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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Olenaideole replied to Olenaideole's topic in Gluten-Free Foods, Products, Shopping & Medications2What apps or tech tools help you manage celiac disease?
Hey @trents, thanks! Yeah I’ve used Scan Gluten Free too at some point. It works, though like you said, those databases aren’t always super current. I also used Mitch (getmitch.app). But it’s not an app, just a simple web tool that reads the ingredient list and highlights hidden gluten, risky additives, and cross-contamination notes. But not bad for d... -
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- daniellelawson2011 replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Lab results
Thank you Scott, I appreciate your reply to my questions. I am definitely nervous about my neurology appointment tomorrow. I have kind of lost faith in physicians, I've had symptoms for 15 years and switched PCPs several times and I've just wondered if I'll ever have answers. I was sent to rheumatology first and that physician tried to tell me I wasnt having... -
- SophiesMom replied to SophiesMom's topic in Gluten-Free Foods, Products, Shopping & Medications3Wheat Straw Dishes
I had already decided I won't buy wheat straw dishes. I'm concerned about eating at someone else's home, or possibly restaurants. I'm very careful to avoid wheat/gluten. My cat doesn't eat cat food with wheat or wheat gluten. I've been told that wheat grass is safe, but if I can avoid it why take a chance. The cat grass sold in "catnip" grow it yourself kits... -
- KennaH replied to Scott Adams's topic in Sports and Fitness1Gluten-Free Pre-Workout & Recovery Foods – What’s Your Go-To?
Interesting topic. I am gluten-free for approx 2 years. Age 60+ with various related health issues related to late diagnosis of celiac disease. Diagnosed osteoporosis and muscle loss. After walking or playing golf, I ate coconut yogurt with collagen protein and whey protein. Whey protein for many amino acids. Bloating and severe abdominal pain. Same with...
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By Olenaideole · Posted
Hey @trents, thanks! Yeah I’ve used Scan Gluten Free too at some point. It works, though like you said, those databases aren’t always super current. I also used Mitch (getmitch.app). But it’s not an app, just a simple web tool that reads the ingredient list and highlights hidden gluten, risky additives, and cross-contamination notes. But not bad for double-checking labels when things look suspicious. -
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By daniellelawson2011 · Posted
Thank you Scott, I appreciate your reply to my questions. I am definitely nervous about my neurology appointment tomorrow. I have kind of lost faith in physicians, I've had symptoms for 15 years and switched PCPs several times and I've just wondered if I'll ever have answers. I was sent to rheumatology first and that physician tried to tell me I wasnt having the symptoms I told him about and joked that all of us have memory problems as we age and that its normal to have white lesions at my age. I know its not normal (im an xray tech and use to do CT). My memory is definitely not the norm for a 44 year old. I have just had to fight, push, advocate, and research things myself. I sometimes feel like a little hamster in a wheel lol. My legs shake so bad going down stairs, sometimes I have to hold onto the wall. I just feel like no one listens. That's in part why I wanted to post on here and hear from people that might have gone through the same thing. I read a few articles about high iga at the early onset of MS, and iga being in CSF also, so im thinking a lumbar puncture is what I need the most, as much as im not looking forward to that. But at this point, I just want answers so we can hit this head on and try to keep it from progressing. I just hope and pray this neurologist will hear me and I can finally get some answers! Thank you again for reaching out! -
By SophiesMom · Posted
I had already decided I won't buy wheat straw dishes. I'm concerned about eating at someone else's home, or possibly restaurants. I'm very careful to avoid wheat/gluten. My cat doesn't eat cat food with wheat or wheat gluten. I've been told that wheat grass is safe, but if I can avoid it why take a chance. The cat grass sold in "catnip" grow it yourself kits is wheat grass. Your cat will be happier with dried catnip, or catnip you grow from seeds. Strawberries: If I wash them in water will they be safe? Or should I use something more than water? I buy frozen strawberries; does freezing affect the possible gluten? Thank you for the info. -
Interesting topic. I am gluten-free for approx 2 years. Age 60+ with various related health issues related to late diagnosis of celiac disease. Diagnosed osteoporosis and muscle loss. After walking or playing golf, I ate coconut yogurt with collagen protein and whey protein. Whey protein for many amino acids. Bloating and severe abdominal pain. Same with collagen protein powder even though gluten and lactose free. I am suspect exposure through other subtle ingredients. Research on both whey and collagen powders is my focus as I need the benefits of post-workout food items.
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