digest.- adult
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Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
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Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌 Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it. Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future.
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By Scott Adams · Posted
Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for. -
By Scott Adams · Posted
I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
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