Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,249 topics in this forum

  1. ShRa
    Wheatwacked
    • 9 replies
    • 1.1k views
  2. Kristina12
    Wheatwacked
    • 7 replies
    • 1.1k views
  3. Nogluten4thisgirl
    Scott Adams
    • 1 reply
    • 762 views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. ABP
    knitty kitty
    • 3 replies
    • 1.1k views
  6. gemknorodo
    trents
    • 5 replies
    • 1.4k views
  7. badastronaut
    trents
    • 22 replies
    • 2.3k views
  8. Dhruv
    • 22 replies
    • 1.5k views
  9. Pua
    Scott Adams
    • 9 replies
    • 1.3k views
  10. Marilyn1941
    trents
    • 2 replies
    • 849 views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. Elliebee
    • 13 replies
    • 1.4k views
  13. sh00148
    • 3 replies
    • 790 views
  14. jmiller93
    knitty kitty
    • 8 replies
    • 1.4k views
  15. damnyoureyes
    Wheatwacked
    • 3 replies
    • 1.2k views
  16. marip
    Scott Adams
    • 5 replies
    • 948 views
  17. Confusedcelic
    Denia
    • 22 replies
    • 4k views
  18. kopiq
    • 29 replies
    • 3.1k views
  19. Nogluten4thisgirl
    Scott Adams
    • 4 replies
    • 853 views
  20. 6faith6
    trents
    • 2 replies
    • 876 views
  21. TabithaJ
    • 14 replies
    • 1.4k views
  22. alj67
    knitty kitty
    • 7 replies
    • 2.2k views
  23. cillivilli
    • 3 replies
    • 2.5k views
  24. NatalieCO
    trents
    • 11 replies
    • 3k views
  25. FelicityM
    Scott Adams
    • 3 replies
    • 1.6k views
  26. Layu
    Wheatwacked
    • 31 replies
    • 3.7k views
  27. LinneaW
    trents
    • 1 reply
    • 939 views

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,020
    • Most Online (within 30 mins)
      7,748

    tar4u2c
    Newest Member
    tar4u2c
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mettedkny
      Thank you so much for your validation. I completely agree with you that the crackers COULD be the culprit even with very small trace amounts (less than 20ppm) and accumulating over time - I am at the point where I am about to request that my son gets retested to make sure that my "control subject" is still testing perfectly lol. I have a meeting with my celiac disease doc tomorrow and will run the crackers by him to see if he is willing to retest in a few weeks. I have not had any of them for the past 3 weeks so far, so fingers crossed, we can retest and hopefully find out if it is them. And no - I have been scouring EVERYTHING to make sure nothing else has changed. Only use gluten-free lip products and toothpaste so not there either (but very good suggestion). Thank you for validating me. I feel like many are just saying "you are not being gluten-free enough - but I do have a perfect 16 year track record that proves otherwise - so has to be something sneaky.
    • Mettedkny
      OMG thank you so much for validating me in my "craziness" of being on the hunt for the culprit in my case. "Unfortunately" I do not eat any of the foods you mention, but have stopped eating the crackers that are labeled certified gluten-free to see if they might be the problem. I did NOT know about chicken being injected with gluten liquid - that is horrible!  Hoping my doc will agree to retest after I have been off the crackers for a while. My biggest mystery is - why do I not have ANY symptoms of being cross contaminated or glutened? There is no damage (thank godness) to my villi, and normally I will get canker sores the moment something is even the slightest bit cross contaminated... the hunt continues and I will follow up once I find the answer. Glad you found yours! 
    • Winnie-Ther-Pooh
      Fascinating, thanks! So Canada (at least in 2017) had changed the criteria for detection in oat products from 20 to 5ppm. If the regulation still stands in 2025 then that would mean that any product sold in Canada that contains oats and is claimed to be gluten-free must (theoretically) test less than 5ppm... 
    • maryannlove
      I recently had same problem and posted on here.  My bloodwork also unexpectedly skyrocketed.  When doc sent online comment saying something like "you need to be eating gluten-free food" I was almost in tears because had been very careful.  Like you, went on a mission.  Narrowed mine down to Yasso yogurt mint chocolate chip bars (formerly had Certified Gluten Free label on package but learned now only on small boxes but not large boxes) or BJ's only mixed nuts without "may be processed on equipment that also processes ....wheat" allergy warning and said in big letters "A GLUTEN FREE FOOD."  I went off both and bloodwork drastically improved.  Still don't know if culprit one or both (will add one back in and test again).  Throwing out in case you're eating either of these.  I live in Pittsburgh and during appointment my gastro told me some U. of Pittsburgh students were having same problem.  They finally narrowed it down to liquid injected into chicken they were eating.  (Apparently to make it moist and/or plump.)  Understand how frustratitng it is when you're making all the sacrifices to be careful.  
    • gerbilgirl
×
×
  • Create New...