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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0KAN-101 Treatment for Coeliac Disease
This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval. Anokion Announces Positive Symptom... -
- Jim Chris commented on Scott Adams's article in Autumn 2025 Issue1Gluten-Free Travel Guide: How to Stay Safe in 10 Popular Destinations (+Video)
We are going to Spain, Portugal, southern coast of France, Florence then staying in Rome for a few days this coming year. When you say "translation cards", are there a source for these cards or are you talking about self made cards?- gluten-free
- gluten-free food
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- Scott Adams replied to fatjacksonthecat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease23Nicotine Gum For Gluten Symptoms.. Am I Crazy?
BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!): -
- Colleen H posted a topic in Coping with Celiac Disease0Gluten related ??
Hi everyone This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ? My jaw is going nuts ..and that nerve is affecting my upper back and so on ... Bones even hurt. Brain fog. Etc I had eggs seemed fine. Then my aid cooked a chicken stir fry in the microwave... -
- Scott Adams replied to AnnK73's topic in Gluten-Free Foods, Products, Shopping & Medications36
Celiac getting dentures
This is an older article, but may be helpful.
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This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval. Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
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By Scott Adams · Posted
BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!): -
Hi everyone This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ? My jaw is going nuts ..and that nerve is affecting my upper back and so on ... Bones even hurt. Brain fog. Etc I had eggs seemed fine. Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items . I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on. The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔 How long does this last?! Thank you so much
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I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
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