Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks For The "duh" Moment

luvs2eat

By luvs2eat
in Coping with Celiac Disease

Recommended Posts

luvs2eat Collaborator
luvs2eat
Posted

I wasn't thinking... that's what. Of course you're all right. I was such a dolt to think that picking croutons off my salad was okay. I really was thinking that if I'm not having symptoms, I'm okay.

DUH... that's why I come here. For the good advice I always get.

Thanks for the wake-up call!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Well whats done is done...now you just have to make sure it doesn't happen so you don't do any more damage. Glad we all could help. :D

Guest Viola
Guest Viola
Posted

Good for you for taking this as a learning experience .. a lot of people would have got deffensive. We really are here to help each other out :D

luvs2eat Collaborator
luvs2eat
Posted
  • Author

Viola... have you been peeking into my brain?? Cause I totally got defensive!! But lucky for ME... I thought it through and realized that I'm not always as smart as I like to think I am... and it turned into a valuable learning experience.

Thanks for the support!

debbiewil Rookie
debbiewil
Posted

I read one study where they found MEASURABLE reactions to glutens in celiacs (ie. increased antibodies, etc.) with .1g of gluten. A slice of bread has about 4.8 grams of gluten, which means it's got 48 times the amount of gluten necessary to cause a celiac to have a measurable reaction. And with the size of the average crouton, one probably has at least 4 or 5 times the amount of gluten to cause a reaction. So even a few of those crumbs..... well, you get the picture.

Also, this is a good visual for people who try to tell you "Oh, a little won't hurt." Cut a piece of bread up into 48 pieces, and show them just how small an amount can cause a reaction.

Debbie

Claire Collaborator
Claire
Posted
Viola... have you been peeking into my brain?? Cause I totally got defensive!! But lucky for ME... I thought it through and realized that I'm not always as smart as I like to think I am... and it turned into a valuable learning experience.

Thanks for the support!

<{POST_SNAPBACK}>

Really glad you didn't get bent out of shape by the remarks. My own experience prompted my strong response. I live In PA and a few years back we had the nuclear accident at Three Mile Island. People actually went out there and stood around - just looking - not giving any thought to what radioactivity could be in the air they were breathing. They couldn't see it - so for all practical purposes it wasn't there. The gluten thing is a lot like that. Some people get very sick when exposed to even a small amount. Others do not, I personally can tolerate a small account - could eat a couple of cookies or a piece of pie without having any symptoms. But there is the unseen activity at the cell level that is doing the damage all the same. I am gluten free now. It is too soon to tell if "better late than never" holds true in this case.

Guest Viola
Guest Viola
Posted

Debbie, what a wonderful visual! And that would be for the average Celiac. A real sensitive one would react at less than that. Our big problems are very often caused by what we can't see. Such as a spice that has had starch added as a filler, and you certainly can't see the starch on Dry roasted peanuts, but it wil cause big damage. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted
  • Author

And I forgot my own favorite analogy... I might as well have said... "I can take off the big pieces of rat poison and blow any dust off."

Would I really eat that salad then??

debbiewil Rookie
debbiewil
Posted

Yes, it's all the small "hidden' gluten that I hate. I have no problem whatsoever staying away from bread, pasta, cookies, etc. But it's when you order the salad with grilled chicken breast, and make sure no croutons, you check or go without salad dressing, clean grill, etc. etc. then have a reaction anyway, because they used a commercial frozen chicken breast that has wheat actually in the chicken. Arggh!

And it's not just gluten. A co-worker who is allergic to tree nuts wanted a piece of cheesecake. I sat there and heard her ask the server about what was in it, telling the server she was allergic to nuts, asking that she check and make sure that there were no nuts on it or that it wasn't flavored with a nut extract, like almond, etc. After being assured several times that there weren't any nuts, she got a piece. One bite, and she said -"It's got nuts!" She ended up spending the afternoon in the hospital - there were almonds in the crust, and all the server could come up with was "you didn't ask about the crust, you asked about the filling and the topping!"

And nut allergies are quite common!

Debbie

Merika Contributor
Merika
Posted
And I forgot my own favorite analogy... I might as well have said... "I can take off the big pieces of rat poison and blow any dust off."

<{POST_SNAPBACK}>

LOL! that is funny :P

Merika

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748
    patanddiane
    Newest Member
    patanddiane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.